Hello Terry, i am new to this as a carer for my Mum recently diagnosed and still poorly in hospital, i certainly agree this myeloma is such a yo yo illness with no certainty, its hard living with an illness when you cannot know the future, all that i can say is i worked for 34 years as a mental health nurse taking slightly early retirement, my…[Read more]

Hope that you feel better really soon and take care of yourself, where do those bugs come from!! the sneaky things, and so many still about but the summer is coming and the bugs will reduce hopefully, best wishes San.

Hi Mavis, thank you for replying, dear Mum has had her pain relievers[opiates] reduced and she is coming around, more alert and stronger in hospital the side effects had really affected her badly, sadly she has quite a bit of bone pain in shoulder and hip and has had one course of chemo but on hold until she is stronger, no arthritis but my…[Read more]

Hello Ella, i am new to this with my Mum but i would have thought that you need to mention this to your consultant and then they might bring your appt forward for you hopefully all will be well, take care San

Hi Gill,a lovely photo indeed, a treasured moment, take care San x

Good news Andy, you are doing so well, have a great weekend, San.

Thank you Richard, sounds as though its the more sensible way around in Germany and then there might be less bone damage which is such a painful part of the condition, well wish that it could be different for all myeloma sufferers, every person has their own story, take care and hope that your chemo is going well, San.

Thank you for the info dickB, please could you send me the link as i have german friends who could translate, hope that all is well with you today, my Mum is struggling but all is not lost and we are willing her to improve sadly she has myeloma in her neck area too which was'nt picked up intially and she is now having some seizures and we are not…[Read more]

Ahh sounds as though you will be well cared for, i do wish you and your family well,this is such a helpful site and people are so kind, you mentioned diesel, would you know if traffic pollution and myeloma are linked ie living next to busy roads? just a thought there might be some research out there somewhere San.

Hi Rebecca, my Mum has been told that she has the more aggressive form of myeloma and she is 76 now, just finished her first chemo cycle, due to see the Consultant next week re the next cycle i guess, sadly she is not eating hardly at all just drinking a little and now back on a drip in hospital, it all seems up in the air at the moment, hope that…[Read more]

Hi Peter, yes Mum is 76 now she lives in Devon, currently in a community hospital to build her up but intially diagnosed when in Torbay hospital on the oncology ward 3 weeks ago,sadly Mum has quite a lot of bone damage to spine and shoulder and it has been such a shock to the family and so sad to see her suffering, she is being so courageous…[Read more]

Thank you Peter, it helps to share, hope that all is well with you too, San

Hello, i too have a dear Mum with MM diagnosed 3 weeks ago, she is still in hospital and pain control is the challenge at the moment, as a family we are all shocked to see her going through this, she is 76 and has probably had it since last september as the shoulder pain started then but again the Gp thought that it was muscular, and when she had…[Read more]