Myeloma Forum | vanessakelly | Activity https://forum.myeloma.org.uk/members/sessakelly/activity/ Activity feed for vanessakelly. Sat, 11 Apr 2026 18:45:39 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 3e34b2ee8a05970fa7295af51805d23e vanessakelly replied to the topic Anaemia ? Sign of relapse in the forum General http://www.myeloma.org.uk/forums/topic/anaemia-sign-of-relapse/#post-124338 Fri, 25 Sep 2015 13:45:21 +0100 Thank you Peter for your reply. I have such admiration for everyone having to personally deal with cancer, I’m just a wife and feel like a spectator. Even in remission its there, but you’ve helped put my mind at rest until Stewart gets new results. You didn’t have to do this for me, so I’m really very grateful. X

]]> a8f56560f1ddfd5b8ac19488da5043d0 vanessakelly started the topic Anaemia ? Sign of relapse in the forum General http://www.myeloma.org.uk/forums/topic/anaemia-sign-of-relapse/ Thu, 24 Sep 2015 18:59:00 +0100 Stewart had his bloods taken and his consultant sent along a letter asking him to repeat fbc, creatinine, u&e , folate etc. in the letter he stated there’s no raise in PP’s however Stewart is “slightly anaemic”. He’s been in partially remission for two years now since SCT.
On this basis Stewart has not re arranged the new tests until next week,…[Read more]

]]> aef3115eb1ccb0d0fca73b425fd0b27b vanessakelly replied to the topic Work in the forum General http://www.myeloma.org.uk/forums/topic/work/#post-122672 Tue, 16 Jun 2015 12:28:53 +0100 Hi Emma,
Sorry to hear your story. Unfortunately I have some experience of less than sympathetic employers. I was diagnosed in September 2012. Usual CDT before stem cell transplant the following April. Made redundant on my return to work in June having worked from hospital during the STC and having taken no time off during the initial treatment…[Read more]

]]> 82ee056d7540a8889dfd116efffe4502 vanessakelly replied to the topic Constant new infections but told pp level dropping? in the forum General http://www.myeloma.org.uk/forums/topic/constant-new-infections-but-told-pp-level-dropping/#post-121779 Tue, 14 Apr 2015 19:55:13 +0100 Thanks ladies I really appreciate your advice. I will call the nurses tomorrow and maybe try to worry less. I’m probably driving Stewart crazy!
So grateful to you both

Vanessa

]]> 58f10d58944616517ef43a67448c83d5 vanessakelly started the topic Constant new infections but told pp level dropping? in the forum General http://www.myeloma.org.uk/forums/topic/constant-new-infections-but-told-pp-level-dropping/ Sun, 12 Apr 2015 08:55:43 +0100 Haven’t written on page for the longest time but once again we need advice and help. Stewart’s on 3 monthly checks now and the latest one seemed to indicate that his pps have gone down from 16 to 13 . It’s been nearly two years since his SCT so this is remarkable? But he’s been feeling rotten since November with colds and viruses and infections…[Read more]

]]> 5934fb0ab8d473db83db5b2345088463 vanessakelly started the topic What to tell new employer?!!! in the forum General http://www.myeloma.org.uk/forums/topic/what-to-tell-new-employer/ Fri, 10 Jan 2014 10:39:41 +0000 Stewart has been offered a new job, thankfully for his peace of mind- he needs to be busy and felt he had let us down. Although I’m worried (because I constantly worry these days) one of my concerns is that we never divulged his cancer diagnosis. Stewart was made redundant from last job, we believe on this basis although were unable to prove this…[Read more]

]]> 26e6d9b9e68b475bec634e81b1d6c075 vanessakelly replied to the topic Auto;Allo;Mini Allo.....? in the forum Treatment http://www.myeloma.org.uk/forums/topic/autoallomini-allo#post-101620 Thu, 07 Feb 2013 19:10:12 +0000 Vicks and Ellen, I really appreciate your replies. So much to consider. In Stewarts case he's now got bilateral Pe's and osteonecrosis of the jaw. He's been in hospital five times now over the course of his CDT and we're both so anxious about his SCT because if there's a complication to get Stewart seems to get it!!
He's only 45 and I just…[Read more]

]]> 7fd251dbdf851cec351fc0fe933fa2f4 vanessakelly started the topic Osteonecrosis of jaw+steroids or zometa AND bilateral PE. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/osteonecrosis-of-jawsteroids-or-zometa-and-bilateral-pe Thu, 07 Feb 2013 13:24:30 +0000 Hi,

Unfortunately today the dentist said Stewart has osteonecrosis of jaw either due to steroids or zometa, of course this is devastating considering Stewart came out of hospital yesterday with a diagnosis of bilateral PE due to thalidomide.
If its not one thing it's another, and he's really beginning to question his route forward I.e. SCT.…[Read more]

]]> 004b476cba080c387d809b030b7a2e9e vanessakelly started the topic Auto;Allo;Mini Allo.....?. in the forum Treatment http://www.myeloma.org.uk/forums/topic/autoallomini-allo Sun, 03 Feb 2013 22:18:21 +0000 I understand in principle the differences between both and the pros and cons,however I dont understand why some people are offered a mini Allogenic transplant after Autologous. Is it just down to the consultant? Or is there evidence a mini works or not ?
Can anyone help me on this, just so I can stop mulling it over and over. Please

Always in…[Read more]

]]> d0c64180b69f53c7007f4e0b48146bd3 vanessakelly replied to the topic sct looming but pp plateau at 14 in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-looming-but-pp-plateau-at-14/page/2/#post-101592 Sun, 03 Feb 2013 09:00:06 +0000 Dai,
You answered questions I hadn't yet asked but had on my mind! So informative and explanatory thank you so much. I feel both Stewart and I were flying blind and relied on just his consultant who really isn't that forthcoming.
I can't fault nhs treatment (Stewart wouldn't have a bad word against the Western General Edinburgh) but oh to be…[Read more]

]]> c67109fce036c3e57ef05702c17b20e9 vanessakelly replied to the topic sct looming but pp plateau at 14 in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-looming-but-pp-plateau-at-14/page/2/#post-101589 Fri, 01 Feb 2013 21:44:55 +0000 Phil, thank you so much for taking the time to fill me in on your journey. It seems not too unlike Stewart's, and hopefully he will go into remission as you have. It's great to hear you're back enjoying life also, Stewart is very low sometimes because he can't go running, play football golf etc anymore, it was his release. Now all he has is me…[Read more]

]]> 2ccaccf52df50e81cf9e29bc4e1b79b7 vanessakelly replied to the topic sct looming but pp plateau at 14 in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-looming-but-pp-plateau-at-14#post-101571 Mon, 28 Jan 2013 09:22:11 +0000 Janey can I ask ,did you have maintenance treatment?

Yours
Vanessa

]]> 23a5042d13e1b57747311685a656527d vanessakelly replied to the topic sct looming but pp plateau at 14 in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-looming-but-pp-plateau-at-14#post-101570 Mon, 28 Jan 2013 09:17:23 +0000 Janey your message has brought me new hope. Last night I slept for the first time in ages and I stopped trawling the Internet for miracles. At least for the moment…..

So grateful

Vanessa

]]> 562acf3c1cf54ddd623fdc1cb1acdeb4 vanessakelly replied to the topic sct looming but pp plateau at 14 in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-looming-but-pp-plateau-at-14#post-101567 Mon, 28 Jan 2013 09:14:23 +0000 Andy ,you've been through the mill. I'm lost for words that you would take the time to explain treatment pros and cons. I really appreciate it. I wish you the very best, and that what you hope for comes true.

Eve, once again I'm humbled that people have taken the time to recount their experiences and so positively. I'm very glad to hear your…[Read more]

]]> 8038eba94bf7d260b5a992e6c95c9c99 vanessakelly replied to the topic sct looming but pp plateau at 14 in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-looming-but-pp-plateau-at-14#post-101565 Sun, 27 Jan 2013 10:11:46 +0000 Thanks Vicki for your advice, I really appreciate it. Im finding it hard to talk to friends and family as they just say things like " let's pray they find a cure blah blah " I understand they are trying to comfort us but when Stewart hears it , it makes him mad,whereas I just get overwhelmingly sad.Id love still to find out whether Stewart has…[Read more]

]]> 0b8609385b00a1efb700a5f59b2b7890 vanessakelly started the topic sct looming but pp plateau at 14. in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-looming-but-pp-plateau-at-14 Sat, 26 Jan 2013 21:28:32 +0000 Hi
This is the first time I've written but I read the discussions lots, they bring me some hope. My husband has mm. He was diagnosed a few days before I gave birth to our beautiful four month old baby girl Elsie. I'm heart broken in a word. I'm mad and sad combined and its not getting any easier. Last week Stewart had final bloods taken he's on…[Read more]

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