Hi Annie

And a warm Welcome from Iccle ole me 😀
Am sorry you had to join this forum but am sure you will find out its the best their is 😎 ,the help and support you get from these great folk is second to none 😎

Good Luck in your treatment.

Love

Tom "Onwards and Upwards" xxx

Hi Marion,

I'm currently on the Myeloma XI trial and got the revlimid (lenalidomide)branch of it. It seems like the side effects are different for everyone but I have to say that I have had minimal side effects in the grand scheme of things. Tiredness, tenderness and some breathlessness and awful tastes seem to have been the worst for me (oh…[Read more]

Hi Chris

I also had a rash on my body during CTD, it soon went 😀

Do you go to the AE at hospital with Hubby?? me I have been told if I have anyproblem to phone our Onc ward and speak to the Consultant or the Staff Nurse, they have more knowledge about the MM

Good Luck

Tom "Onwards and Upwards" xx

Hi Chris

And am I pleased you joined us 😀 but sorry you had to 🙁

I am sure you will all cope with whatever is thrown at youe and Hubby (sorry you didn't say his name)

Dont forget we have you now so pull up the chair and ask say what you want, we are all here for each other 😎

Tom "Onwards and Upwards" xxx

Hi Norman,

Sorry to hear that you have levelled out on Revlimid. I thought you might be interested to know that the same seems to have happened with me. 4 cycles in, and after an initial drop from 50 to 32, a second drop to 27, I have now gone back up to 28 and it looks like I will also be going onto velcade (or coming off the Myeloma XI trial…[Read more]

Hi Sylvia
And That we are (optimistic that is he he) me I dont think April is too far out? so the crossing to Cork should be OK

I used to hate the heat and sun and love the wind rain and snow But since getting MM you could throw me all the sunshine that you can because I defiantly feel the cold these days8-) so the sooner the better and…[Read more]

Hi Gaye

April 15th MMmm Interesting

I think it could be today 😀 well we dont need the sun 😎 do we? we just need to be a wee bit daft he he.

Photo to follow ha ha.

Weekend nearly over and a new week ready to kick off, hope you all had a great w/end and are looking forward to the new week 🙂

Have a Good Un

Love
Tom…[Read more]

Oh Sorry to hear that Em 🙁 but am sure they will sort Dad out Ok.
Its a case of working out what works and what isn't working with us lot 🙁
Your Dad might just need his meds tweeking a little bit 🙂

I also dont like a fuss caused over me so think I know how your Dad will feel.

We have to take it one day at a time 😀 and it will…[Read more]

Hi Em

Well I am sorry to welcome you to this site 🙁 but that said you will find it One of the best around, we have great folk that have got good advice to help you and your Dad through this one step at a time 🙂

Humour you cant beat it at a time like this and never lose it as I know it has perked me up no end over these last couple of…[Read more]

Oh Gaye I think?? no I know we all have the "Onwards and Upwards" streak running through us 😀 , we just need to look at the Positive Posts that are on here 😎

And Many great Posts are from yourgood self Gaye and for that I thank you 😀

You make me smile you make me laugh and in this cold weather that a good thing :-S

Once again…[Read more]

Just nipped in to say Hi and Good Luck

Tom xxx

Hello Tanya

Sorry to hear about your Dad 🙁

But you know your Dad and am sure you know he will cope with what this darned MM throws at him.

Bridget is correct can your Half sister help out, have you tied the Social Service to see how they can help.

Good Luck and not forgeting yourself as it is too easy to forget about you and your…[Read more]

Hi Clara
Well you have had some great advice on here 😀
And that only leaves me to say
Good Luck to you and your Dad with his forthcoming treatment:-)

Am sure it will run smooth

Love
Tom "Onwards and Upwards" xxx

Your More than Welcome Sylvia, and I also am waiting to have some proper sun on the back of my fat neck 😀

Not be long before we can all sit outside 🙂

Love Tom xx

hi Bridget
Just to give another idea Im starting to think it could be the coproximol….took it again twice test and the horrid taste came back this afternoon. Got appt today to pick up cycle 4 drugs so will ask the question!
Debs x

Oh Bridget,

So sorry you're feeling so rubbish. It can be awful can't it. I have my sister in laws 30th on saturday….evening wear only…and I'm going to look like a hamster faced heffalump!!!

I didn't realise it was a common side effect the feeling of bruising, but I get that every now and again (can't decide whether it's dex, rev or…[Read more]

Hi Angie
A warm welcome to you, hope all goes well with your Mum's treatment.
You will know by now anything you need to know just ask 😀

Hi Clara

The same warm welcome is sent to you this is one of the best sites around so you will feel at home in no time 🙂

Love Tom xxx

Hi Steph

Sorry you have had to join this mad Band of folk, but a warm welcome to you and yours.

I wish you and your nan all the best for this Tuesday.

love Tom "Onwards and Upwards" xxx

Happy Birthday Bridget. I am glad that you have had a lovely day and am glad it makes being shattered well worth it!

Thank you for all of your support and comments on the site…I often read and don't reply but as others have said, you are a true rock to so many people….and so positive which is what we all need…but you manage to do it even…[Read more]

Mine has come back Keith….just as I have gone back on the dex…the good news is it's stopped me picking this time, so perhaps the beached whale effect will calm down!!!

We'll have to keep an eye on it and work out what it is exactly that is causing it 🙂

Debs x