Dear Keith
That's a bit of a 'b……' have you managed to get away as planned?
When I was expelled from the blood bank in 2010 it was because I had a pancytopaenia, the mm cells occupied the space in the bone marrow so the normal cells have no room to form.
What is the next step for you now?
Love Helen

Hello Everyone
Back home again, no ill effects except massive jet lag both sides of the journey, so I'm about to plan the next trip, better get the atlas out! Will sort out a photo or 2 when awake.
Was back to clinic this morning, still in complete remission, so started cycle 8 of maintenance Revlimid today.

Have read a few of the posts over…[Read more]

Thanks for your support all, Dai, I managed to trundle round in 68 minutes! It was one hard slog though, much harder than I remember when I did it in 2009 but when I found out my time it was the same as 2009 before all this started so I am really pleased. I thoroughly enjoyed the buzz of doing it, the support of the crowd, and have so far raised…[Read more]

Hi Rosie

Sorry to hear about your relapsing after 4 plus years, I had a stem cell transplant last September and dread each 3 monthly blood test but so far so good but way to go. You dont say how old you are and I dont like to ask but I guess it is relevant to your treatment options! You could ask your consultant at your next appointment what…[Read more]

Hi Dai
Well….. There you go, all these bugs must be catching…….. Even over t'internet,:-) It was probably me! I've just had another chest infection last week too. Finished the dreadful doxycycline on Sunday. I'm just hoping for a clear week before we go away. You just get yourself fit and well by the time I get back. Glad Janet enjoyed the…[Read more]

Hi Wendy
I'm sorry, I must have missed this bit of good news, glad to hear everything is going well, we must only be a few weeks apart, I'm at 8.5 now.
And yes Paul are you all set and ready for your SCT?
Love Helen

Hi Teresa
That's a very nice even colour for a previous brunette, I confess to not knowing what shade my hair was before I lost it as I'd been colouring it quite merrily for the last 20 years, but I found losing it totally devastating. I was quite surprised to see how grey it is as it has grown in but I'm leaving it like this for a while, see…[Read more]

Hello Mavis
You sound much cheerier today. Which is good. Any walking around counts when it's tough going and you are tired after the drugs and the disease effects, so well done. You are right to be just counting off the treatment months, and as long as you can keep as fit as possible and the pps drop you are doing the right thing.
Love Helen

Hello Craig and Etta
Glad to hear Etta is getting on ok, hope the appointments come through quickly and the SCT goes smoothly
Helen

Hello Eve
I'll be thinking about you this week, hope it all goes smoothly.
Love Helen

Hello Gail
Welcome:-/ to the site, I'm sure a carer will come along soon to talk to you. I'm another sufferer and can only comment from my own experience. You don't say if your husband was ill before his diagnosis, but even if he was, 3 months is a very short time to get your head round the impact of developing life changing disease and how it…[Read more]

Hi Andy
What do you mean ' not commenting on hair or style' I think we should see what 'used' to be there, in fact all you chaps could do that! Or do you all fancy roles in eastenders:-)
Love Helen

Hi Teresa
So what colour was it before the sudden grey? I have a friend who did likewise and went from brunette to white at 35, surprising for us all, she too has stayed with it. I'm still undecided, it is temping to do nothing and leave it, but we'll see. I feel I want to go back to work, I wasn't ready to retire when I got ill and still think…[Read more]

Hi Andy
Strange how your pps aren't behaving, there's individuality for you, I was told that a plateau is sometimes what they look for before sct, so hopefully as you are feeling better and the Rev and dex get to work things will improve. Keep in touch.
Love Helen

Hello Mavis
Hope you are a bit better today and not getting breathless again, if you are and your ankles are still swollen it might be an idea to to speak to the 24/7 haematology ward about this as it could get worse, the dexamethasone and other drugs have powerful properties and you might need careful watching in case of cumulative effect.…[Read more]

Thank you very much Wendy, you wouldn't believe the amount stuff and time it takes to make it stick up like that!!
probably why my scalp is still so itchy, but hey got to give it a go, am back to work in 8 weeks and need to look convincing:-)
am now going to try to attach knitwear photo

Hi Mari

its mmunder50club.ning.com

Wendy

Hi Helen
Hope you have a great trip to New Zealand, sounds wonderful

Wendy xx

ps loving the hair!!