Hi June

Sory to hear about your relapse,

had my CTD and Stem Transplant in 2009, but it kicked back in last december.#

I just had my Velcade (Cycle four week three)  I have Velcade, Dex and Zometa.

I am doing great with it albeit tired a lot but I listen to my body and when it tells me to sleep I sleep Ha ha.

I asked my Consultant Dr Jalihal…[Read more]

Hi Graeme

Not a problem, I found out that it had come back after having my regular bloods done, but in reality am sure my wife and i had known as i had lost weight again and that for us was an early indicator.

Bearing in Mind all MM patients  differ in how they cope from one to another even when on the same treatment that said I had to go on…[Read more]

|Well Good Folk, my tip for the dreaded Hiccups  is as follows :::

Fill mouth with water, put fingers in your ears (so you cant hear) and then swallow slowly SLOWLY.

Good Luck it works for me when i get them on Steroids and even the my family and friends everytime

Tom Onwards and upwards xxxx

Hi Lois

I have one or two

Hiccups My Cure when you get them ::: fill your mouth with water, place fingers in ears to block them, then swallow slowly till all water has gone, (works for me every time)

surround yourself with nice people.

be honest with Family and friends with how you feel, honest it helps you and them cope better

Listen to your…[Read more]

Hi Susie

Sorry in my late reply and am sorry I cant help as so far i have a little bit of back pain but its (or so am told) arthritis ???   am sure your bloods will tell your Consultant if the Myeloma has kicked in and my advice would be to talk to him or his secretary and ask for more bloods to be taken and let them have a look.

Good Luck and…[Read more]

Hi Graham

Sorry for the delay in my reply, but a warm welcome.

I am age 58 now and had my treatment CDT in feb 2009 leading up to my SCT in December 2009 was in remission and drug free for four years,

So what you are going through is a doable but you will have to listen to your body and when it tells you to rest rest its the only way.

My…[Read more]

Hi Keith

Well done you are running nearly 🙂 as for the weight loss mine was a fair lot but my Dr (GP) would have told me that should be my normal weight ha ha.

as for hunger am on it with the Dexam afraid but al cope with it and start to cut down. keep on going like you are Keith

Tom Onwards and Upwards

Thanks izzie.

yes I hope your new drugs help ease your pain.

Helen I am a granddad to six and our home has got toys from one end to the other these iccle toes are used to standing on lord knows what and lord knows how sharp it is, haha

love from iccke ole twinkle toes he he

Tom onwards and upwards x

Morning Rachel

sorry to hear about your Brother, and I wish him luck in the road to remission.

i was diagnosed in 2009, had CTD leading up to the SCT in dec 2009. That gave me four years remission and drug free.

my myeloma has returned and am now on Velcade and Dex, just started my fourth cycle on it and to be fair it’s treated me pretty good,…[Read more]

Stanley

Your More than welcome my Friend and to be fair helping others does help me so am sure i am being a bit selfish ha ha.

your getting on good with  your Bosses thats a good sign it makes the treatment bearable if you have one less worry

Tom Onwards and Upwards

Hi Izzie

Good Luck with the pencil in SCT but the sooner the ink is on the better lol,

I had a bit of PN  in 2009 whilst on CTD but not too much that it bothered me to be fair, just near got rid of it when the darned MM came back (was told December 5th) now on Velcade once per week subcutaneous and my iccle Dex, can just feel a slight change i…[Read more]

Hi Maureen and Ian

As if Lol, we had a great time in Chester its a great place, am sure we didn’t rest as much as we would have done abroad and it was nearly as expensive.

We would go back to Chester as we both loved it

Hope you two are doing OK

Love Tom Onwards and upwards xxx

Hi Stanley

Good Luck in your treatment, I was on CDT in 2009 prior to SCT same year.

I was four years clear and drug free after my sct  but as i knew it would come back it has, now on Velcade forth block first session go every Monday for it.

Back to the CDT I had to go on sick half way through my Third block and was off work for one year, that…[Read more]

Hi Keith

Sorry you have been unwell Keith, I went through that when I had mine in 2009, even post SCT i was near bedridden for about a month, the young bride used to make me a pack up and flask for me when she went to work (in case i wanted to eat ) it took its time Keith to be honest but one morning I just woke up and felt OK and i mean OK just…[Read more]

Honest I will look at the link to see why my pistol get half left x

big hugs Jo xx

Hi Jo

yes am sorry about that

Hi eaglesham

sorry to hear about your dizzy spells yes I had them when I had CDT in 2009, and to be fair I had to go on sick leave halfway through my third cycle, I was then off for a full year that took me through my SCT and recovery of that.

it put me into remission for four years so I feel it was worth it that so I am doing it again but this…[Read more]

Ps part post missing lol.

Good luck with yours
Love Tom onwards and upwards. Xxx

Lord knows why it leaves some out ?? Think I might be using the wrong ink lol ha ha xxxx

Hi Carol

Well post SCT I done a few months taking anti virals and anti sick, and Zometa ant ye Zometa was for just two years, apart from that I was drug free

Aww you have my positive attitude am sending a little bit to you today,
Hope ur doing ok ?? We are off to Chester tomorrow for a few days seeing as we can’t get in a plane decided to go in a posh hotel instead ha ha.

Velcade today but think am gonna save those little Dex tabs till tomorrow do I can party all night in Chester he he

Love to you…[Read more]