tom replied to the topic Newbie in the forum Newcomers 15 years, 4 months ago
Hi Gina and of course Mum
Am pleased your Mum is very positive:-D as am sure it helps in some small way I think you can think yourself better (ye i know am a nutter ha ha) but am sure it works for me positive thought for me is a great thing and i surround my self with positive people 😎
All the best for your Mum 😀
Tom "Onwards and…[Read more]
tom replied to the topic Another Newbie!! in the forum Newcomers 15 years, 4 months ago
Oh Donna I am so sorry, for two things first the sad loss of your Dad, you have my deepest sympathy and second the delay in passing my Condolences on to you and your family.
Words are a small comfort I know but am sure they help you and your family at this sad time.
Love and Hugs
Tom xxxx
tom replied to the topic Likely Relapse in the forum General 15 years, 4 months ago
Hi Keith
Well am sorry to read that 🙁 its a bit of a b>>Ger.
Good Luck M8
Tom "Onwards and Upwards"
tom replied to the topic Christmas in the forum General 15 years, 4 months ago
Oh Gaye
Wonderful thoughts and word's if i may say so.
And the thing that struck me is the Strength and courage of those that go out of there way to help/advice and just be there for us and that My Good On line Friends is [u][b]YOU[/b][/u] yes [u][b]YOU[/b][/u].
Because without you all, my trip would have been harder to bear but your…[Read more]
tom replied to the topic Catch Up in the forum General 15 years, 4 months ago
Hi Bridget
So you aint been on your Holidays? well blow me no good waiting for the card then He he
But the Setback is a bit of a Bu%%er 🙁 but am sure you will cope with it and throw some laughs in with it 😀
I am just wondering why your Chest infection got worse? a good course of Anti Biotics clear me up 😎
Am sure it will help…[Read more]
tom started the topic Roz. in the forum General 15 years, 4 months ago
Hi Roz
I have been thinking of you both all day.
I hope all went well today and you got the answers you need.
Love and Best wishes
Tom xxx
tom replied to the topic Rant over Bank in the forum Off topic 15 years, 4 months ago
Hi Gill
The Buggers should be hung drawn and whatever the next bit is lol.#
Me I would do the Press thing:-D apart from shamming the buggers it brings more attention for MM8-)
As for the Mac Nurse? like you never seen one nor been asked if i want one?
But on a brighter side My Consultant tells me to phone the ward anytime I need…[Read more]
tom replied to the topic The Under 50s Group in the forum Under 50s 15 years, 4 months ago
Hi Kay
Am sure you will cope with it all 😀
Its not a walk in the park but it is Pain free (well it was for iccle ole me)
The worst was when i was having the Growth injections but that was only for a week end 😎 and it was not too bad 😀
Good Luck with it and will catch you lata
Tom "Onwards and Upwards" xx
tom replied to the topic Swine flu Jab in the forum Treatment 15 years, 4 months ago
Hi David
I had my SCT in December, I also had [b][u]Half [/u][/b]a Swine Flu jab before I went in and was to have the other half when in Hospital, for some strange reason I didn't get the other half :-S and the swine flu never found me ha ha
Am pleased you had your first Dinner, Small it might be great none the less:-D
Now all you need…[Read more]
Debs replied to the topic Rant over Bank in the forum Off topic 15 years, 4 months ago
I would definitely write to them and explain to them how disappointed you have been with their attitude etc and let them know that you plan to take it further if they don't do anything about it. Sometimes (and I would hate to say every time) that does the job. Not that you should have to!
Min, they weren't people to be bailed out (partly…[Read more]
tom replied to the topic Help with memory please in the forum Treatment 15 years, 4 months ago
Hey Gill
From a mere MALE and you must show Stephen this? ::::::::
If anyone that has MM and stephen you do M8 🙁 so if it hurts contact the consultant, if it feels differant contact the consultant and if it bleeds Get in Fast.
And you may print this off and show Stephen this as me just being a "Mere Male" says if in any doubt get it…[Read more]
tom replied to the topic Michael is dying in the forum General 15 years, 4 months ago
Hi Roz
I know posting will be difficult for you, but i am just popping in to wish you and Michael all the best.
And may I add a great Post from Dai, I like Dai wish and prayn that Andrea is wrong 🙂 as i am one to say Its Not over till its over, and lord willing Michael will get better.
Love and "Cyber Hugs" sent to you both…[Read more]
Debs replied to the topic Website switch and forum problems… in the forum General 15 years, 4 months ago
Hi Stuart,
Just a thought but could there be a topic for people who have sort of 'survivor' stories? There was someone on the Under 50 thread on the old site for example, who talked about how he'd had MM for 19 years I think it was…..and that's the sort of thing it's great for us all to see now and again…..esp for people who have just been…[Read more]
tom replied to the topic Start fludarabine tomorrow in the forum Treatment 15 years, 4 months ago
Hi Shirley
Am pleased to hear its going well 😀 and am sure your Sister will do great with the growth shots8-)
Tom "Onwards and Upwards" xxxx
tom replied to the topic MM hospital in Bangor area? in the forum General 15 years, 4 months ago
Hi Bella
Well am sorry I cant help here, but am sure some one will be able to, Good Luck in your new venture:-D
Love Tom xx
Debs replied to the topic Some good news in the forum General 15 years, 4 months ago
Hi MIchelle,
Great news about the protein levels! Really pleased to hear that. Revlimid sounds like such a successful drug….my levels 'look' like they're dropping on it too!
Does she struggle sleeping? I know I do, and don't know if it's the revlimid or the other drugs. But I wake every hour most weeks since I started on the revlimid.…[Read more]
tom replied to the topic Some good news in the forum General 15 years, 4 months ago
Hi Michelle
Am pleased to hear your Mums proteins have dropped after a short time 😀
And the tired thing? well I got tired before I knew I had MM and still get tired easy? that just might be because am not as active as i used to be ?? ah well as long as am healthy evry one will wait till I catch up lol
Love to you and your Mum
Tom xxxx
tom replied to the topic Michael is dying in the forum General 15 years, 4 months ago
Oh My Dear Roz
I am so sorry to read this, and its hard to know even when you know its going to happen sooner than later its still a wrench.
I have to send you both a "Cyber Hug" cos I know they do you good WwwwwoooooSsssHHhhhhh that one Dear Roz is for all of you at this dreadful time.
Please please take care of yourself also at this…[Read more]
tom replied to the topic The Under 50s Group in the forum Under 50s 15 years, 4 months ago
Hi Kay
No problems at all, what treatment will you be starting In Feb, I started mine in Feb 2009 CTD then Stem Transplant, never looked back since 😀
Today 16th December was the day I came home from Castle hill after my transplant 😎
Dont forget if you need to know anything just ask
Tom xxx "Onwards and Upwards"
ps did you send…[Read more]
Debs replied to the topic Michael is dying in the forum General 15 years, 4 months ago
Oh Roz,
I am so sorry. Like Michelle, it made me very sad as I have followed your journey on this site and feel like you guys have been through so much…it doesn't seem fair.
I hope that they are able to give you some reassurances on Monday and that it doesn't go the way you are imagining.
With lots of love
Debs x