If you are still around I'm in 34- no beds on 33

Hello Min
I know you were coming in, did it all go well, I'm in too waiting for stem cells later today
Helen

Oh Dai
Your leg problem may be unrelated but it will have sapped what energy you would have anyway as it tries to resolve it's self and heal, take care and keep going, enjoy your holiday in Pembroke
Helen

Thank you both, I have made my ice cubes, all different flavours, White wine not good taste so will stick with blackcurant and orange! Hey ho it was a thought,
Glad to se you are now home and hope it continues to go well
Helen

Carol
Another thought about the revlimid, which also dropped my levels to zero, I had 5 weeks from finishing it before I felt it was fully out of my system, so it seems to have a very long after effect,
Helen

Hi Carol and Bridget
Will take ice and mug! All tips very welcome:-) thanks for your contact only hope they have beds!
Helen

Hi Carol
I have sct next week
Helen

Hello Ted
I feel a bit impertinent as a relative newcomer to this site too, to be the first to reply to you, but anyway welcome. I have not experienced mm in the same way as yourself but know a chap who has, he too finds 'observation only' a bit of a trial but I think that if they say you don't need treatment, take this as a fantastic reprieve…[Read more]

Hi Min
Let me know I'll bring sandwiches!
Helen

Dear Carol
I was on the revlimid as induction ( RCD) in the trial and was stiff as a board for 3 months then I seemed to loosen up though still felt very sick and weak in the 4 th month. I had several chest infections, if the cough keeps up perhaps you should report it? I found the stem cell collection and the zometa all cause me lots of pain and…[Read more]

Dear Sarah
As Gill says a cyber friend whom I shall never meet but has given support unknowingly
Blessed be
Helen

Thank you, I'm the same it took many weeks for the revlimid to wear off, much more than iwas expecting it to. Well I'm off to Kent now and maybe a teeny trip to France for a few bottles to keep the saintly hubby happy
Keep your chin up and hope the waiting to be ill is the worst thing you experience.
Helen

Dear Dai and other sufferers
What you say is all so true, My family read this site and get much from it, apparently more than they get from me! I feel I have known all of you forever and am sharing your lives, becoming better informed about mm and how to cope with it
Sarah you and all the other carers ( I know you hate the word but you do the…[Read more]

Hello Pam
What a sad time for you, no matter what he has or how long, hold his hand, he has and will know he is loved,
Helen

Hi Jet and Carol
It is a great help to have the 2 of you ahead of me.
Helen

Hello Jet
Good to hear you are well, hope this continues. I'm not sitting around either, going away for few days tomorrow . Plenty of fresh air and long walks while I can.
Helen

Hi Min
Mmmm I was hoping it might be the nurses who put the cannula in, they are pretty good. Yes I'm sure Catherine will oblige and as for the beds…….. We must hope for a quiet weekend before we go in, I wonder how many of us are booked
Helen

Hello Min
I thought the beach in the background might be familiar! Yes I spent all Tuesday am at frh and we will be racing for the beds together then!!! We've probably gazed at each other across the waiting rooms!! Those unbelievably long waits!' I've been told I can go home after the first couple of days if well and then to expect to return on…[Read more]

Hi Dai
I like the way you refer to it all as an adventure , it is how I have looked at it, not one I would have taken from choice but an adventure nevertheless and I view each stage now with interest and trepidation but funnily enough not fear. I am in Newcastle and if there is a bed will have high dose melphalan on 15th aug and stem cell rescue…[Read more]

Dear Helen
I think the side effects of the drugs are so many and varied it is really hard to work out which is doing what, I only had them for 4 cycles but they were terrible, my consolation was the lowering sflc each month, I don't know how i' d have reacted if it had not done that.
I still have shakey hands and certain foods still seem to…[Read more]