Dear Emma
It is an anxious time, and yes you do have some of these procedures done, not knowing what the outcome will be. However the risks of not doing anything can sometimes be worse than the treatment. The important thing is to be sure that the choice your mum makes is one that she is comfortable with. I really hope tomorrow goes ok, keep in…[Read more]

Hello Tom
If you look in the patient services section of the site , in the bottom left corner is a section called clinical trial tracker which will tell you what is available now in the UK in the way of current trials in your geographical area, and Amelie has recently reopened a long discussion in the general section about trials, under the…[Read more]

Dear Emma
This really is tough for you all and I hope your mum is able to make the right decision for her, whenever and what ever they decide. I' d get prepared for Monday, pen and paper and every question you can think of written down in advance. You need to know what risks there are involved in each option, no surgery yet might mean higher…[Read more]

Dear Jean
My word that's a bolt from the blue, do they plan to get him in for transplant before Christmas too, or just do the collection? Better book into someone else's house for Christmas lunch I think, it's going to be very busy. Keep us posted on the progress
Love Helen

Better pack the snow shoes Ted, and the thermals it's nippy up here.
Love Helen

Hi Ted, happy to help, better get to grips with your high fluid intake now, I'm still finding it a bit tedious to drink as much as they advise.
Love Helen

Many happy returns to all the stem cells! Tom , that's a heck of a lot of cards;-)
Love Helen

Hi Ali
What a good photo, your mum and dad look really happy together.:-)
Love Helen

Hi Ted
The abnormal paraprotein in myeloma is usually found as a whole molecule – like a Y shape, for example igA igG igM. But some people only have small whole pp levels but produce large numbers of small sections of the pp, these are called light chains or Bence Jones proteins and are usually found in the urine. With the new free lite tests you…[Read more]

Dear Dai
It is good to hear you are feeling a bit better and back to getting out again, despite the weather. Whilst not flooded, we have just switched our ground floor electrics back on again having had a blackout last Tuesday, some wire under the floor was no doubt sitting in a puddle. I hope the bloods are no worse on Monday and you get to…[Read more]

Hi Sarah
I've had infection after infection since my SCT , I've been on 3 lots of A/Bs since august and the idea of giving me immunoglobulin was raised about 6 weeks ago. But a decision not to give me immunoglobulin was made based on the fact that the whooping cough testing showed i was producing lots of good antibodies against the infection, my…[Read more]

Well done Eve, so glad you got there, how are the family? can't wait to see some photos. I think I'd spend a day or 2 looking at the sea, it's so beautiful, we stayed in a beach house for a few days when we went, and it was just fabulous to get up and see that view every morning. It's so encouraging to know you've finally got there.
Love…

Hi Vikki
Good results indeed, my neutrophils have hovered round 1.5 since transplant, and WCC around 3. So he's doing ok. It's just slow and steady from here on in. It will almost be boring as recovery is so slow. But we like boring, it means nothing awful is happening!:-)
Love Helen

Hi Ali
I've had tummy trouble since the beginning, we were never sure what was the cause but now I'm just on the Revlimid I know how it affects me now and there is a pattern. But it is worth it if it keeps the mm at bay.
As for the itchy head, I had big problems with the wig, it itched at the sides until I couldn't bear it any more. One day I…[Read more]

Hi Vikki
Well done, a mile stone at last, hope he stays there! Yes it's a bit of a funny thing coming home, I got very down after a few days too, I think it was to do with all the hype before hand, then you sit there …… and sleep….. and think……..then you decide ' I will go and make some tea' and you get back to bed/ sofa and find just…[Read more]

Hi Andy
Good results, my neutrophils are only 1.4 and I'm told I'm showing good levels. see you soon
Love Helen

Hi David
Really glad the anniversary plans all came together and you clearly had such a good time, so exactly who is in that tub with you, none of the girls looks old enough to have been married THAT long;-)
Love Helen

Dear Ali and Babs
I'm just back from weekend away, Peebles this time. Very cold and crisp.
Anyway, I've now had a year on the Revlimid as maintenance and I just thought I'd put in my 2p worth on the time of day for taking it. Because it makes me very tired about an hour after I've taken it, I find it much better to take it at about 7-8 pm ,…[Read more]

Not long to go now. you must be so excited. Have a great holiday Eve, the sleep outs are ok, my nephew has one out there, yes it is a shed but if the weather is good you won't notice:-P Tell slim you can put in miles of walking on a long haul aircraft, and it helps pass the time too:-) love Helen

Hi Keith
Just a note to add to the others, hoping this treatment goes well for you and keeps the mm at bay for a long time. Hope you aren't too tired after the infusions
Love Helen.