Ps R/T is Radio Therapy the tell me its good for the bones 🙂 xx

Well Done Garry you have beat my 16 days of "Lockdown" stay well and in a few months you will be in Top(ish)Form 😀

Even when you are home Garry you are still recovering so take it easy and sleep when your body tells you.

Well Done and Good Luck

Tom Onwards and Upwards

Hi Ann and pete

Yes early days but its gonna be Ok 😀
Do you know when i was off I dint like the telly on nor radio I used to sit and read or go on Commie in between sleeping lol.
You should try and borrow a "Shooting Stick" for Pete I was given one and i carried it when out and when my back was bad or I felt tired ext I popped it open and…[Read more]

Lol Eve am sure only you could get away with this one Lol al probaly get told orf lol xxx

Love Tom xxxx Lol

Hi Sandie

Am pleased your Mum is getting better and hope the next round of Chemo is good for and to her 😀

As for the steroids well we all differ in what and how we cope with treatment but am sure am safe by saying a weight gain is civen on steriods (i did but i had lost a lot of weight due to MM (and I thought it was my diet ha ha) as for…[Read more]

Yer correct you lot its nice to be nice BUT Lol, and Eve am sure you shouldn't tell us Slim was having his curly's played with Ha ha xx

Love Tom

Hi Ian

well am pleased to seem to have found what it is hope the reductions work and your soon back on your feet (no pun intended Lol)

Keep strong

Tom Onwards and Upwards

Haha David,
I'm catching up on the site a bit late but this made me smile….and I needed that so thank you 🙂

Debs

Hi Dai

I'm going through the same feelings at the moment although I'm being far less careful than you, presuming that I'll be ok :-/ and hoping for the best!

I'm on maintenance at the moment and after nearly 18 months, my neutrophils dropped to 0.56!! They managed to get me up to 0.8 by taking me off revlimid for 2 weeks and giving me 5…[Read more]

Hey Eve when you go off in the Moterhome bring yourself and Slim down to Sunny Scunny we have a nice place for the capming fraternaty pretty near us in Sunny Scunny 😀

Andy

I was at work today when some one asked me how i was doing and as i started to tell him another workmate ? walked in and heard our chat and said "Oh are we on about…[Read more]

Hey Girls and Guys

As for lack of saliva!! its been a long time since i was in that position but I used Chewing Gum 😀 and I know a lot of you Ladies wont use it? but it worked for iccle ole me 😎
As for the food I was some time before i could eat big what i call Sunday Dinners, but it came back after about 6 months post SCT with a…[Read more]

Hi Rob
And a warm Welcome to you and well done to you.

After my SCT in 2009 (Dec) I went onto Zometa for 2 years am now in remission and drug free 😀
The Zometa might give you symptoms of Flu but that will soon wear off.

Good Luck and well done so far 😀

Tom Onwards and upwards

Hey Andy thats good so you say if you reach a a point then the drug company pay ALL cost of the drug??

Tom Onwards and Upwards

Hi Jean and Frank
Your welcome and hows things doing ?? you dont want to sit in hospital watching bad movie's get Elaine on Ipad for Face Time it will do you both good Lol.

You all stay well now and Dai you are correct.
We should have a thread Just for you dai as your words are words of Comfort and Wisdom my Friend 😀

Love Tom Onwards…[Read more]

Hi Georgina

you know I cant answer for your dad but i can tell you what I just might do if I was offered a 2nd SCT First I would look at how long i got in remission with the first, and 2nd how good the alternative is Ie the drug only route, when i got better from my one and only SCT I said openly that I wouldn't have a problem having a 2nd, but…[Read more]

Hi you two
Pleased its going good good luck for resuts on that dreaded BMB

Tom Onwards and Upwards x

Hi Louise

Not a problem its now a wait and mor wait 🙁 but in the end it is worth the wait 😀 , your dad and you all will be thinking will it ever get better (we did) and one day your dad will wake up and feel 100% Better, not his old self am sorry to say but Better 😎 and that is what all this SCT was for its good to feel that better…[Read more]

Hi Peter
Now I am confused (know it dunt take much lol) am now not sure who to look for on FB lol, is it Stevenson or James ha ha.

Tell your Middle Granddaughter to add me to yours and you can find me as tom.lappin.5 Me thinks but av got a photo on mine so you will spot me he he.

I also dont do good as its not as much fun.
Catcha soon…[Read more]

Hi Sarah and Henry

Its always strange when Meds change with no discussion :-S and am sure you do always ask?.
But I was on Zometa and had that for two years post SCT, just had flu like symptoms for a few of the treatments.

Sarah, Frank keep eye out for Jaw problems as it can have problems on the Jaw bone.:-/

Keep well.

Love Tom…[Read more]