Hi Joanne

Sorry I seem to have missed this post? so a late welcome to the forum.

As the great members here have said its a rolercoaster ride getting remission with this MM but it is doable as I like many can confirm.
Just a run down on mine (am now 57) found out in Jan 09 I had MM, had 5 courses of CDT then harvest leading up to Stem…[Read more]

My Dear Gill and Stephen

I am so sorry to read about you Stephen and your MM grabing you so hard and so Fast, Stephen and Gill my thoughts are with you both at this moment (and have been as am sure you know for a long while) Stay Strong Gill I like most wish we could take the pain away for you and heal Stephen but am afraid we cant.

One…[Read more]

Hi Les and Welcome to this Merry Band of folk ? yes we are merry most of the time 😉

Think Eve has coverd most of it so at the moment I will wish you all the best in your trip with MM

Tom "Onwards and Upwards"

Hi Newbie

I cant add to this one as i haven't had Velcade, but wish your dad well in his road to remission.

Tom "Onwards and Upwards"

aww thats Nice but Dai my Friend as we all know you are the ones with the words for the wright occasion 😎

Hi Keith

Well we are doing this the hard way 🙁 but I think its a Man thing?? we know its on its way but we/I sit and wait it out where we should be knocking on the Dr's Door at first sign of dodgy problems:-S

Am pleased you are better to leave Hospital they aint that good for ur health :-0 I was skin and bones when I first got MM but…[Read more]

Hey Andy
Sorry its not Hot where you are the sun is out with a vengance here and I am off to the pub in half an hour or so, you and I will be having a well earned rest and a pint.

Tom "Onwards and upwards" 😎

Hi Peter

Am not sure about your level's am one of those that if the Dr is smiling then am Happy 😀 dunt work for most but works for me and my young bride 😎
Dont worry about how much you are costing the NHS am sure our Goverment dont worry about the ££££££££ they send to country's that dont need it nor want it?
Yep My Gaffers need that me…[Read more]

Hi Vicki and Colin

I did as you asked and crossed everything 😀 my legs were crossed that much they had a struggle to get me home from the Club last Nite:-S

Andy am pleased your having a great time sham about the rain though? you should have come to "Sunny" Scunny as its been pretty good here 😎 nearly burn me bald head Lol

You all…[Read more]

Hi you all, well well spotted that Jean you ought to play for Scunthorpe United Lol. yes some psts have had me think and for that reason I have left them for a bit 🙁 sad I know but I dont want to feed sicko's anywhere let alone on here.
Now we all know how/where to report it to well done the Tech folks x

Hi Pat

Your more than welcome and I hope all goes well today and things are soon sorted

Keep well

Tom "Onwards and Upwards" x

Hi Tina well done and Good Luck girl

Love and Hugs

Tom "Onwards and Upwards" xxxx

Thanks for that Stuart, but I aint noticed any? (unless its mine lol)

Cheers Tom "Onwards and upwards"

Hi Chris

Well done to you and your team for getting the funding, and as for the hair I lost mine in bits and bobs so decided to shave it all off and keep it off til it felt like it was gonna grow? but it still misssed the middle when it grew back lol.

Enjoy Marriage I do (just daren't ask the young bride if she is lol)

Tom "Onwards and…[Read more]

Hi Peter

I love your specialist (b)

Its great no have no bone damage when first told you have MM, I still have none but have the ache's and pain's but am told not mm related (just older age)

BUPA is good my young bride (Elaine) was in a private wing at our local hospital (Scunthorpe General) after an op due to no beds in rough end :-/…[Read more]

Well Thats great News David and a well done to you (red wine works on all lol)
I bet you take those pills with a little smile knowing thats its on the outside (bad enough though) 35 doses of R/T is a lot (my young bride had 25) but it will be well worth it 😎
Having Prostrate problems has also checked your bones so you got a two for one…[Read more]

Good Evening Pat

And my vote is of course you can stay 😀 you opened the Group door you made yourself known an I for one Like that 😎 so pull up your comfy chair and let me and folk like me what "Just AL" is all about.

I wish you a trouble free journey with AL (note to self go check it out)

Tom "Onwards and Upwards" xx

Hi Vicki and Colin

Am pleased for you both that it was An "OK" Day 😀 I bet you did have those extra Q's to throw at them and well done yopu for doing so 😎
Fingers and anything else that I can cross will be crossed.

Love
Tom "Onwards and Upwards" xx

Hi Peter

Yes 3l min of fluid i add vodka red and beer to mine and so far it aint done me too bad Lol.

I was told I had a bruised rib or a pulled muscle ? which turned out to be MM am pleased I asked for a 2nd Opinion and got that same day both Dr's said same and I said I didn't thin k I did so Xray/bloods and as they say the rest is…[Read more]

Hi Jacqui

Good Luck with the trial and I think same its a treatment that they aint sure about ?
Good Luck for your start on thursday.

Tom "Onwards and Upwards"