Hi Tony

Welcome to[u][b] your [/b][/u]new group

I am same as David nowt special just MM 😀 CTD front line leading to SCT Dec 09 now fit (ish) and well 😀

Keep strong and this is the place when it gets a bit too much to have a moan and groan we all know what its like

Tom "Onwards and Upwards"

Thanks Ellen,
Just need to stay in remission for a good 4 or 5 years or more and hopefully there'll be some trials in the UK by then…..or maybe we'll be even further along the line 🙂
Always good to have some hope in the pipeline!!!
Look forward to reading MUK's work on this next week
Debs x

Great News David 😎 and am sure when you are all worked up at your Home you could visit mine am sure we have lots of stuff that needs fixing Lol

"Onwards and Upwards" My Friend 😀

Hi David,

Yes I think they could well be part of life. I had my SCT in July and have only really had 3 weeks since the beginning of December where I've been without any sort of illness (wish I'd been on the antibiotics you were on!!!)

Paracetamol and lemsip cold and flu are my lifeline these days!!! I keep them in business I think.

But…[Read more]

Does anyone from MUK have any news on whether this is a drug we should be excited about or whether it is too good to be true….first time in ages I have been positively optimistic about what could be ahead of us, but I am wary as nothing was mentioned about this sort of vaccine at the info day.

Hi Jet

Great link and I for one would be up for that if I ever need it 😀

Tom "Onwards and Upwards" xxx

Hi David

Well cough's and cold's :-/ I have to admite from having my SCT I have never coughed nor had as many poorly chest's that I can remember :-S and I used to smoke but am sure the gunge that built up in my lungs must have gone by now Lol 😉

But if all I suffer is the bloomin cough and the odd bad chest then am sure I will cope with…[Read more]

Hi Dai

Well your last post made me chuckle Lol, am not sure how you could have a "Elegant Sling" you must post a photo :-).

But I am very pleased you are well on the way to being sorted.
I am sure that's what I would miss the driving so your not bad as you can take the sling off to drive, just dont alter the rear veiw mirror.

Its great…[Read more]

Hi Jill

I am pleased your Mum is doing good on the velcade 😀 and i hope it stays that way.

All the best to you and give your Mum a cuddle from me xxxx

Love Tom "Onwards and Upwards" xxx

Aww Dai

You have been Janet's "brave little soldier", and I remember saying it could be "An age Thing" sorry M8:-/ and I know its a strange thing to say but at least you now know its a fracture and I bet your "well being " is better as you now know what you have to fight and you just might get less pain.

Good Luck with the "Coller and cuff"…[Read more]

Hi Helen

I had my SCT in December 09 but I went on sick in May 09:-( I was due to have one but they cancled it after they found out mine was "Reminal" (sorry folks for those word's :-S )

I wanted to go back to work its what kept me going on BAD Days, but all My Consultants and lead Nurses said I shouldn't go back to my work again as its too…[Read more]

It's frustrating though that there is limited support out there. I just about get the ESA (although am waiting for them to question that!) but am not eligible for DLA as I don't need support with caring for myself – I can just about cook etc but we have a cleaner as I don't have the energy for that. I wish I'd applied for it when there was NO WAY…[Read more]

Hi Helen

Think Paul has covered most things. I used to work in HR before all of this although it's been a while since I was on the advice side of things.

THey have a duty of care to see if you are fit for work….they shouldn't be asking you back if you aren't, but as with all business, are likely to take the view that if you are fit for…[Read more]

Hi Kirsty,

We'd all be lying if we said that the SCT was a lovely experience, but you do get through it!

The main things are to keep people away as much as possible for the 3 weeks you're in, and if possible for a month or so after. I only let my husband, and one of my 5 siblings visit….my parents and the rest, I made wait. I thought it…[Read more]

Hi Kay,

I'm with the others…think you are amazing to have gone back to work so much. I think about it and then know that I can't when i get ill from just overdoing it with the kids and looking after the house.
I suppose where you get joint pain, I get coughs and colds and exhaustion.
Perhaps think about doing a bit less if your work are…[Read more]

Hi Stephen

I am so sorry to read about your Wife I send My Condolences to you and your Family.

And well done to you all for raising that ammount of money for us all.

Stay Strong and remember the good days

Regards

Tom x

Bloomin heck Dai I bet that was scary :-0 I am pleased Janet was on the ball 😎

I have always been told if I feel Unwell then I should phone the ward up and talk to them and they will make the decision whether to pop up or stay at home, I have used that adout three times so far and it works for us 😎

Hope all goes well for Tomorrow Dai…[Read more]

Morning Mavis

My we are going through the wars 🙁 but going the correct way 😎

I wont be In Chapel today But I will say a prayer for us [u]all[/u] Today and hope that it helps us all am sure today is the day he will listen 🙂

Tell Gordon that you are correct its a temporary loan you are having with the stuff.

Mavis I was on CDT…[Read more]

Hi Dai,
I don't tend to post regularly anymore because I find it all a bit tough at times.
Post transplant, I have been pretty much constantly ill with coughs, colds and illnesses. That alongside trying to run my family in some sort of normality,and organise my ball just takes it out of me, so I suppose that is perhaps the same for others.
I…[Read more]

Morning Dai

I have had same over the months and told my Consultant and he checked me over and put it down to 1)Old age ((ish)) and 2) just doing too much and he tells me its not MM related so I will go with that. same symptoms as you Dai that bad toothache but in shoulder (right one) and down the arm, if I stretch the arm I get a sharp pain…[Read more]