Hi Helen

I am loving my new hair, had it cut and shaped a bit but still got the curls on top. Not dissimilar to yours actually. I went back to work about two months after my transplant, initially able to work from home, then going into the office and increasing my hours although I have decided to keep to reduced hours to achieve a better…[Read more]

Hi Eve
It's going in the right direction now, let's hope he continues, keep those plates coming:-)
Love Helen

I do like to hear good news Wendy, and no going back for 3 months is great, hows the new hair? And did you go back to work?
Love Helen

thanks Jean, didnt know you were on facebook

Some more good news!!

Great news Mavis and Eliz.

I was told by my consultant that my light chains were better than his ie within normal range, so thats another 3 months all clear for me too!

Hi Eve
I know it is hard, it is a measure of your love that you care so much. I've never gone back to my pre transplant weight and lost several kilos last week, I'm very aware of my family subtly offering chocolate and scones etc which I just don't feel like eating. 🙁 As long as he has the fluids and enjoys what he does eat then it will…[Read more]

Hi Alison
I'm just about 11 months post SCT and have had my first hair cut since loosing mine. I found it quite devastating, wore the wig for a few months but never felt secure in it, dreaded a high wind in case it flew off!:-0 I hope all goes well with your mums transplant,soon it will all be done.
Love Helen

Hi Tom
I missed this one too, really great news for both of you. Nice to get double good news, and birthday wishes;-)
Love Helen

Hi Dee
You are having a bad time of it. The chemotherapy usually is a few drugs which work together to help reduce the volume of myeloma cells in the bones. You take them for about 3-4 weeks each cycle. Sometimes they are oral drugs or a mixture of oral and intravenous ones. Depending on what he is on and how well they work, he will have about…[Read more]

Thank you Elizabeth
Love Helen

Hi Elizabeth
That is great news for you, carry on like that.
Love Helen

Dear Jean
I don't know about right hand or left hand here, but you do not seem to be getting the same sort of information that I do.
I'm a low secretor ( oligo secretory) but I had an IgA pp (paraprotein) level of 6 and a Lambda light chain reading of 700, Bmb showed 60% marrow involvement on day of diagnosis. After a month of therapy I had pp…[Read more]

Hi Keith
I've had a few mouth ulcers but not many, I can't use mouthwashes at all because they sting too much, so I just clean my teeth and rinse with cold water, extra strong minty toothpaste is unpleasant. My mouth feels as though I've just burnt it with too hot tea, so I have to be careful not to burn it if you get my meaning. I still find…[Read more]

Well boys as we've 'got down and dirty' and totally personal………;-) . I have noticed that there is a pattern, and here is where the diary comes in handy again to make notes! The first week is normal to diarrhoea, the second normal to bunged up and the third is daily fibre, prunes, figs, movecol, dynamite, calls to the CSN for extra…[Read more]

Dear Angie
It is so sad for you, I hope you were all there with her. My thoughts are with you
Love Helen

Hi Alethea
Welcome? Myeloma is a tough disease isn't it? It really messes with your head, but you do get there. It's all so intense at the beginning with the diagnosis and the treatment bombarded at you when you are still reeling with shock, especially mum as well.
Do get help, it is there and there are many here who will help if they can
Love…

Hi Tina
I'm still not back to work and it is over 10 months since my SCT, I was going back in February but got pneumonia, then last week I got gastroenteritis, now I'm aiming for next week on a phased return, if it doesn't work out I'll have to rethink. Whatever you decide, don't go back too soon, all the people at work soon forget what you've…[Read more]

Hi Dai
Mmmm yes never quite know what to expect until you get there, most unpleasant and unpredictable , almost disabling sometimes
Love Helen

Hi Alethea

sorry to hear what you have been through over the last 6 months, it sounds tough especially wih your Mum being ill as well. I found the physical limitations due to the treatment really hard to deal with but hopefully these will pass as the treatment wears off and after the transplant. I am now in remission 10 mths post transplant…[Read more]

Hi Dai
You are so right, there was only one of her posts where I thought she was in pain and never a direct reference, so selfless and calming, and cheery really, I read the posts on the site for a few months before I felt able to contribute myself, she was one of the reasons I felt comfortable contributing such personal feelings.
Love Helen