tom replied to the topic Someone else learning to live a different way in the forum Newcomers 11 years, 8 months ago
Hi Richard
Well am sure you will not be wanting to do Lorry driving through your treatment, and your Insurance sounds Top Notch
I also Like you saying "Pick yourself up, dust yourself down, move on."
Am sure that works well.
Good Luck to you Both in the road to remission.
Tom Onwards and upwards
tom replied to the topic Chicken Pox !!!!!!!!! in the forum General 11 years, 8 months ago
Hi Trish and Peter
Well its going to be hard keeping away from folk I remember having them in my late 30's and I had to go to Dr's and he used to check on them I asked why I could come into waiting room and sit with Pregnant woman, kids and old Folk but not go to work (he put me on sick) he just said I need to keep an eye on you?? Doh.
Hope…[Read more]
tom replied to the topic Stand Down & Wait Around in the forum Treatment 11 years, 8 months ago
Hi Dai
As I do I hate (though we have to) have my bloods taken every four months now I think?, then wait four days before I get confirmation that all is well, its not a good feeling.
I hope you can continue with your treatment and all picks up.
Stay Well and Fit
Tom Onwards and Upwards
tom replied to the topic Wow that Velcade must be good stuff! in the forum General 11 years, 8 months ago
Hi Nicki and Sam
Well done you two and your team, that's great news and long may it continue, hope the peripheral neuropathy stays mild.
Great news
Love Tom Onwards and Upwards xxx
tom replied to the topic Mums's MM and now has breast cancer! in the forum General 11 years, 8 months ago
Hi Sandie
Am sorry to hear about your Mum having to cope with Breast Cancer as well as MM and hope it shrinks with the treatment that she is having for MM.
My Young Bride (Elaine) was diagnosed with Breast Cancer in 2008 (Grade 3, estrogene receptive) and this summer she will be 5 years clear :-D, Elaine had a Lumpectomy and 5 lymph nods…[Read more]
tom replied to the topic A question for the ladies in the forum Side-effects 11 years, 8 months ago
Hi Lesley
I wondered why you made this ::: A question for the ladies ?? Then I looked at my photo and looked in the mirror and realized why you didn't ask me Ha ha.
Good Luck with it, our Grandkids don't know about my MM they just know Granddads got "Dodgy Bones" 😛 .
Take care and stay well
Love Tom Onwards and Upwards xx
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Aww Bless you two, its an uphill struggle for most of us and a bit harder than that for some, and you two are a pair of those.
Stick with it Jean you know he is getting looked after and I know its hard for you also so you must take time out to rest.
Did you get a reply from the other Dr about treatment carrying on ?.
Am…[Read more]
tom replied to the topic Someone else learning to live a different way in the forum Newcomers 11 years, 8 months ago
Hi Richard
Welcome but am sorry you had to be here.
What treatment regime are you or will you be going on?? I see you put its an Insurance that will be paying for your treatment? how will that work.
How/why did you lose your licence for HGV due to your Myeloma? how will you fail it for what reason.
Its going to be a rollercoaster of a…[Read more]
tom replied to the topic Itchy Rash Post SCT in the forum Side-effects 11 years, 8 months ago
Hi All
Just a fast one.
The Itch could be your hair starting to grow I had same and when haire rerew it stopped.
Have a great day work for me now 🙂
Tom Onwards and Upwards x
tom replied to the topic How do I fill this empty hole in my life? in the forum End of Life and Grief 11 years, 8 months ago
Dear Ann
Am sure its hard for you, and I am sorry you are finding it difficult, rather than being on your own can you not go and visit Family and or Friends, and get them to visit you, I know you might not be up to it but one lovely Lady (Min) said on here that its better to expand your world rather than allow it to close into you.
Am sending…[Read more]
tom replied to the topic Three monthly check-up in the forum General 11 years, 8 months ago
Way to go Val 😀 well done you, am pleased to hear good news again 😎
All the best for your Move and don't lift too heavy a box 🙂
Love Tom Onwards and Upwards xxxx
tom replied to the topic How do I fill this empty hole in my life? in the forum End of Life and Grief 11 years, 8 months ago
Hi Jackie
I am so sorry you are finding it difficult to cope at this time my heart goes out to you.
I am fortunate to have never been in this place that you find yourself in so I cant say "I know how it feels" as I cant.
I am doing good but that said Like Dai I talk about it not only to my wife but my Sons also that way their will be no…[Read more]
tom replied to the topic my mum has myeloma. first time post in the forum Newcomers 11 years, 8 months ago
Hi Nerys
Your more than welcome, and as you say its good to hear about remission and long ones at that 😀
And just to add to the Good news I have been in remission since 2009 and drug free since 2012, and am selfish as I am asking for a longer remission 🙂
Good Luck to you Both
Love Tom Onwards and Upwards xx
tom replied to the topic Light chains down in the forum Treatment 11 years, 8 months ago
Hi Maureen and Ian
That's good news as you say I bet it was the Cake that did it. well done and good luck stay strong.
Love to you Both
Tom Onwards and Upwards xx
tom replied to the topic We have dates in the forum Treatment 11 years, 8 months ago
Hi Jacquie
Well done in getting it sorted, I wont tell you not to worry as you still will, I will just tell you, Take one day at a time and let it run its course its a doable.
Now go and put some weight on first.
Tom Onwards and upwards
tom replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
Hi Jane
Well am pleased your Bloods was Ok 😀
And I hope its soon when you start your CTD, Hope your Daughter and Son in Law have a safe move and weather keeps dry.
Yes Elaine and i have the grandkids often we have six :-0 not often we get all six together its a scatter here and their but we do have days when we know we will have them…[Read more]
tom replied to the topic Ian's birthday and MRSA in the forum General 11 years, 8 months ago
Hi Maureen and Ian
Am not shocked nor surprised by the way you both feel, as its been said many a many a time its hard bloomin work and i think its harder to be the "Carer" than the patient.
I hope you all have a great Birthday,we all know its not going to be a great big lets get this party started day, so a little bit less is more (as the…[Read more]
tom replied to the topic Chicken Pox !!!!!!!!! in the forum General 11 years, 8 months ago
Hi Sarah and Henry
I can tell you I had them as a child, and got spots again when I was in my late 30s and told Dr my wife thinks its chicken pox ??? He said You should listen to your wife more as she is correct. But be grateful it's not shingles ? So the answer is yes.
Hope he stays well from it.
Love Tom onwards and upwards xxx
Debs replied to the topic Zometa 'flu' in the forum Side-effects 11 years, 8 months ago
Just to say that I had my zometa last time over 30 minutes and it made the side effects much better than when I had it over 15 minutes. (Previously I'd had no problems with it).
I've been on zometa for about 3 years now (although I came off it for my transplant in 2011 – blimey it doesn't feel that long ago!), 18 months since transplant. I…[Read more]
tom replied to the topic leg muscle weakness in the forum Treatment 11 years, 8 months ago
Hi Ian
Thats Good and i hope that you dont have problems with your legs as am sure you have enough to contend with.
They say the Subcut is best way? am pleased you are confirming that.
I have fingers crossed for you Ian, keep well and hope your legs stay solid.
Tom Onwards and Upwards