Myeloma Forum | sandra | Activity https://forum.myeloma.org.uk/members/sandra/activity/ Activity feed for sandra. Mon, 06 Apr 2026 05:51:47 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 4c98bca240d12886e049a4daf16140d1 sandra replied to the topic TABLETOP SALE & COFFEE MORNING FOR MMUK in the forum General http://www.myeloma.org.uk/forums/topic/tabletop-sale-coffee-morning-for-mmuk#post-91513 Mon, 12 Dec 2011 17:14:33 +0000 Hi Sarah I wish I had logged on earlier and read your post I would have come along as I am in Westham !! I had a coffee morning at my house on the 19th November raising £430 . I have had mm for 4 years , am 46 and have 2 teenage kids , I am still working and carrying on pretty normally after a stem cell transplant in 08 and one pending for 2012…[Read more]

]]> 4984ca2df8e388944cfddab1243c3db3 sandra replied to the topic Just a query on Allo transplants in the forum General http://www.myeloma.org.uk/forums/topic/just-a-query-on-allo-transplants#post-90031 Tue, 29 Mar 2011 16:13:23 +0100 As usual gang a very mixed bag with different areas , circumstances and results . We certainly didnt get ourselves a predictable disease did we ! Thanks everyone its interesting to see the different journeys . Good luck and best wishes
Sandra xx

]]> dfc7aa19d23a31d51b1c29041bcc31bd sandra replied to the topic Just a query on Allo transplants in the forum General http://www.myeloma.org.uk/forums/topic/just-a-query-on-allo-transplants#post-90027 Sat, 26 Mar 2011 08:43:48 +0000 Thanks gang for all your replies , I know that 2 or 3 people on the under 50 site have had them and others have been spoken to about them but I was amazed when my Doc almost thought I was mistaken when I said this !

When I was diagnosed in 2008 he automatically tested my sister who was not a match and that was the last time he mentioned it as…[Read more]

]]> b7cea37dc33e59bcdf7313cb30dfc912 sandra replied to the topic Hello everyone, I'm new! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-everyone-im-new#post-84385 Sat, 19 Mar 2011 18:44:15 +0000 Hi Tracey just to add a welcome to the gang , I am 3 years post diagnosis , was 43 when diagnosed and had a very successful CTD and stem cell transplant process 2008 . Loads of good advice and guidance on here
Hope you are feeling ok on CTD Best wishes
Sandra xx

]]> 064d9f490e8aef8e2bc5d4fe99cd8594 sandra started the topic Just a query on Allo transplants. in the forum General http://www.myeloma.org.uk/forums/topic/just-a-query-on-allo-transplants Wed, 16 Mar 2011 13:59:10 +0000 Hi all ,
I just wanted to get an idea on how many of you have experienced allo ( donor )transplants during your time with mm .
Have you been offered one by your consultant , what age are you , where are you along the mm journey and which hospital are you with .
My interest is just general as I was told recently that they are so rarely carried…[Read more]

]]> bb9f6ef33823b64613ff330f0f0e9b29 sandra replied to the topic Feeling Rough in the forum Treatment http://www.myeloma.org.uk/forums/topic/feeling-rough#post-97112 Tue, 15 Mar 2011 09:59:12 +0000 Thankyou guys ,
I just seem to have hit a wall at the moment with the whole bloody lot . Like everyone else life is so busy and I just wish I had the energy to deal with it all . I much preferred CTD which didnt have me tied to the hosp 2 days a week and I didnt look like a pin cushion ! But I am determined to get on with this and enjoy another…[Read more]

]]> 874defd38c15e0bd7438be43c3d00269 sandra replied to the topic Feeling Rough in the forum Treatment http://www.myeloma.org.uk/forums/topic/feeling-rough#post-97109 Mon, 14 Mar 2011 16:32:43 +0000 Hi all ,

Cycle 4 of Vel/Dex halfway under my belt and feeling pretty p****d off with it so far . Very tired and the taste is disgusting !! After a rapid drop from 20 to 11 the counts are static but my very enthusiastic Doc in Eastbourne still assures me he is not worried by this and its not just the pp,s he is interested in but the whole…[Read more]

]]> 5899fa832c8ae6606a5d52b391feffa4 sandra replied to the topic Need a laugh? in the forum Off topic http://www.myeloma.org.uk/forums/topic/need-a-laugh#post-108902 Tue, 08 Mar 2011 16:29:29 +0000 Thankyou Min I really lost it at the rectal examination of the thyroid !! priceless :)xx
Sandra

]]> 1c69baf0353e02512386844bbeae96c3 sandra replied to the topic Who the heck are you. in the forum Off topic http://www.myeloma.org.uk/forums/topic/who-the-heck-are-you#post-108845 Thu, 03 Mar 2011 17:28:30 +0000 Hi all,
My name is Sandra I am 46 and I was diagnosed in Jan 08 after reporting in to the blood doner people and being refused and sent to my doc . Like the rest of you the rest is history I was given 3 months of iron tablets and then obviously alarm bells rang with my doc ( also your wonderful one at Eastbourne Sarah !)who ordered a bmb and…[Read more]

]]> 0c18d5988a44b7cb5b6442ede9689e18 sandra replied to the topic Velcade in the forum Side-effects http://www.myeloma.org.uk/forums/topic/velcade1298948366#post-103787 Thu, 03 Mar 2011 17:15:55 +0000 Hiya ,
I dont post on here much but do a lot of reading , I am on my 3rd cycle of Velcade at the moment and luckily have had no p/n but for me the worst side affect is definately the moon face and very piggy eyes . I am sure that people double take me in supermarkets ! When I was on thal/dex first time round 3 years ago I suffered the same thing…[Read more]

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