[sallywParticipant]

Hi there, my partner was diagnosed with smouldering MM in September this year, he is just 44, I know where you wife is coming from, but let me reassure her, once she gets her head round it, it does get better, I try and learn what I can about this dreadful illness and having this knowledge has helped me.
This site has also been a major help, the people here are wonderful, positive and a mine of information.
Good Luck

[sallywParticipant]

Its our first Christmas since my partner was diagnosed with the smouldering kind of hell.

I totally agree with you that we should make the most of the healthy time we have and be thankful for what we have.

I hope you have a fantastic time this Christmas and for many more to come

Long may you Smoulder.

Happy Christmas to all

[sallywParticipant]

They told us a week to wait for results, but had a letter through from the GP within two days, that was a bit scary. But they were on the ball and got an appointment with haematologist the following week, it was a bit of a whirl wind, but better that way I think, as the not knowing is frightening. Knowing isn't much better but at least you have some answers then, and can make plans and decisions.

[sallywParticipant]

Hello Darren

My partner was diagnosed just three months ago, and the build up to that diagnosis was not good, the fear, sleepless nights, mood changes, uncertainty of it all, and that was just me! I only have a snap shot of what went through my other half's mind.

Let me reassure you however, if your test results are not good, the back up is there for you. Our local hospital has been fantastic, they are there to answer any questions you may have no matter what time of day they may be, we drop the myeloma nurse a email and she answers openly and in words we understand. even the silly questions. And from what I read on this site, other hospitals are all equally as good

I know this isn't a good time for you, and desperately hope your tests are all clear, and you don't have to climb onto this horrible roller coaster, but keep in mind there is always someone for you to turn to.

This website has been my mine of information and it will be for you.
All the best to you
Sally W

[sallywParticipant]

Hello Marie
This to is my first post on here, my partner was diagnosed a month ago with the smouldering kind. He is only 43. He went to the GP with back ache and numbness in his leg. Our GP was on the ball and did everything he could, he has been great.
What can I say, other than the bombshell is still exploding for us. The turmoil we feel is unspeakable. Our future feels so uncertain, we are trying to carry on as normal, but it is always in my mind, and most definitely in his. We are staying positive though (or trying to)
I just want to say that I know how you are feeling, and know that after reading other posts on this site, we have the great support of those who have been there before us.
This site has been a great comfort to me, there is such a good community here, and they are a mine of information and experience.
I hope for us both that long may we smoulder, but know we will cross that bridge at some time, but not today, so make the most of that.
All the best to you both.
Sally W

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