First let me thank everyone for taking the time to respond to my post.
I have been to the Oncology today and I have had it confirmed the the Transplant wasn't successful. To explain a little further (David hopefully this will make things clearer as to why I called it failed as well :-))
Prior to starting treatment and when I was first diagnosed 5 Nov 2009 (everyone celebrated with fireworks for some reason ;-)) My PP was 58. After the transplant and the reading they took by mistake my PP was 12. I was told they couldn't get a proper reading until three months after the transplant. Hence the results I got today it was 28 so it is still creeping up which a successful transplant wouldn't, at least not for a number of years! So that's why I refer to the SCT as a failure. It was something that I had to try though first.
After discussions with the Dr I have decided to look at starting Velcade which if it is successful should hopefully give me a couple of years before we look at the next option/s.
Prior to starting the Velcade though I have to a full skeletal scan and bone marrow biopsy (the same as I did when I started). Oh my platelets are also low at the moment.
If my platelets have gone back up and the biopsy results are OK and the lytic lesions haven't increased and the PP hasn't increased, then I may not go on Velcade and they will just monitor me and keep a close eye on me. Somehow I think there is a rather slim chance of that happening though.
So I will probably start on the Velcade in February.
Going back to the point of this post though and as some of you suggested I have discussed the situation with my Dr and like others here has suggested talking to the Macmillan support. They have there own office in the Hospital so I will be making an appointment to see them shortly and will keep everyone informed.
Thanks again for your well wished and help. Greatly appreciated. 😀
