sarowjen

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  • #125717

    sarowjen
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    Hello Ann nice to meet you,I’m so glad you’ve come through everything alright and have been in remission for a while,long may it continue 😊 . I just hope I do as well. I have my skeletal survey this afternoon so will know next week if and when I will start treatment . My Paraprotein level is quite high at 28 but everything else is normal so hopefully not much damage done .Hope you continue to keep well Ann xxxx

    #125696

    sarowjen
    Participant

    Hi

    Im Sarah,I’m 57 years old and was diagnosed with myeloma last Friday . I’m still feeling shocked and have started to feel scared about what lies ahead for me . My four children and some of my close friends are aware of the diagnoses but until I know more ,I haven’t told the rest of my family . I feel guilty about upsetting them,is this a normal reaction ? I really don’t know how to feel or behave at the moment . My children are all very supportive but upset too and my husband is bewildered and angry . I’m having a skeletal Survey done tomorrow and then they will decide how they will treat me . This was picked up from a routine blood test so I’m not showing any symptoms at the moment apart from some backache which may or may not be caused by the myeloma . I had pneumonia at the end of March last year and àlthough I picked up well afterwards ,I seemed to go back downhill and have been lacking energy since . I suffer badly with osteoarthritis so it is possible that myeloma pain has been mistaken for that ? I’m quite immobile sadly . How did you all feel at first diagnoses ? How has the treatment affected you and your families ? Would be good to hear from people who already have myeloma .

    Sarah x

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