tom replied to the topic Harvesting for SCT in the forum Treatment 11 years, 10 months ago
Hi Peter
Well av seen a manky Butchers dog more than once to be fair Ha ha, well you will lose a bit but trust me it will come back with a vengance lol
I hope your Young Bride has a great Birthday and am sure you should be doing something on the 17th that will keep you out of bother.
Catcha Later and Take care
Tom Onwards and Upwards
tom replied to the topic Finished CDT in the forum Treatment 11 years, 10 months ago
Not a Problem Lisa hope Hubby (dont know his name? ) is soon better and bear in Mind the treatment and side effects differ from each of us.
Where is Hubby (name) being treated?
Love Tom "Onwards and Upwards xxx
tom replied to the topic I look like Smeegle…gulp(Gollum) in the forum General 11 years, 10 months ago
Hi Peggy
Am gonna Google "Smeegle" he he ?
Hope ur home now and all settled in? sorry you had a bad time but am sure you will get better soon, stick with it, it works.
Love Tom Onwards and Upwards xxx
tom replied to the topic Bendamustine Bombed? in the forum Treatment 11 years, 10 months ago
Hi Keith
Well you like to have a bit of a rough time dont you ? am sure i told you Nice and "Smooth" with a bit of Vodka and a few nuts keeps my Blips (thats what yours is am sure) at bay 😀
Am sure you aint gonna let it beat you Keith am sure you have more fight in you its getting near spring and am sure that helps us all M8.
If you do…[Read more]
tom replied to the topic Just got a diagnosis in the forum Newcomers 11 years, 10 months ago
Hi Deb
A warm welcome to the "Scary" place ?? well its not that scary its a great place for advice/help and a place to near cuss with all the problems that are thrown at us due to the MM.
I wont ask you not to worry because you will, I will tell you we have loads of Members here that have gone through what you are now going through and…[Read more]
tom replied to the topic Finished CDT in the forum Treatment 11 years, 10 months ago
Hi Lisa and Hubby
Am sorry Hubby is having too many infections? (what kind of infection?)
As for the CDT I was on that in 2009 it made me tired that tired that I went on sick during my 4th cycle 🙁
Lisa always keep an eye on his temp and stuff as the Dex can hide an infection, am sure you have been told to ring the ward that he was being…[Read more]
Debs replied to the topic Just got a diagnosis in the forum Newcomers 11 years, 10 months ago
Hi Deb,
Welcome to the site and I hope you find it as useful as I did….it got me through the first weeks and months after my diagnosis.
I would echo what Lorraine has said above. It is scary in those early days when even the terminology sounds scary! But it does all get easier. I smouldered for a year, then went onto the Myeloma XI trial where…[Read more]
tom replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 10 months ago
Hi Daniel and Dad
Am sorry your Dad is having trouble with his back 🙁 How long are you looking?? well truth is no one can say apart from the Dr who will have a good Idea, But my thinking is that it could be a long time as they are getting your dad ready for a SCT 😀
Stay strong Daniel am sure your Dad will be well looked after during…[Read more]
tom replied to the topic Relapsing in the forum General 11 years, 10 months ago
Hi Wendy
Hey I hope its just a Blip young Lady 😀 and your KL drop to normal, its a worry everytime we go to have bloods checked I worry about it everytime the date comes round :-S
Lets Hope all is soon back ro normal when you go Feb 😎
Love Tom "Onwards and Upwards xxxx
tom replied to the topic Newbie to this site and a carer in the forum Newcomers 11 years, 10 months ago
Hi Heather
Your Welcome, I am not sure which I have I am just pleased my consultant knows he he.
Love Tom Onwards and Upwards xxx
tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 10 months ago
Hi Megan and Phil
Don't nick it just take a photo of it,cos if you nicked it you would only bump into it at night he he.
Doing good you two keep it up
Love Tom xxxx
tom replied to the topic Dry tongue and mouth in the forum Side-effects 11 years, 10 months ago
Hi Tina
13 weeks is not that long to be fair I am oh lord knows how many months post I am and thirst is a Devil for me. And as for the sleep I also have a nap in afternoon.
It just takes time Tina.
Love Tom Onwards and Upwards xx
tom replied to the topic Harvesting for SCT in the forum Treatment 11 years, 10 months ago
Hi Peter
How you doing ? All set for it. It will go smother than that pint we are due .
Tom Onwards and upwards
tom replied to the topic hi from another newbie!!! in the forum General 11 years, 10 months ago
Ha ha I bet it is, I hope you don't get chemo brain he he
tom replied to the topic hi from another newbie!!! in the forum General 11 years, 10 months ago
Hi Steve
Pleased your doing well and as for getting dizzy if it was me my young bride would tell me I was born dizzy lol.
Keep fighting it steve.
Happy new year.
Tom Onwards and Upwards
tom replied to the topic Cramp in the forum Side-effects 11 years, 10 months ago
Hi David
And a Happy New Year to you, and a Happy 70th Birthday.
Never suffered leg cramps that often so never looked into it at all.
Hope the post from Michele works for you
Tom Onwards and Upwards x
tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 10 months ago
Morning Megan and phil
I tell you that stand is a Buger to get rid off ha ha, but it wont be long now before you see the back of it.
Re the bleeding after brushing teeth? well I hate to admite it but when I was having mt SCT when moth and gums got sore I never brushed but used Plenty of mouth wash a bottle used to only last me two days at a…[Read more]
tom replied to the topic Newbie to this site and a carer in the forum Newcomers 11 years, 10 months ago
Hi Heather and John
Sorry you had to join us but a warm welcome to you both.
I cant help you out on this as I have just had CDT then SCT in 2009.
Am sure some one will be on that has or is having that treatment.
Where is John getting his treatment?
Good Luck in the road to remission.
Tom Onwards and Upwards xx
tom replied to the topic So Alone in the forum End of Life and Grief 11 years, 10 months ago
Hi Sue
The posts above are correct.
A Hospice is one of the best places to go to have the pain sorted out faster than a GP or Hospital can do it.
I have talked to my young bride Elaine and said that I dont want her to have to care for me 24/7 am not fussed about going into a hospice for her to get a break and for Last stages I dont want to…[Read more]
tom replied to the topic Second Stem Cell Transplant in the forum Treatment 11 years, 10 months ago
Hi Chris
Good Luck in your new treatment I hope its fast and puts you and keeps you in remission for many a year 😀
Re the hiccups ? well My steward at our local drinking hostelry gets rid of everybody's and she has never failed.
get a glass of water (we do it with beer lol) fill your mouth DONT SWALLOW YET, put your fingers in your…[Read more]