https://forum.myeloma.org.uk/members/sandie58/activity/ Activity feed for SandieHuskinson-Rolfe. Wed, 22 Apr 2026 21:48:58 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 328b1c0264bd9354ab08def4f21f99cb http://www.myeloma.org.uk/forums/topic/my-beautiful-mum-has-been-gone-a-year/ Mon, 21 Dec 2015 19:53:20 +0000 It’s a long time since I have posted on this forum. Sadly I lost my beautiful mum on the 17 December 2014. Poor mum had so many things wrong with her but to look at her you would never know. I still don’t understand what went wrong and am finding this time of year so difficult to cope with. My mum went into hospital for a couple of weeks before…[Read more]

]]> 7de79221151d5ae0d3d72f4a03f4607f http://www.myeloma.org.uk/forums/topic/auntie-has-multiple-myeloma-just-found-out/#post-118684 Wed, 08 Oct 2014 22:00:11 +0100 Hello, sorry to hear about your Aunty. My mum is 88 and had been seeing the haemo team for several years before diagnosed with MM early last year. Luckily my mum hasn’t had any breaks although she did have three lesions in femur, spine and collarbone. There is no reason to fear going on chemo. My mum was just given chemo tablets which she took on…[Read more]

]]> 20f65139c263c75073c454af49d555ce http://www.myeloma.org.uk/forums/topic/mum-considering-refusing-myeloma-treatment-what-can-i-tell-her/#post-118542 Thu, 02 Oct 2014 17:08:22 +0100 Hi Nick
My mum is 88 nearly 89 now. She has been seen by the Haemo team for several years as it was picked up early that she had abnormal PP levels. Then at the beginning of last year they decided that the MM was now active and time to start some treatment. Because of her age she was just put on Cyclophosphomide (chemo tabs). These didn’t reduce…[Read more]

]]> 3feb6a42e4e867898afba6063930bf65 https://forum.myeloma.org.uk/activity/p/28359/ Thu, 02 Oct 2014 16:46:20 +0100 Hi everyone. Haven’t been on this site for quite some time. I don’t know where this year has gone!. I had thought it would be a good year for mum as her Para Protein levels had dropped to 7 last year and she came off all treatment, however as mum has so many other health issues, osteo arthritis, breast cancer, heart failure, renal failure stage 4,…[Read more]

]]> 0 1af10d66ce9ac3692a0847bd892183c1 http://www.myeloma.org.uk/forums/topic/mums-reaction-to-zometa-infusion-and-thalidomide-with-injection-of-warfarin#post-95128 Tue, 30 Apr 2013 15:31:34 +0100 Hi Jan
I have just read your profile. Sounds awful what happened to you when your three vertebrae collapsed overnight. How frightening to know this can happen when sleeping. I can somewhat sympathise as I had a wedge fracture occur after Christmas. I was doing a lot of coughing although I think I had the weakness there for several years, as every…[Read more]

]]> b4eb118464fbb1280145d276e2773be5 http://www.myeloma.org.uk/forums/topic/mums-reaction-to-zometa-infusion-and-thalidomide-with-injection-of-warfarin#post-95124 Tue, 30 Apr 2013 15:10:58 +0100 Hi Vicki and Colin. Thanks for your kind wishes. Hoping that next time it won't be such a bad experience for my mum. We will be prepared and I will stay over this time. I couldn't last time as I was fighting a cold virus and the last thing mum needs is a cold. Thankfully she hasn't had one for over four years!! I hope Colin is doing well.
Love…

]]> 2716e17a5c6fecf19eb31f8d73cac5b4 http://www.myeloma.org.uk/forums/topic/mums-reaction-to-zometa-infusion-and-thalidomide-with-injection-of-warfarin#post-95125 Tue, 30 Apr 2013 15:03:09 +0100 Thanks Jo.
From what I have been told the Zometa should get better as time goes on. I'm hoping the next dose won't make mum so ill, and I think if she is still anaemic they will also give her some blood next time. Hope you are doing well.
Love Sandie x

]]> 7746d67ac874feb9ecfd6b23f18777dc http://www.myeloma.org.uk/forums/topic/mums-reaction-to-zometa-infusion-and-thalidomide-with-injection-of-warfarin#post-95127 Tue, 30 Apr 2013 14:59:12 +0100 Thanks Jan.
It's useful feedback to give my mum. As long as she knows that the side effects she is experiencing are normal she will be able to cope. She only really had one weepy day last week whilst feeling poorly and then she bucked up after three/four days. The days pass so quickly and seem to be full of what and when to take her tablets (she…[Read more]

]]> 81a43beba996e24aaf75803876e41ae1 http://www.myeloma.org.uk/forums/topic/2-weeks-in-hospital/page/2/#post-94821 Fri, 26 Apr 2013 17:20:22 +0100 Hi Jo
So glad you have recovered from your bout of pneumonia. God bless Penicillin. What would we do without it. When mum got her sepsis she was resistant to two types of ant. but IV Amoxicillin did the trick.
Hope your treatment continues to work magic. Great that your PP's are 4!
Love Sandiex

]]> e6313266e2abeef3f488c066eab42187 http://www.myeloma.org.uk/forums/topic/mums-reaction-to-zometa-infusion-and-thalidomide-with-injection-of-warfarin Fri, 26 Apr 2013 17:10:01 +0100 Hello everyone. Wondered if anyone could let me know what effects they had from Zometa infusion. Mum had her first one on the 15 April, along with her Cyclo, DEX (1st time used), plus meds for breast cancer. She was ok the next day and for three quarters of the third day and then started to feel ill with a vengence. Lots of pain in her bones and…[Read more]

]]> 56e1f1c12042eac12f5a07cb369806e9 http://www.myeloma.org.uk/forums/topic/being-thankful#post-95112 Fri, 26 Apr 2013 16:41:06 +0100 Hi Mavis
So glad to hear you are in remission now. You deserve a good period of time, and I hope you get to go on your holiday.
Love Sandiex

]]> 80596777d8b58183e98fa6b5514b9a7d http://www.myeloma.org.uk/forums/topic/zometa-flu/page/3/#post-105064 Thu, 18 Apr 2013 15:43:02 +0100 Hi Dai
Sorry to hear about Zometa flu and hope you will soon feel better. My mum had her first infusion on Monday, along with her normal Cyclo, DEX, and a breast cancer medication. She felt great on Tuesday (doc said she would!) but started to feel unwell yesterday and had really bad pains in her back going through to her chest. Trouble is she…[Read more]

]]> 84f763975788fc9f6ec66c0711e8bb6e http://www.myeloma.org.uk/forums/topic/anti-biotics/page/2/#post-94852 Thu, 18 Apr 2013 14:58:36 +0100 Hi Tom
Sorry to hear you've been poorly, but glad you're on the mend now. Tried to get my other half to get a onesie, but he refuses, mind you he doesn't wear jammies either;-). Let's hope we get some warm sun soon as I'm sure all this cold weather isn't helping everyone on the board complaining about chest infections. Since my mums sepsis and…[Read more]

]]> f6dd6d6a3d925426dc6f157f775fc302 http://www.myeloma.org.uk/forums/topic/revlimid-question/page/2/#post-102015 Tue, 09 Apr 2013 19:38:16 +0100 Hi Jill
Sorry to hear that your mum has had to have another transfusion, and I hope she is feeling better now, and wish her well with this next round of treatment. Like your mum, my mum isn't getting out very much at the moment and whilst too may hospital appointments make her fed up, I don't think she really minds as everyone is so nice. My…[Read more]

]]> 42ada1c547d669a52743e5fc3d3efdd2 http://www.myeloma.org.uk/forums/topic/mumss-mm-and-now-has-breast-cancer#post-94701 Tue, 09 Apr 2013 19:26:18 +0100 Hi Jane
Just spoken with mum today and she's feeling less tired and not so sicky, so that's good news. 🙂 It's been three weeks since she had her breast biopsy and the lump area is still painful which is a bit worrying. Think I'll speak with her breast care nurse tomorrow for advice. She starts taking her breast meds tomorrow, so on top of chemo…[Read more]

]]> 89e2b4fc1676138122fbcc54c238dc47 http://www.myeloma.org.uk/forums/topic/revlimid-question#post-102013 Tue, 09 Apr 2013 16:03:17 +0100 Hi Jill
Haven't spoken for a while, but I am glad to hear your mum is doing so well on her treatment. I hope she continues to get better and better.
Take care.
love Sandie x:-)

]]> 1613ed62a24c6fe04ed2d6b33305c654 http://www.myeloma.org.uk/forums/topic/mumss-mm-and-now-has-breast-cancer#post-94699 Tue, 09 Apr 2013 15:57:43 +0100 Hi Jane
Thanks for your best wishes. It's like 'how much more can God throw at you'. In saying all that mum is handling her illness/ess very well. Had a bad week last week as she felt sicky and tired. Trouble is as well as the cancer she is 87, and on lots of other meds which all add to her tiredness. Still, she hasn't had any more infections…[Read more]

]]> 35d89873daaa8ab0870393ec3915bc74 http://www.myeloma.org.uk/forums/topic/mumss-mm-and-now-has-breast-cancer#post-94697 Tue, 09 Apr 2013 15:42:51 +0100 Hi Tom. Sorry not to have got back to you earlier. Mum is doing fine on her chemo at the moment, although last week she had a 'sicky, tired week'.:-S Hoping that this week she will feel better. Took her third course of Cyclo. yesterday and we go back for results on the 15th, and she will have her first infusion of Zometa. With regards to the…[Read more]

]]> e12296fa9f740a620e89955d38cdd579 http://www.myeloma.org.uk/forums/topic/mumss-mm-and-now-has-breast-cancer#post-94695 Tue, 26 Mar 2013 16:27:31 +0000 Hi Jean
Thanks for your best wishes. There are four grades, one being the least invasive so we are thankful for that at least. I had a bad feeling when they got the results back so quickly (which just goes to prove they can. Test done Wednesday afternoon and results back by following Monday afternoon). The news could have been a lot worse though…[Read more]

]]> f3b68463ead4ddfdc826f4ab230281c1 http://www.myeloma.org.uk/forums/topic/mumss-mm-and-now-has-breast-cancer#post-94693 Tue, 26 Mar 2013 13:03:43 +0000 Thanks Mavis. I think there must be someone up there who is giving us strength as we are not stressing out after the news. Just taking things day by day and hoping that everything will just be contained and hopefully the lump will get smaller with treatment. It is quite large at 28mm and once mum starts on Tamoxifen (or alternative), we've been…[Read more]

]]> e9d2bf4d379d873bdd3a2e56383b6d26 http://www.myeloma.org.uk/forums/topic/mumss-mm-and-now-has-breast-cancer Tue, 26 Mar 2013 11:56:02 +0000 Can't believe what has happened now. Mum has just re-started her Cyclo. regime having had to stop after developing sepsis after taking the first two courses. She has just taken her second dose of 10 tabs and we will be a bit on edge when it comes to next week as that is when her white blood cell count went down before. Still, she is now on…[Read more]

]]> fc9e583a4d3de5bd4a63e681000f23cd http://www.myeloma.org.uk/forums/topic/full-remission/page/2/#post-102152 Sat, 23 Mar 2013 17:58:33 +0000 Great news Peter. Have a lovely Easter.
Sandie x

]]> dae9c04e56c4096c428be0f6be2ee2b4 http://www.myeloma.org.uk/forums/topic/secondary-cancer#post-105602 Sat, 23 Mar 2013 17:16:19 +0000 Dear Gill. I am so sorry to hear about Stephen. I didn't notice the date and you are right I hadn't read all the posts. What can I say apart from I am very sorry. I hope you are coping. Take care. Love Sandie x

]]> 51a625ca3c0c556f71dbaa2b52acbcaf http://www.myeloma.org.uk/forums/topic/mum-developed-sepsis-after-just-two-courses-of-chemo#post-94555 Sat, 23 Mar 2013 17:11:17 +0000 Hi Jill, hope your mum is doing well now. How is she with her current treatment and has she seen her Consultant for results yet. I hope her MM levels have come down. I posted in the treatment forum as well so you have probably picked up my news on mum's breast lump. We are meant to be going for results on Monday, although everyone says this is…[Read more]

]]> 0bef3b11f5cfb86405709eb5cc16c1ba http://www.myeloma.org.uk/forums/topic/risk-of-onj-when-on-bisphosphonates#post-102182 Thu, 21 Mar 2013 18:29:05 +0000 Thanks for posting this Peter. I may be put on Bisphosphonates not because of Myeloma (although my PP levels are 7.9 and are creeping up everytime I see the Consultant). I am being tested for Osteoporosis as I have fractured a vertebrae. My Haemo. did check my MRI scan and confirmed it was nothing to do with Myeloma. I am very concerned after…[Read more]

]]> b576a5b10cf926735c35cf6e7072ee62 http://www.myeloma.org.uk/forums/topic/secondary-cancer#post-105600 Thu, 21 Mar 2013 17:37:36 +0000 Hi Gill
Very sorry to hear Stephen may have a secondary cancer. My mum is 87 and has been on chemo for just a month. She had an MRI scan because she has bone lesions and this picked up something in her breast. Hence we went off to the breast clinic and they were just cysts, but the mammo showed a lump in her other breast which they were concerned…[Read more]

]]> d756c704149b4e97560b718523c1a205 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/3/#post-101662 Thu, 21 Mar 2013 16:27:22 +0000 Hi Dai & Jill.
I think the reason why mum's Consultant said drink 1 1/2 litres, is because she has two heart murmurs and poor circulation, hence the swollen legs and ankles. I think he felt that to drink more would put extra strain on her heart. I agree with you, I think the 'sicky' feeling is down to the chemo and not Clasteon, and I think mum…[Read more]

]]> 0e9be630113e90981644f8e9ed1e2b54 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/3/#post-101657 Fri, 15 Mar 2013 17:22:47 +0000 Hi Jill. Been meaning to reply today but had the BT engineer in for the afternoon updating my broadband. Thanks for letting me know about Dex. Mum was worried about weight gain as she is already quite 'round' to put it nicely. I would rather her be plump than thin though as she looks healthy and pretty, and at least if she is ill has some…[Read more]

]]> ca461c4a956ac544d259ce4896c21779 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/3/#post-101655 Fri, 15 Mar 2013 11:29:20 +0000 Hi Tom.
Mum saw Haemo. Consultant yesterday and she is continuing with her Amoxicillan until Monday and then he is putting her on maintenance Penicillin of 250mg twice day for the duration. Makes sense as hopefully this will prevent further infections. She had only managed two weeks of chemo and her blood test showed that her PP levels had gone…[Read more]

]]> 45e9a9181c4f411ed0edfd1812e993af http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/2/#post-101653 Wed, 13 Mar 2013 17:36:29 +0000 Hi Tom. Well had results back and thankfully not connected with Myeloma. I would have been a bit shocked if it had been as my PP levels are only 7.9. Because Mum has MM, the Consultant was just being careful. However, I'm now being tested for Osteoporosis as one of my vertebrae had fractured which is not good news! This all happened after a bad…[Read more]

]]> 1f36a6817df977e2b0332466965cbc94 http://www.myeloma.org.uk/forums/topic/mum-developed-sepsis-after-just-two-courses-of-chemo#post-94553 Wed, 13 Mar 2013 17:11:40 +0000 Hello Jill. Have had a bit of a time of it. The District Nurses were lovely and came out three times a day to do the intravenous antibiotics. Mum was given 3g a day so double the usual strength of oral. She had this for a week and on Monday we went back to the hospital for another blood test. Spent four hours waiting around and then saw a junior…[Read more]

]]> 10b1bb0b1d86d5eb837e1c0bec1333c5 http://www.myeloma.org.uk/forums/topic/mum-developed-sepsis-after-just-two-courses-of-chemo#post-94551 Tue, 05 Mar 2013 17:55:27 +0000 Thanks for your good wishes Tom. Hopefully when end next week comes things will be a bit more settled again and mum can continue treatment.
Love Sandiex

]]> a5fc0de072a6cf7160bb2de41e25a028 http://www.myeloma.org.uk/forums/topic/mum-developed-sepsis-after-just-two-courses-of-chemo Tue, 05 Mar 2013 16:59:11 +0000 Hello everyone. Have had a very stressful few days. Mum was doing fine up to last Wednesday when her doctor asked to see her for a chat. He wanted to make sure we had all the information to do with Myeloma, and I told him we knew exactly what was going on. Then he read the end of the Consultant's letter that said the MRI had picked up some lesions…[Read more]

]]> 05182e9782250cb8ce429ca4404ea86d http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/2/#post-101650 Tue, 05 Mar 2013 16:51:10 +0000 Hi Jill. Have had a very stressful few days. Mum was doing fine up to last Wednesday when her doctor asked to see her for a chat. He wanted to make sure we had all the information to do with Myeloma, and I told him we knew exactly what was going on. Then he read the end of the Consultant's letter that said the MRI had picked up some lesions in the…[Read more]

]]> c5f18b8ca297f8b1dce8bfbe6e1dcaed http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/2/#post-101648 Tue, 26 Feb 2013 16:26:41 +0000 Hi Jill. Just spoken with mum and she is feeling better today. She takes 10 of the Cyclo once a day every week, so same as your mum 500mg total.Last Thursday was her second dose, so couple of free days before she takes the next lot. The Consultant gave mum Domperidone rather than Metoclopramide, but I think they both work by emptying out the…[Read more]

]]> 72e284c7825b0a55af14c3f012b0a62a http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/2/#post-101646 Mon, 25 Feb 2013 17:57:25 +0000 Hi Mavis
Have you had any problems with using Zometa? I've just read about someone getting osteocronosis in his jaw. Can't understand why anyone would get this when the meds are meant to strengthen the bones! I nearly always manage to go with mum on her appointments, just keeping away if I am ill, but other family are on hand to take her. It must…[Read more]

]]> 14ab78ca29cf419d01bc80fc1c0ded1c http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/2/#post-101651 Mon, 25 Feb 2013 17:38:31 +0000 Hello Tom. I have had my MRI scan and am awaiting results. Mum has taken her second lot of chemo tabs and has felt a bit sicky this time around. Still not sure if it is chemo or the Clasteon tabs. I've suggested she take Domperidone three times today just to see if they work for her. Previously she had only been taking one or two as she has to…[Read more]

]]> 0a61b9390abe6bf8eec93179e229e37b http://www.myeloma.org.uk/forums/topic/lumbar-kyphoplasty#post-92168 Mon, 25 Feb 2013 17:22:49 +0000 Dear Jaqui. I am so sorry to hear about Glenn. I was just reading through his posts from last year which sounded as if he was on the right track. No comments will make you feel any better, but know that there are many others out hear who are either affected by MM or close to family members who are going through the same route. We can all feel for…[Read more]

]]> 78610b2cf40a0530ad36ee1d2dcc6fce http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/2/#post-101643 Tue, 19 Feb 2013 17:07:50 +0000 Hi. Thanks for letting me know about the infusions. We did think mum was going on Bonefos but when we collected the meds. it was Clasteon tabs. The nurse did mention the acupressure sickness bands and I must admit I had forgotten about them (bad memory, sign or getting old I guess). We're going to the shops tomorrow so will buy them and give them…[Read more]

]]> 1fdb497b853e833cf0a71bc00efe8478 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/2/#post-101644 Tue, 19 Feb 2013 17:00:14 +0000 Hi Jill. Thanks for letting me know about Zometa. Once every four weeks sounds much better. Four times a week would rule your life! We'll face that if they suggest it, but as mums lesions are small at present I think they're opting for an easier medication for mum to deal with. Like your mum, mine has perms and has always complained that they…[Read more]

]]> d52fea095e1dc13b4b5d5eadec52a928 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos#post-101634 Tue, 19 Feb 2013 15:07:03 +0000 Hi Jill
Thanks for all the info. I am sorry that your mum's PP levels went up again
after all her treatment. I guess we hope that after the meds course at least the PP levels will stay down for a good period so our mums can continued life as normal without thinking about it. I guess all Consultants have a slightly different way of handling…[Read more]

]]> 613b2e9701eb30754e0663f510fcc330 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos/page/2/#post-101640 Tue, 19 Feb 2013 14:38:55 +0000 Thanks Mavis. That is useful info. Mum's Consultant did say he would give her Bonefos at our last meeting, but when we collected the meds. it was Clasteon in tablet form twice a day. The Consultant had said she would have one tablet dissolvable, and if it made her sicky she could split this into twice a day. I don't know if this would have been…[Read more]

]]> 7c9d5892d3719112669a7d3b5a40c576 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos#post-101637 Mon, 18 Feb 2013 17:24:23 +0000 Hello again Mavis. Just spoken to mum to let her know about the Bisphosphonates working for you. She wondered if you were on this whilst you were on chemo meds, and if so what strength? Mum is on Clasteon 800mg, twice a day which she must take one hour before or after food. She seems to think it is this making her feel a bit sicky rather than the…[Read more]

]]> 45e8f9a09bfc23b2f77ab6fa4d6cb3e9 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos#post-101627 Mon, 18 Feb 2013 16:48:28 +0000 Hi Tom. I have numerous pieces of exercise equipment. Can't use the exercise bike as I have arthritis in my knee and am told I'm heading towards a replacement. Haven't been able to use the treadmill as I had foot surgery last year and I'm still in pain when walking. Haven't got a dog would a cat do?? Ha ha, the only problem is long walking is out…[Read more]

]]> 033762e0339e8005d990640312910d53 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos#post-101636 Mon, 18 Feb 2013 16:45:17 +0000 Hello Mavis
Thank you for letting me know about your lesions healing. Must have been a real shock to find that you had so many. When you started treatment last year had you been seen in the clinic for some time before that, or were you only picked up as having Myeloma at a later stage? They have been seeing mum for five years with her PP levels…[Read more]

]]> f3964ceaa9fc7a50a5fa0b4172495073 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos#post-101632 Mon, 18 Feb 2013 16:10:52 +0000 Hello Sharon. So sorry you hear that you are in the same situation as me. I know my mum has reached 87 so people would say she has had her life, however she looks and acts ten years younger and it doesn't matter how old your mum is you never want to lose her. How awful and sad for you to lose your dad, especially around the Christmas period. It's…[Read more]

]]> 54974627a330517944dce20081de9ee0 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos#post-101630 Sat, 16 Feb 2013 19:46:47 +0000 Hi Jill. I'm glad your mum is doing well with her treatment and hope she keeps her spirits up. Three lots of treatment in four years sounds a lot! My mum will be taking Cyclophoshamide only plus a Bisphonate to strengthen her bones as she has three lesions. Her Consultant wanted to take a liberal approach as mum feels well and he didn't want to…[Read more]

]]> 78da2a2211a626b07c418028c426a7f7 http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos#post-101625 Sat, 09 Feb 2013 20:18:23 +0000 Thanks Tom. You are probably right about the pain being arthritis. At least once I know I will start to think about what exercise I should do to try and make things better. May be a trip to the osteopath!!, Oh what fun getting old isn't it. You are also right about the glass half full. I need to be more optimistic…… Mum is great as she…[Read more]

]]> a9429b8261b7a5e925ed9407925f0bea http://www.myeloma.org.uk/forums/topic/mums-beginning-treatment-on-cyclophoshamide-and-bonefos Fri, 08 Feb 2013 14:17:03 +0000 Hi everyone
Haven't been on site for a while. Now mum's Myeloma has been confirmed and after an MRI showing three lesions and her Para Protein levels continuing to rise, the Consultant has decided to start treatment. Mum is 87, so a good age I know, but it doesn't matter how old mum is the thought of losing her is devastating for me. The thing is…[Read more]

]]> 4ab086ec09bd43cc529fcaadc7b47bb0 http://www.myeloma.org.uk/forums/topic/can-low-protein-levels-turn-to-myeloma#post-90180 Mon, 16 May 2011 12:30:59 +0100 Hi David
I think it was unfortunate that the day I went they had been having problems with their computer system and he couldn't access the full body x-rays. The dental x-ray was done on another day and he did have the report for that one.
I guess I'll know soon enough. I do have osteo arthritis in various places on my body and my pains may just…[Read more]

]]>