Thanks Eve
I am certainly going to do all the things I can, as I recover from the transplant I am beginning to realise how much my life had shrunk in the last few years as I became more and more tired and unable to do or plan anything really, so hopefully I can make up for some lost time.
Helen

Hi Sarah and Henry
As you can see we are all different, i had a good stem cell collection, loads of cells but got lots of bone pain with it and it took a few weeks to feel fully well after it. I was working until that point though the RCD chemo made me very tired. I've been off sick since and seem to have had a rough ride with the SCT, developed…[Read more]

Hi Sarah
Welcome to this site and sorry you have had to join. I was diagnosed with mm in February this year and am now recovering from SCT.
Do you want info on the stem cell collection or on the high dose chemo and stem cell rescue (SCT)? And which area of the country are you as there are probably local variations.
Helen

Hi Caro
My sister is in whangaparoa near Aukland I always planned to go but never got. I'm just 10 weeks post SCT and beginning to get some energy back. One thing I am planning is my trip to NZ next year i hope.
Helen

Hi Debs
Good to hear you are in VGPR and have been getting out and about, I'm a bit set back this last week, terrible cold and another bout of colitis, so another scan today, probably a virus attacking the weak spot. I'm very frustrated with the slowness of recovery so it is good to hear you are feeling so much better. Are you still in the…[Read more]

Dear Gina
What an awful shock for you, I do hope you get things sorted so that you can get the most from the time you have with your mum, thinking of you.
Helen

Hi Sandy: You sound like me was thinking that being in pain would be preferable to the itch as at least I could take Paracetamol! I received an appointment to see dermatologist this morning for January 16th hoping my skin will have cleared up by then and I can call and cancel it.!!
Will keep you informed how it goes. Best Wishes Cally

Thank you Bridget I appreciate your response.
Regards, Cally

Hi I am a newcomer this is my first posting! The reason I contacted Myeloma U!K was because since my STP in July 2011 I have been suffering with skin and rash problems affecting my back shoulders and sides and then my upper torso up to my shoulders around breast and into arm pits. I have tried antihistamines and numerous creams which help a…[Read more]

Hi Kay
I'm 10 weeks post sct and still walk like an old lady! I just keep popping the paracetamol and walking at least a mile a day too. Improvement is much too slow for my liking, I keep wondering if I'm turning into a softie!
Helen

Hi Jim
I took the trial route, hard decision but glad I did. Took revlimid and had no major problems, worked until stem cell collection, now 10 weeks post sct and been in complete remission since month 3 after starting in feb. I'm just 57.
Helen

Hi Kay,

I am at the same stage as you, about 7 weeks post transplant and like you I got off relatively lightly from some of the side effects of the high dose chemo and was out in two weeks and 1 day. I also get very achy bones expecially after walking and sometimes I can hardly walk up the stairs! Also get very tired especially in the…[Read more]

Hi Jim

sorry that you had to join the group but hopefully you will find the forum very helpful. I know I have. I was diagnosed last December when 49 and was previously fit and healthy and it was a complete shock to me and I am still coming to terms with it.

I see you are going to be treated by Christies so you must live in Manchester like…[Read more]

I wasn't really told to stay away from people, I just tried to be sensible and stayed about 5 feet away from everyone. I went wherever I felt like, which wasn't much, I have picked up a cold this weekend but no idea where from as i've been giving anyone with any overt illness a very wide berth and I'm still very tired very…[Read more]

Hi Sandy
How big and how many spots? I have small round hard spots on arms legs shoulders, pin head size, very itchy. I had my sct 9 weeks ago and my consultant said these happen to people after transplant but there is no clear reason for them. If you have a general rash I'd see the doc tomorrow.
Hope this helps and you are recovering well
Helen

Hi Gilly
What has the occupational health doc said? Your manager is obviously not your physician so how should she be making a judgement of any sort?
Does the hospital you attend have a social worker attached to the oncology unit as they are usually very helpful
The caring NHS eh
Helen

Hi Caz
Is your family from New Zealand?
Helen

Hi Caz
Welcome
Re diet- as good as possible seems the best, if you feel like eating, some do some don't. On the dexamethasone days you may find you can't stop eating! You don't say if you are heading for SCT! If you are you need to keep as fit as possible as it can be a bit of an ordeal and you may need all your reserves.
I found myself…[Read more]

Hi Debs
Like the new photo, very cool, and glad to hear hair is starting to grow, still don't know how to load pics on here and the family tech is proving difficult to pin down….
I'm losing eyelashes now but have still got eyebrows and no hair on head but wait in hope! How did table top sale go?
Helen

Dear DeeDee
As Min says, here is the place for sensible help. 10 weeks is not long to get used to the life changing effect of this disease on someone you care about, you will still be reeling.
I was on Revlimid on myeloma xi and it is not easy, I can't stress the importance of him taking his temperature daily and when feeling more hot or cold,…[Read more]