tom replied to the topic newly diagnosed in the forum Newcomers 12 years, 2 months ago
Hi Ray
And a warm welcome to you, Just wanted to tell you ask Away no Q is too silly for us lot ha ha.
Good Luck with your Road to remission.
Tom "Onwards and Upwards" x
tom replied to the topic So Sad in the forum End of Life and Grief 12 years, 2 months ago
Hi Sue
All the things you say in your post are so true but trust me Sue you will get through it and the counselling is a good way to start, I had a bit after my SCT didn't think I needed it didn't think I was weak to need it? DID I NEED it ?? too true I did, started to feel better before he stopped for coffee 😀 had a couple and if I felt the…[Read more]
tom replied to the topic So Sad in the forum End of Life and Grief 12 years, 2 months ago
Your More than welcome try and stay strong Hugs for you xxxx
tom replied to the topic Second SCT underway at last in the forum Treatment 12 years, 2 months ago
Morning Mari and Steve
Well lets hope its faster on the way back up for Steve, its a long wait (or seems it) waiting to get ill before you can get better :-S strange as it is, the sooner they work out how to make you better without making you Ill will be a blessing for everybody 😀
Thinking of you on the Road to remission.
Love Tom…[Read more]
Debs replied to the topic New diagnosed with SMM at 43yrs in the forum Under 50s 12 years, 2 months ago
Hi Sarah Jane
I've dropped you a reply on the other page so give me a shout if you want to catch up
take care
Debs
Debs replied to the topic Charity Event: FIghter's stories in the forum General 12 years, 2 months ago
Hi Tessa,
I would be happy to say…..my email is gascoynedeb@gmail.com
MUK have been my lifeline…and like you I am doing much to help them raise money as it is the only way I can truly thank them.
xx
Debs replied to the topic Remission in the forum General 12 years, 2 months ago
Dear Sarah and Henry,
I haven't been on here for ages due to doing the Ball, but am so pleased to have read this update and to see that things are going well. You must both be feeling chuffed to bits!!
Make sure he continues to take things easy…it really does take up to a year to get back to things full on, but then…and I really mean it,…[Read more]
Debs replied to the topic Newly diagnosed with SMM in the forum Newcomers 12 years, 2 months ago
Hi Sarah Jane
Sorry to hear you have had to join us all, but I'm also glad you found us!
It sounds like you've had a similar story to mine…I was diagnosed at 35 with SMM with a pp of about 30 too. I slowly increased like you and eventually because of suspected bone pain in July 2010, I started treatment at the Royal Marsden.
Life will…[Read more]
tom replied to the topic So Sad in the forum End of Life and Grief 12 years, 2 months ago
and if this works I copied (am sure its Ok 😀 ) the why the "Way Up" was started.
[b]A brief History of Way Up
In the Spring of 2009, I asked the then Chairman of WAY, Caroline, if there was anything I could do as a WAY volunteer.
Being over 50 myself, it seemed a good idea that I look into doing something for the chronologically…[Read more]
tom replied to the topic So Sad in the forum End of Life and Grief 12 years, 2 months ago
Hi everyone I done the google for you as Min suggested and here is the Link http://www.way-up.co.uk/ just click the link or "Copy and Paste"
I hope it helps for those that need it.
Love Tom
tom replied to the topic Second SCT underway at last in the forum Treatment 12 years, 2 months ago
Morning Mari and Stephen
Well done on the SCT its now as you know a waiting game for Steve to get it all put together and start the healing part. Good Luck to you Both and dont forget mari you also need to rest 😀
Love Tom "Onwards and Upwards" xxx
tom replied to the topic My dad… in the forum Treatment 12 years, 2 months ago
Hi Joanne
Sorry to hear your dad is still not getting better, but am sure when they find one that Fits your Dad he will be doing good then its just trial and error for most of the time.
Cant help with the velcade But wanted to wish you and dad Well
Love Tom "Onwards and Upwards" xx
tom replied to the topic Radiotherapy in the forum Treatment 12 years, 2 months ago
Hi Tina
Well done on that Collection Girl 😀 am proud of you 😎
As for the RT I haven't had any but my young bride (Elaine) had 25 sessions of it due to breast cancer 🙁 and yep she was tired but it went well skin started to burn a little near the end of the treatment but they gave her cream to use. Elaine is doing great now and is…[Read more]
tom replied to the topic Mother in Law newly diagnosed & with complications in the forum Newcomers 12 years, 2 months ago
Hi Balders
A welcome to the site I hope your Mum is soon sorted, am sure some one will pop in and say a few things about the treatment and side effects your Mum is having.
Good Luck on your Mum's road to remission.
Tom "Onwards and Upwards" xx
tom replied to the topic Remission in the forum General 12 years, 2 months ago
Hi Sarah and Henry
Wished you well on "Twitter" and am gonna do same here 😎
Well done you two you are now "Onwards and Upwards" enoy the remission I am 😎
Long may your remission last 🙂
Love
Tom "Onwards and upwards" xxxx
tom replied to the topic Hair in the forum General 12 years, 2 months ago
Hey Girls as a mere "male" I can only add I was nearly bald before SCT and went Bald then Back to Nearly Bald was my hair brittle/dry ?? I aint a clue (am a male) but Hope you get it sorted and some better answers than I have gave 🙂
Lots of love Girls xxxx
tom replied to the topic Helps me in the forum End of Life and Grief 12 years, 2 months ago
And am Sure it will help others Thans For sharing.
Love Tom xxx:-D
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 2 months ago
Hi Vicki and Colin
When Colin's Back is not too good then that calls for a lean over and a shoulder charge 🙂 and am sure that will work just as well but it needs plenty of screaming to go with it ha ha.
You two enjoy the week 😎 it aint gonna be warm but it will soon be christmas ha ha
Love Tom "Onwards and upwards" xxx
tom replied to the topic Second SCT underway at last in the forum Treatment 12 years, 2 months ago
Hi Mari and Steve
Am wishing all good things for the SCT I hope its a fast recovery and soon out and getting fit.So head up and straight in 😎
Love Tom "Onwards and Upwards" xxx
tom replied to the topic SCT… update in the forum Treatment 12 years, 2 months ago
Hi Etta and Craig
Its No problem Etta and you are Both more than welcome 😀
Etta am plesed you are starting to feel better, when I was getting better (and I could tell) I used to count the days then the months and each day was getting better (still had the odd off day :-/ but then dont we all 🙂 ) stopped counting the "Good Days" after 6…[Read more]