No Dai you are not wrong I put my previous post just after yours! So there must be a gremlin somewhere. How are you doing with the revlimid?
Love helen

Hi Mavis and Tina
I am on the myeloma xi trial and had the revlimid instead of thalidomide – they are similar drugs. I'm back on the revlimid as maintenance after transplant and it still makes me tired.
The dex gave me sleepless nights and a few days of sleepiness and low mood after it finished, (you have four days on then a few days off it.)…[Read more]

Hi Andy
Thanks, sorry I didn't spot you there and it was good to meet you too Keith. It was my first info day too and I was surprised at how much I enjoyed it
Love Helen

Hi Chris
Good to hear your stay in hospital was short and treatment progresses, look forward to seeing the wedding photos
Helen

Dear Bridget
Eve is right, what words can we use to share your feelings. You must be reeling with shock and sadness. I so hope something else can be tried to keep the disease down.
Remember always how much you are loved.
Love Helen

What a romantic! I think it sounds absolutely fabulous, i can just imagine the expression on your wife's face.
Love Helen

Hi David
skimmia and photina would be good too, I don't know leucothoe, in fact photina would be very striking, don't know how expensive to plant a whole hedge mind! Viburnum is cheap and you can strike it easily, but it's much less organised as a hedge and can be straggly. We will need to see photos of these gardens when planted.
Love…

Hi David
What about a mixture of viburnum, spirea, hebe and a couple of hydrangea. You have a lot of space there. We can grow all of these shrubs on our heavy clay soil and it will give you a variety of flowering phases all through the year. Or just stick with viburnum, dark green leaves lots of varieties generally with a tiny pink flower, needs…[Read more]

Hi Paul I'm much better today thanks, got to be better by tomorrow, I've got tickets for the theatre and don't want to miss out!
Do you have siblings to collect an allograft from? And I think you are right to just get on with life as much as possible. I felt much the same about the treatment, it was a case of get on with it, toe the line and…[Read more]

Dear Kerry
How are you and Melvin getting on? Sorry to have hi-jacked your post a bit:-)
Helen

Oh Paul that is one big hiccup! Oh how unpredictable this disease is. It is an effort in its self trying to remain optimistic when hiccups! happen. I do hope things are progressing well for you now, do you have a future date on the horizon yet? Or have you turned superstitious and not disclosing it in case it changes again?
I am doing ok, they…[Read more]

Hi Paul
How are you doing? You must be close to sct now as I seem to remember you joining the site while I was in hospital having mine! Love Helen

Disappointing for you Dai, but hope the rev and dex works for you, love Helen

Thanks Eve we might just do that. We go for 3 weeks, to fit between trial visits, I'm really excited about it. This time last year I never thought I'd be able to go any where ever again, so I've already come a long way, in my head, so you have to just hang on in there and hope you and Slim get to go again, just think I shall be able to bore you…[Read more]

Hi Andy
Welcome, as David and Bridget have said, lots of post goes on in the early hours, dex, sleeplessness, worry, whatever….. We do it all. The mm journey is like a roller coaster ride, feels different to each one of us, can be bumpy or smooth…….. Hope you've got the seat belt on………..!
Helen

Hello Eve good news for you at last, Can't help with london, only ever use public transport there. Hope you get away, i managed to fit in a trip to France between stem cell harvest and transplant so use that time well!
Despite having pneumonia now I have booked my ticket to New Zealand today and got insurance for both of us- husband only £50…[Read more]

Hello Keith
See you on Saturday
Helen

Hurrah, hope it's a very long remission
Love Helen

Hi Terry
I didnt have the chemo priming either, just the gcsf injections, then I had a needle in each arm and lay flat on my back for 5 hours the first day and an hour the second day. They got enough cells for 2 scts. I took a book but couldn't read as couldn't bend my arms to turn the pages! I could not get up to go to the loo either, but had…[Read more]

Dear Bridget
This must be such a blow for you, I hope they can sort it for you soon, keep going, you really are a tower of strength you know.
Love Helen