Hi Judd,
I don't live in London, but in High Wycombe and have family and friends in London.
I would definitely recommend the Under 50 that Scotty and Phil run, but I'd stay on here too…they both have lots to offer!
Not everything is inevitable so try to keep positive – though I think that is harder when you are first diagnosed, it becomes…[Read more]

Hi Charlie,

I think everyone has pretty much covered things and I even wondered about not replying! But I thought I would say good luck with the Myeloma XI trial and tell you how well it has worked for me.
I got randomised to revlimid and had 4 cycles of that which brought my pp levels from 50 down to 28 – then I plateau'd. I was gutted. I…[Read more]

Good luck with it Nicola!!!

I know how hard it is to organise these things so well done to you for doing it and I hope that you raise loads and have a great time at the same time.

Debs x

Dear Gill,

I am really sorry that you are reaching this difficult time for you and Stephen. Like Tina has said, I hope that you are able to make the most of every minute with him (and that the short temper isn't too horrendous).

Thinking of you
Debs xx

Lol yes it would help if the details are posted also lol.

all great here Nicola thank You and yet again its sunny in Sunny Scunny 🙂

Tom xx

Hey Gill

Denial is Ok but am pleased the 14 specialist are not in denial and are on it, but what did they say??
As for the temper thing I also am like Stephen I genually dont have one BUT have told The Young Bride (Elaine) that as and if it comes to me losing the plot so to speak I certanly dont mean what I say.

I also cant give you that…[Read more]

Dai what is it with you and week ends? Bless it always happens at w/ends.
Hope it soon settles before the 5pm mark? and that aint long now??
Good Luck Dai

Tom "Onwards and upwards" x

Hi Nicola

Good Luck for your Charity Event am not sure if I am Local as I dont know where it is going to happen??

Love
Tom xxx

Hi Carol

Am Pleased that on both things 1) you are doing great after your SCT and 2) you know that you cant do as much as you used to, and i think that is the hardest thing "the not being able to"?.

And Happy New Hair Brush 😎

Stay fit and well Carol.

Love
Tom"Onwards and Upwards" xxx

Hi Eve and Slim

Am pleased to read Slim is getting better, and trust me you never stop the worry when you have been told you have MM Eve its something that we all have to cope with these days.
Slim will be better when the line is removed less to get infected so thats good 😎

Hope Slim is up to going on the train to London as it will make…[Read more]

Good luck ANdy….really hope you get some answers and a good plan for you.

Will keep an eye out on fb for how it goes!

x

Chris, that is amazing news and like the others say, thank you so much for sharing your great story.
I don't think any of us find it easy to think that we have 20 years ahead of us….I try to be positive, but at the back of my mind is that it is very unlikely. But stories like yours are so important for us to hear so that we start to REALLY…[Read more]

Hi Ali

Good Luck to your Mum on the road to Remission, its a hard rough ride but one that is well worth it.
Advice?? well I think Helen has covered a lot of it and I say take the Mouth wash every time your Mum nips to the loo or just feels like she has nothing to do the more mouthwash used the less problems (it was for me anyways) and the…[Read more]

Hi Charlie

I think you know I was on CDT then the SCT I had in Dec 09 and its some time down the road and I am now Drug free so trust me Charlie the trip is worth it its hard its long but its worth it stick with it and no sooner said than done.

Re the "Hick Ups" our Land Lady at our pub sorts all of those out by "Getting you to fill your…[Read more]

Hi Wendy

Well your Nurse is correct, I am told that the tests over a period of time go up/down (no wonder am confused) but your Nurse is wrong in saying "tests were expensive and cant be too frequent when not on treatment." well am sure if it needs treatment the sooner the better.
I would get in touch with the Top Man and ask if you can have…[Read more]

Hi Andy

Well Done M8 and am sure that Tuesday will soon be here (I hate waiting)
And never worry about it yet excited is better 😎

fingers crossed for you

Tom "Onwards and Upwards" x

Dear Teresa and Judy

I am so sorry to read you have both lost your loved ones to this dreaded MM. I send my Love and Cyber Hugs to you both at this very sad time.

Love and Loads of Hugs

Tom xxxx

Aww bloomin Ummm… on your behalf Dai, Bless I bet you both have got your heads spinning am I aint I Ummm… again.

Its strange though the more folk you talk to (even none MM folks) seem to get ill during the night/w,end whn its harder to contact the People we need:-S
Am pleased it is the best you have felt for a few weeks Dai lets hope that…[Read more]

Hi Dai
Well am sorry to read about your still not "Just Right" and being Just not right is wearing and a bloomin nuisance to say the least.

I hope you are soon sorted and dont forget you can collect the "Stool Sample" at home 😀 , and you can cough in here all you want my Friend to clear your chest 😎

Hope you are soon proper better :-D…[Read more]