Last transplant Christmas 2016, I’m not surprised you feel anxious. My memory of isolation is perhaps very similar to yours, and out of everything that was one of the real challenges.

Just a thought about the chemo treatment, the allo chemo is very different to auto treatment, which is a bit like a hammer going through a pane of glass – nothing…[Read more]

Hi Mick,

I don’t come on this forum very often, and I drifted in today and read your post.

Here goes with my experience……I’m 49 now, had tandem transplants in 2015 – so auto then mini allo, unrelated donor.

First thing that comes to mind is that to have the best chance of success the myeloma load needs to be as low as possible, meaning have…[Read more]

Hi Val,

Have had 2 auto SCT’s and 1 allo SCT, always had cats at home. My ex has dogs and always have been around them when I go pick the kids up.

Advice I was given was to not clean out litter trays, if animals lick my hands, to go and wash them with anti bacterial hand wash. Keeping the house well vacuumed helps prevent fluff build up, that…[Read more]

I tried it when first diagnosed, didn’t make the slightest difference.

I read and read about supplements and we are some 3 1/2 years later and post transplant and I have a view…..

As I understand it, curcumin isn’t a fast acting supplement, it could take a year or more to have any effect. So many of us that have tried it would never see a…[Read more]

Hi Wendy,

I don't post very often here….I have had the same dilemma put to me. I'm post autologous transplant, nearly 4 months and counting. Two consultants at a specialist cancer hospital talked to me about mini allo transplants. There point was that as I was so young, I'm 43, it may be another option to prolong life.

I read a good deal,…[Read more]

Thankyou all for the welcome, I'm still reading lots lol and if anyone wants a few myeloma journals to read, just drop me a line 🙂

I had a shock last week at my latest appointment, haemoglobin 11.6, IgA up to 30.9 from 24.0 in a month. Whoops…here we go I thought.

The consultant wanted to start me on treatment and I said no – have you…[Read more]