Hi Kerry

Good Luck on that and I dont envy you doing it as am told its a lot of hard work that takes up any spare and unspare time that you have/dont have? i dont want to put you off by the way.

But we have had a few on here that are and have done things for Myeloma Uk and its worked and will for those that are still being done be a great…[Read more]

Hi Mike

No problem re the reply time as and when thats what this group is all about 🙂

Yes My SCT went great (little uphill) and well worth it, would I do it again?? Too True I would now doing good and drug free, you my friend will be the same.

Good Luck

Tom "Onwards and Upwards"

Hi Chris

Good Luck My Friend and hope its a smooth one.
Keep well and healthy

Tom "Onwards and Upwards"

Hi Vicki and Colin

And a Lovely Looking Couple if you dont mind me sauing 😀
Am sure you will cope with the flurry lord you have been doing it for long enough now He he. I hope its a printing error but ad give them a ring to make sure its not this thursday I would hate you to miss the day after all this time, I used to love Krypton Factor so…[Read more]

Hey Kerry That my Girl Is Normal, I am the one with MM so am being looked after by my lovely wife Elaine (the young bride) I was told in Jan 2009 that I had Myeloma, done the CTD then the SCT (all good now) BUT Prior to my MM Elaine (the young bride) was told in Jan 2008 (yep one year prior to mine to the day near as) that she had breast cancer…[Read more]

Wow are we seeing new photo's here 😀 all looking great.

Keep strong you all looks like winter is dragging itself closer for us 🙁

Love Tom "Onwards and Upwards" xxx

Hey Andy and Steph

Well you are avin to give this a good fight M8 🙁 but I know you can both do it 😀

Its an Uphill battle this MM when it runs smooth so I do feel for you two, I hope you get a good Match near home.
Keep strong you two

Tom "Onwards and Upwards" x

Hi Mary and Charlie

Am sure the Drug free will come to you two also mine was over two and a half years before I stopped taking them :-/ but well worth the journey 😀

Good luck for tomorrow 😎

Love Tom "Onwards and Upwards" xxxx and the odd glass of Vodka xxx;-)

Hi Vicky

Your More than welcome and I hope you are all going through this as well as you can yes I still think about you all after your Loss.
Take Care and be strong.

Love Tom xxx

Hi Polly

Sorry you had to start treatment 🙁 but my advice would be "Take one Day at a time,rest when your body tells you, and more important use this site to ask complain and have that moan that I know you will have from time to time" but its well worth it.

Keep well and stay strong

Love Tom "Onwards and Upwards" xxx

Way to go Keith, Keep well and stay strong 😎

Tom "Onwards and Upwards"

Hi jean

PP levels definitely don't need to be zero…they were going to do mine when mine were at 28 still!! And they had only halved from 50! I am pleased that I got down to 8 when I had my transplant, but 0 definitely shouldn't be a requirement. They probably just want to check he has plateau'd before they make the decision…but I would…[Read more]

Thanks John.

One of the issues is that when you're on trials like the Myeloma XI trial, they won't let you have it sub-cutaneously (or at least they wouldn't a year ago when I was on it!!)

Not sure about how much revlimid is known to cause PN so need to ask more at my appointment next month….didn't think it was a major side…[Read more]

Hi Megan.

I was on velcade too and found that cold feet were the start of neuropathy. So glad that Phil has had the dose reduced as I tried to stick it out and it got worse and worse, to the point I had to have medications to try to relieve the pain…and they didn't always work! Luckily 6 months post velcade/ SCT things started to improve and…[Read more]

Hmmm… I hadn't even thought about it and have to say that I went swimming after about 6 months as my kids were desperate to go with us, and I was sick of making excuses of why I couldn't do things with them all the time. I spend my life around snotty nosed kids coming over to play and so can't really miss these things.

This summer we went to…[Read more]

Hi Sarah Jane

I am quite close to you as I live in High Wycombe!

I was diagnosed in 2009 with SMM and then progressed to treatment about a year later (although I now get treated at the Marsden in Surrey). I also was put onto the Myeloma XI trial in November 2010 and got revlimid first time. It worked for me for 4 weeks and then I plateau'd…[Read more]

Hi Amanda and Bob
Well I dint have any trails but I was on CTD in Feb 09 for 5 cycles (28 day) then SCT in December 09, now drug free and doing well 😎
Its all doable Amanda, but it has its bad bits am afraid but in the end it works out OK :-D, so four years this next Jan since I started my road to remission and that has been achieved 😎 and…[Read more]

Dear Ann

I am sorry to read about The loss of John in his hard fought battle with MM.

Love and Hugs to you and your Family at this sad Time

Tom xxx

Dai Why oh Why do you seem to do it most of the time????? Yep I had a tear in one of my eyes you burgar 😎 its great dai and much too good to be spoilt by adding my name to it.

I Know you will be well for the big day and am sure every one will loove it.

Tom xx

Hey Nettie

I wasn't told to avoid it but I did (aint too good in water lol)
My Young Bride was told to avoid indoor pools (for 121 months) after she had Radio therapy when she had her op for breast cancer but wal Ok to go in the sea.

Keep well

Love Tom (cant swim well) "Onwards and Upwards" xxx