I am so sorry to hear your sad news my condolences to you and your family. love Sarah and Henry xx

we have used avanti on each trip abroad and found them very helpful.

thank you 🙂 i dont think you have to divulge it when going for a new job. but at some point you will need to advise. its a difficult one as you would like to think there is no discrimination. henry has been up front with employers and they’ve been v good. but he is in remission and doing very well. long may it continue for both our husbands xx

I keep an eye on you through FB and Twitter so covering all bases and posting on here!
you know you can do it!!!
take care
love sarah xx
ps the old boy is doing the ironing now!

Hello, my husband henry who has myeloma, got offered a new job in the summer and he only told his employer a few weeks after he started. He is in remission and has 3 monthly hospital visits now. His employer has been very supportive and understanding. Henry didn’t want to say in the beginning as for one thing you don’t have to divulge and he…[Read more]

Good for you eve;) we are actually going away after Xmas to see Henry’s mum in Jamaica. We haven’t had a holiday since Henry was diagnosed on 2011. I. Managed to get him insured, paid for premium cabin seats, got antibiotics, a large hat and suncream 😉 I am worried but excited now for Christmas and the holiday. We are off to hospital on Friday…[Read more]

Tom my lovely you and a few others were the first people to reply to my posts in 2011 when I needed support and you have been a diamond. A few of us share our worlds on Facebook and Twitter and you are always there with a witty post! Henry knows you through me and was sad to hear your news. I did wonder if I should have kept quiet?? But You…[Read more]

Hi Kerry
How are you and how is melv
Love sarah xx

I too often read pat's tweets on twitter. Henry told me a while ago that he has come to terms with his MM and knows it will come back and that he is not the same man he was before treatment. He said I am his rock and got him through his treatment and that me and the children are all that he lives for. We have made adjustments to our life. Henry…[Read more]

Hi my husband had the exact same thing all over his whole body even his face, they even took a biopsy and could not work out what it was apart from a reaction to the melphan. The dermatologist gave him this paraffin greasy petroleum jelly stuff which i smothered him in he also took ante histamines and paracetamols. I changed all the washing…[Read more]

Hello Jo
I'm glad your feeling better and out of hospital. I haven't been on here for a while so catching up. I did get henry to watch some of the videos on here about fatigue , so that's s first. Take care love sarah xxx

Henry had his second month of zometa a couple of weeks ago and felt bad with flu type symptoms. It then went straight to his chest so I gave home antibiotics which cleared it up but he was defo really fatigued and didn't feel this bad after the first one. He suffered with a bad headache for about a week and was very slow in his thinking. He could…[Read more]