[sarajmorganParticipant]

Dear All,

Thank you to all those who participated in the online Stem Cell Transplant survey conducted by Myeloma UK last year. We have now produced a report outlining the key findings and recommendations, which can be accessed at the following weblink: http://www.myeloma.org.uk/news/enhancing-the-patient-experience-a-new-report/

Thanks again for participating and making this project possible.

Kind regards

Sara

[sarajmorganParticipant]

Thank you to everyone who has been in touch with me to discuss their experience of diagnosis. If you have been in contact and I haven't already interviewed you, you should have received an email from me setting up a day and time to call you.

I have now received enough responses for the time being but will post on the discussion forum if I need anyone else to interview.

Thanks once again to all those who have participated so far.

Kind regards

Sara

[sarajmorganParticipant]

My name is Sara and I have been given responsibility for our GP education programme at Myeloma UK.

Myeloma UK is currently in the process of updating our Myeloma Diagnosis Pathway which we distribute to GPs to raise awareness of the signs and symptoms of myeloma, back pain being one of the most common presentations.

Alongside this, I am about to appeal on the Discussion Forum, for any patients who have had either good or bad experiences with their GPs aroud diagnosis, to come forward and speak to me. Either lengthy delays, many repeat visits to the GP, a feeling of frustration that the GP is not taking symptoms seriously, or conversely, that the GP has dealt with and investigated symptoms promptly and efficiently resulting in a rapid diagnosis.

This will form the basis of a report which outlines the main problems that patients tend experience in being diagnosed and if you would be willing to participate in a short telephone interview to discuss your experience, I would very much like to hear from you by email: sara@myeloma.org.uk. I can then arrange for a convenient time for us to speak.

Thanks in advance.

Sara

[sarajmorganParticipant]

Hi Tom, thats fine, the main reason for asking for patients who have had their transplant in the last couple of years is to ensure they can remember the details. But if you have a good recollection of it then its its great if you could complete the survey. Sara

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