Hi Sarah and Mum

A warm welcome to the forum, get comfy and ask away.

First I am ???? 57 and was told i had MM in Jan 2009 done the CTD (that made me go on sick) had the SCT in December 2009, was in Hospital 16 days but 5 of those were lost in sleep :-0
Now I cant give you advice on what yous Mum should do all I can say is that if I came…[Read more]

Hi Stewart,
I echo what Alex says above….I was 34 when I was diagnosed in 2009. Our children are now 8 and 6, 3 years down the line. But they are who help me to get through those darker moments when your whole world feels upside down. That said, I can only imagine how hard it is to go through those 'exhausted' early days whilst also dealing…[Read more]

Hi Karen

I was on CTD had five cycles of it leading up to SCT in dec 2009.
When I was on CTD I had the cough(still got the bugger lol) and as for the wishy washy brain I was told its "Chemo Brain" and it will come back???? but I think I got Chemo brain then straight into Old age lol

Few of us on here have F/B think am here…[Read more]

Hi Jill and Mum
I hope the new treatment for your Mum works, I am not sure why they stop treatment ? when its known to cause problems??

Good Luck to you and your Mum in the road to remission.

Love Tom "Onwards and Upwards" xxxx

Hi Jean and Frank

Well I was on CTD and I was taking "Granisetron" twice a day evry seven days, I cant recall feeling Sick while going through MY CTD but was felt it after SCT and did for over a month so get the anti sick tabs for Yourself Frank when you get sent home.

I would check for a sickness bug ? lot of it going around, so get well…[Read more]

Morning Keith

I also hope the Bendamustine works for you with little or no side effects (as if :-S ) lets hope it kicks its butt and give you a long long remission.

Tom "Onwards and upwards" xx

Hi Liz and Kev

Am sorry to read you both are having a bad time with the Bloomin MM 🙁

And hey Liz a tear here and their is good for you trust me been done tee shirted an all, am sure it will only be a matter of time before they get a comination that will work.

Stay strong you two its the best way hard at times i know like all of us here…[Read more]

Morning Chris and Lena

Yes the ward was a comfort as much as we wanted to get out and home 😀 a strange strange feeling :-S but when home for that day and a bit it all falls into place.

I was like you Chris 5 (ish) days when I was a bit too bad not wanting the young bride (Elaine) to visit as I spent most of it asleep, the nurses used to…[Read more]

Hi Chris

Well a warm welcome home and long may it continue 😀

As for me I was a wee bit scared when I was at home at the start ie not having a proper nurse on call and if it will keep n keeping better it worked and still is so you my Friend enjoy that Cuddle its a good healer 😉

Love to you both
Tom "Onwards and upwards" xx

Hi Karen

And a warm welcome to you, you have had some great advise from the group and I hope it has helped?

As you have read some peopls have placed the MM rthingie in box's shoved it in a cupoard under the stairs I have placed mine on my left shoulder in a imaginery brick box (with Lid 😉 ) and leave it alone(as best i can) for as long…[Read more]

Wendy Lovely Post very moving, I aslo am sad that we lose so many in a year and wonder why I am still here and in comparative good health.
Many Thanks for the Link, stray well and strong

Love Tom "Onwards and upwards" xxx

Well Done Ali's Mum 😀 Thats great news Ali, and yes its a hard year or tow to getting back to near normal but as your Mum health and strenth improves thats when you will say "Well that was worth it" and I hope thats not too far away now 😎

The "Onwards and Upwards" is not mine to give 🙁 but its certanly yours and your Mums to take 8-)…[Read more]

Good Morning Vicki and Colin

Yes It Looks like you are on the HOMEWARD BOUND Colin 😎
Its Good to Blubb its a release and it works :-D, am sure the pains will soon be sorted.

Love Tom "Onwards and Upwards" xxx

Ps am on here at this time of the morning because the three grandkids we are looking after are Up and At em Lol.

Hi Chris and Lena
Well I hope you are waiting for your drugs now and ready packed. Dont forget to get some Anti Sick Tabs as I needed them for a month or two after SCT :-/
Take care when you get home now is when the healing starts stay away from infections and you might (i did) need some sleapy pills also.

Vickie and Colin
It wont be long…[Read more]

Hi Stuart and Vanessa

A Warm welcome to the site.

I am Tom had CDT and SCT in Decenber 09 am now in remission and Drug free am pleased to say.
Good Luck on your road to remission as its a hard one some days but stick with it and stay strong you will soon be my side of it and it feels great 😎

Ask away and this is the place to vent out…[Read more]

Hi Vicki and Colin

Well Honest it is going the correct way and to be fair its one not to rush.

I didn't have Injections post SCT but I do remember them prior to SCT and yep it was Bloody awful, the pain was in my ribs,back and arms and my pain lasted about two and a half days, I was told it was theCells getting pushed out into the blood…[Read more]

aww Gill

Am sending you HUGS lots of them((((((()))))))).

I bet its hard to cope but am sure you know you have to, I cant tell you it will get better as i haven't been through it, but I show/read out these posts to Elaine (i think am getting her ready sad in it? )

Much Love and many thoughts from one teary eyed Tom xxx

Love Tom xxx

Hi Sue and Michael

Am sure that at anytime in anyones illness you are never wrong in asking Q's it may seem silly to you but if you are thinking it then its imprtant to you, so i would say ask away and get answers it might not alter the outcome ?? but trying and knowing is better so ask away
Thinking of you both

Love Tom xxx

Hi Vicky and Wide awake Colin 😀

Its Going Good you two (even though it dunt feel it or look it) the Dr wouldn't say "Home at week end" if he thought it was not a Doable 😉 If I remember correcltly I was still Ill a day or two before i was shipped off home and was even sick in toilet the day I came home (i dint tell them) but took anti…[Read more]

Hi Carol
Aww am sorry you have had that MM kick back in 🙁 but hey am sure your Dr will get something to throw it to the back of your mind pretty soon 😎
Stay Strong.

Love Tom "Onwards and Upwards" xxx