Hi Teresa
I'm sorry Peter is misbehaving, I don't think it is just a boy thing, I think it's a bit about having some choice and control over a life which is going headlong in a direction you don't want to go! I'm really fed up with all the poking and prodding, I've had a lot of bother with my guts since the transplant and subsequent addition of…[Read more]

I suppose you have just been getting on with stuff and so it decided today was the day to settle down, still it's good to know the reason behind the last few weeks pain. Hope it stays settled for you. I looked up the dexamethasone side effects in the products characteristics manual too and it says hyperhydrosis is a known side effect, doesn't give…[Read more]

Well!!!!!!!!

I have no words! You just hang on in there and lets hope they can fix the pain now they know what the problem is.
Love Helen

Hi Teresa
Combined reply is fine. I do hope next week gives some workable treatment for Peter, you must be so worried. My appointment was almost routine, bloods, zometa, prescription, 'how are you ? see you next month'. Then a brisk walk the mile and a half home, calling in at my daughter on the way for a quick coffee.

I had to laugh when I…[Read more]

Whoa Dai, you are lucky Janet is so on the ball, Horlick's (ugh) only for you now to help you sleep:-)
Helen

Hi Jean – they are beautiful perhaps their mums just share good taste!
Love Helen

Hi Teresa
No the snow didn't lie and as we are on the edge of the city it was too warm for thick frost so here's hoping. I have tried alliums every year for the last decade with no long term luck except for 2. One is as femma as a spring onion and the other just grows leaves, no idea why, i normally have quite green fingers, but there, sometimes…[Read more]

Hello Mavis
I wondered where you had got to, you have always been there when I've posted so your absence was very strange after all this time.
I'm glad to hear that things are getting sorted so that life back at home will be easier for you, but you will be missing the busy time in church, time for a rest. The tiredness does get a bit easier,…[Read more]

Hi Ian
No……. But only been on it for 4 months as induction chemo and the last 5 months as maintenance. How long have you been on it and what neuropathy do you get?
Love Helen

Oh Dai I didn't realise that you already had arm involvement. Stress fractures need very little 'stress' sometimes to occur. I'll think of you sitting in clinic while I too sit in clinic and will wait to hear how you get on.
Love Helen

Hi Dai
I think you should really whinge about your shoulder when you next go. Mm might be smoke screening and there are lots of really painful shoulder things- like frozen shoulder, impingement or painful arc syndrome, all of which are simple (as in not 'serious') but need lots of pain relief and physio because they can mess up normal life and…[Read more]

Dear Teresa
I'm so sorry to hear that the trial has failed so quickly for Peter, that must be so hard to bear. What is the next plan for him?

I finished all the pots last weekend, planted with alliums and lilies, then we had snow for 3 days! Heaven knows what will grow now:-P
Love Helen

Hi Nicola
That's a fantastic send off for your dad, you must feel so proud that people thought so much about him, I hope that gives you a little bit of strength to cope with the tearful times.
Thinking of you
Love Helen

Hi Tina et al
If you need pain relief, take it. I have looked after people who have taken colossal doses of opiates and functioned very well for years. ( you wouldn't believe the amounts we see in the addicion service:-P ) There is nothing so wearying and depressing as pain. As long as your docs are aware of what you take they generally don't…[Read more]

Hi Kay and all
I'm a few weeks ahead of you on the sct front and also have the curls now, getting them cut next week, will post new photo then I think. Today I can barely move, having woken up with severe back pain, the first I've had for a year as it went when I started the chemo last February, I'm hoping it will settle in a day or so, and I did…[Read more]

Hi Sarah
Good to hear Henry doing well, now lots of food and sleep and mending
Love Helen

Hi Neelie
What an awful experience, your poor dad. I think a letter to the practice asking how this decision was made is in order. I had my blood taken a year before diagnosis because I was anaemic and was told the results were ok and stop worrying about them! Turns out 12 months later when they were repeated, the telltale signs had always been…[Read more]

Hi Andy
Always been a night bird, descended from a long line of owls I think, and never used to need more than 6 hours sleep. Now I need about10! Dex time is weird, I could never switch my brain off, so even when I think I was asleep I felt awake, – dreaming was vivid reruns of the day and little plans for the next.

Hi Susie
A few days pain…[Read more]

HI David

that is great news, another sigh of relief and chance to forget about it all again. I have got my 3 month review coming up next week (7 months post transplant) and I am starting to get anxious as I am sure we all do. Hope you get better soon.

Wendy