Helen started the topic Stem cell collection. in the forum General 13 years, 4 months ago
How long can I expect to feel wiped out after the stem cell collection?
wendyduffield replied to the topic Diarrhea in the forum Side-effects 13 years, 5 months ago
thanks for all your replies, I was discharged today from hospital (wasnt staying on haemotology ward) feeling alot better. The tests didnt show any particular bug and the docs reckoned I just picked up something in Portugal which because I am immunosuppressed couldnt fight off as easily. Anyway glad to be home and not rushing to the toilet every…[Read more]
wendyduffield replied to the topic thalidomide in the forum Side-effects 13 years, 5 months ago
I think your mum
Is doing really well. I started on thalidomide in January but was unable to complete the first cycle due to an horrendous skin rash. I also felt fAint so they reduced the dose. I remember the feeling of being in a black hole and very tired. I started a second cycle after the skin rash cleared but had to stop
Again due to nerve…[Read more]
wendyduffield started the topic Diarrhea. in the forum Side-effects 13 years, 5 months ago
This seems trivial compared to what some people are going through but I have been admitted to hospital today via a&e with chronic diarrhea with lots of blood having just enjoyed a short break in the algarve. Is it myeloma payback time? They have sent off blood cultures to work out the cause and I finished a second cycle of velcade etc last…[Read more]
wendyduffield replied to the topic Blocked and popping ears in the forum Side-effects 13 years, 6 months ago
well at least its not just me, I have an appointment with an ENT specialist on Wednesday and shall see what they can do, however I have a feeling it will be nothing so will just have to try and enter a state of blissful ignorance as Dai does.
Wendy xx
wendyduffield started the topic Blocked and popping ears. in the forum Side-effects 13 years, 6 months ago
I wondered if anybody else was or has experienced problems with their ears. Mine have been constantly crackling and popping for the last 8 weeks and it is driving me insane. I dont have any hearing loss and my GP (with whom my consultant agrees) thinks its catarrh behind the ear drum following a cold but I think it may be a side effect of the one…[Read more]
wendyduffield replied to the topic Side Effects in the forum Side-effects 13 years, 10 months ago
Hi Derek, I am on CTD (Day 21) of the first cycle and getting numbness and tingling in my spine especially when tryinng to sleep at night and extreme shakiness. I have reported it to the doctor and they say it can be one of the side effects but didnt advise if there was anything I can do to alleviate it. I will take Geoffs advice and ask the GP…[Read more]
wendyduffield replied to the topic The Under 50s Group in the forum Under 50s 13 years, 10 months ago
Hi phil I would like to join the under 50's group. At 49 I think I just qualify. I was diagnosed with light chain myeloma on 24th Dec following admission to hospital with kidney failure. I am still coming to terms with it and started treatment with CTD about a week later but I thought better sooner than later.Its all been such a shock and I cant…[Read more]
