Hi Keith,
How are you feeling about the transplant? It's good to hear that the velcade has worked for you…it seems to be doing the same for me, so I may not be far behind you with a transplant date!

Bridget is a gem isn't she….most definitely one to count on and we shouldn't forget that! And I'm really sorry if you felt that none of the…[Read more]

Hi Jet

Yep I kept my Lashes 😀 mind you it was the only hair i had left, and when it was growing back I could have took a bit of old rough samnd paper to my body to stop the itching lol.

No you wont need fals lashes and as for the wig some ladies look sexy with no hair 😀

Tom "Onwards and Upwards" xx

Hey Girl's

Now lets put a mans perspective into this one ha ha

Firstly I have to say for those that are due to have a SCT :: Honest it will be worth it here I sit what ?? call it 16 Months Post Transplant and am doing great 😀 for me it was and still is the best thing I could have done to make me Better8-)

Now the Tash thing, now that…[Read more]

Oh Bridget and kay,

So similar!! I've gone up 1-2 dress sizes no matter what exercise I manage to fit in on the odd good days I have. And whilst I eat, I don't feel I overeat massively….occassionally yes (it is that taste thing isn't it Kay….awful!) but not loads. I am hoping some of it is water retention.

And like you Kay, everyone…[Read more]

Just a quick update for anyone who is on the Myeloma XI trial/ interested in Velcade treatment.

I've just finished the first two treatments of cycle 2, and got my cycle 1 paraprotein results back….have gone down from 27 to 15, so I am over the moon, especially as my consultant had warned me that I may well not see a decrease in the first…[Read more]

Thanks for your responses guys!

I will let her know what you have said and perhaps suggests she just checks out normal sinus remedies that DON'T have ibuprofen in them

Cheers
Debsx

I am so glad that it is not just me!!!

I have got so fed up with the hairy top lip that I have been having electrolysis on it for the last few weeks….No offence to men, but I am fed up of having more hair than my beardless wonder of a husband!!!

Sadly, can't deal with the weight gain in quite the same way, but nevermind!

xx

What lovely news….Congratulations to you both, and whether the celebrations are this month, or in 3, I hope that you have the most fantastic day.

I hope that your daughters can both make it so that it is a real family affair.

I'm with Bridget, go shopping and buy lots of lovely thing….all neccessary of course (;-) ….esp those lovely…[Read more]

Hi Min and Peter

Pleased you have an answer to the sweats its a bu%%er all these side effects.

Enjoy your Holls

Tom xx

Hi Tony

Sorry but you are way ahead of me so cant add anything apart from saying good luck in the treatment you get?

Tom

Hi Liz

I can say that when i was in and had my transplant I found it hard to drink enough and they put me on a drip also (it was easier)gosh its hard work to drink that much when you aint feeling too good as it is:-S the drip was the best for me plus I drunk when i could ((water Pamela Lol))

Me I think i had two bloods and two platlets in…[Read more]

Hi Liz

Hey you take no notice of "Tinkerbell" as she is a little tinker ha ha, I have nearly stopped drinking these days only a bttle of vodka a week now 😎

So you dont have to rush to catch up he he.

Love Tom xxx

Hi Liz

Your both more than welcome, and it wont be long before he is up and about, and there is no rush one day at a time and it will work out, I must have been 8/12 before I felt better and trust me the wait is worth it 🙂

Tell Kev to keep on the "Upwards and Onwards"

Tom xx

Hi Liz

It sounds like its looking good and on the way up now, still one step at a time though, give my best regards to Kev and tell him its an "Onwards and Upwards" that he will now be having.

Good Luck and hugs to you Both

Tom xx

Hi Liz and Kev

I also had to have platlets too, two lots but it made me beter faster :-).
When I had my SCT I also slept that much in the last 6 days that I misse who came to visit ha ha, sleep is what Kev needs at the moment (and for a feww weeks after) it will all fall into place 😎 I would say about three months and Kev will be saying Wot…[Read more]

Hi Liz and Kev

So sorry you had to join this site, but it is one of the best.

I had my SCT december 2009 so it is 16 months post transplant and honest I have never looked back, up hill for a few months then WALLA better 😀

Since I had SCT I and my young bride (Elaine) have just got back from Great Yarmouth, and had two fly away holls…[Read more]

Morning Mike,
Hope today goes really well for you…I remember being a bit manic the first day…don't think it was the drugs, just a wierd sense of anticipation of what might come! It all calmed down then!
Not sure what advice they'll give you re the revlimid, but I used to take it in the morning with my dex. I found that I didn't sleep well at…[Read more]

Jet,
I think you might find your figures are your lightchains rather than your paraproteins if you're talking about hundreds and thousands.
Debs

Hi Mike,
Welcome and sorry again that you've joined us all!
I am on the Myeloma XI trial too….did 4 cycles on revlimid starting in November, and after plateauing am now on the velcade arm for at least 4 cycles. The terminology is probably all a bit alien still for you (sorry, that wasn't meant to sound patronising!) but just ask away and…[Read more]