great news David
A drug free christmas and it looks like quite a bit beyond this what we want good news
seasons greetings yo you and yours
Love Jo x

Hi there.
I thought I'd add my experience and say thanks to you all for your replies as they've helped me too!
I've been on zometa since November 2010 (with a break for transplant) and other than the 1st time hadn't experienced the cold/flu/ muscle aches.
However the last two times I've had it, I've been really achey and have had chronic muscle…[Read more]

Dear Anne & Pete

Thanks for that….I'd sort of not clicked that I'd be seeing our faces on the front cover! A bit of a shock to say the least! Anyway, I hope it helps someone out there a little bit…

Hope you are well

Debs x

hi Steve

I was diagnosed jan 2009 MM renal failure and pnuemonia i had CDT which gave me 3yrs 6months remission I chose not to have an SCT as would have put in dialysis kidneys still hanging on I have just started sub Q velcade on second cycly with reduced doses of some of the drugs to protect the kidneys so chin up i am sure you will be ok i…[Read more]

Great news Helen, I too had Professor Jackson for my SCT at the Freeman this summer so it looks like he knows what he's doing! We've got all the family arriving for Christmas tomorrow. Slightly different mood from last year's gathering. I was diagnosed a few weeks before last Christmas but now I'm in full remission. I've even got more hair now…[Read more]

Well done Frank

now its all systems go keep well and strong you will with Jean by your side
Big Hugs Jo:-)

Great news

have a happy christmas you can relax now
Regards Jo x

Well Keith

you certainly dont do things by half glad you are on the mend now wise advice about gps mine sent me home with pnuemonia and real failure with the instructions to take some paracetamols!!! keep well i hope you can enjoy xmas
Regards Jo x

Merry Christmas to you and yours David
I hopeyou have a lovely time with your family
Love Jo

Well Dia

here we go again you certainly dont do things by half this dam cdiff doesnt seem to go away good news about the bendamustamine I do hope you are well for your birthday HAPPY BIRTHDAY FOR XMAS EVE try to get and stay well
BigBig((((hug)))
Love Jo x

Hi Babs
Day 19 and no adverse side-effects yet. Perhaps you were just unlucky and your next cycle will be better.
Graham

Hi Christine and Chris
I too suffer from PN at times but not as severe as in your case. Apart from keeping myself hydrated (as if we don't have to drink enough!) my hospital also offer Complementary Therapeutic Services such as massages and acupuncture into my feet, legs and hands. It works for me!
Graham

Hello Megan
I have some PN which is unconfortable but not painful we have a foot machine that puts electrical pulses in the foot it does help i also rub in coconut oil thats good as well hope this settles for you husband i expect he can do with out all this
Regards Jo x

gOOD Luck Peggy

I hope all goes well for you and you have a successful SCT
rEGARDS Jo x

Thanks Pat for your greetings

I am glad the experience was ok and you are reponding well fingers crossed for 6 cycles not 8 I am not doing to badly on the velcade but it does knock my Hb out so have had a couple of transfusions I hope you and yours have a lovely christmas and you can keep well keep in touch I have a big furry brown fleece on…[Read more]

HI Wendy

saw on your face book no PP really good news you can relax a while yet
Regards Jo

good luck Pat

I hope all goes well glad you are ok on the velcade I have just started second cycle not been too bad except it knocks out my red blood cells so i have had a couple of transfusions keep well and strong 😛
Love Jo xx

Hi Peter

this is very interesting to me as I havnt had an SCT
Regards Jo xx

Great news Dia

lets hope this is the one everything crossed keep well and stay strong
BIG BIG (((HUG)))
lOVE jO XX;-)

Hello Vicki

I am sorry i cannot be me help but my thoughts are with you never give up stay strong
Regards Jo x