Hi Valerie
Not sure how I missed this post?

But am Pleased it is getting sorted out, have a great time in Venice (Am jel)

Love Tom "Onwards and Upwards" xx

Hi Chris

Pleased you are doing good (well as good as we can be) The blue badge is a godsend saves you money and park nearer to where you need to be (cept in Scunthope General Hospital).

I tried to get something from the State and all I got was £63 per week and when I went back to work after a few months I got told by tax man I owed them…[Read more]

Hi Dai

The frozen shoulder being a new area of MM can you throw more light on that for me please as I have discomfort rather than pain in my right shoulder (lol i hade to check which side it was on L/R lol)

I hope you dont suffer too much on the early days of your treatment.

I dont kow if you buy water I used to as our water aint that…[Read more]

Hi Sue

Yes am sure it is all down to the cost :'-( and that makes me angry.

Good Luck for the bloods next week

Tom xxx

Hi Terry

Re work ::::: I had my diagnosise in Jan 2009 was working still, I work on an Inland Dock loading and unloading Ships/Lorry's which is hard physical work and the treatment I had was CDT.
I had 3 cycles of that and was too tired to carry on working so went on sick may 2009 I had a total of 5 cycles of CDT and my stem cell transplant…[Read more]

Hi Sue

Am so sorry to read that Michael is not able to fit the criteria to help him? how bad do we have to be to fit the bloody criteria :-S because for all intent an purpose we are all dying this Bloomim MM is at the moment a Terminal Illness so we should fit the criteria or am I just too thick to understand it all:-S

I dont know what…[Read more]

Hi All

Well I love the Irish they are great people but I cant stand that black stuff they Make 🙁 but that said it might be better in dublin? who knows I just might try a trip to dublin and try a half?, hope you all are enjoying your 3 ltr of fluid ? lord knows how much vodka I had last nit lol

Love Tom "Onwards and Upwards" xxx

Hi Joe

I am sory to read about the sad loss of your Dad, I send my condolances to you and your family.

Stay Strong and know that your Dad is no longer in pain, remeber the good times and put the bad days to the back of your mind.

Keep in touch and hope all goes well for the funeral.

Regards Tom x

And a lovely Photo it is 🙂

Tom "Onwards and Upwards" xx

Hi Tina

Yes it is hard to do but i was told 3 ltr a day :-0 and that can include tea, coffee and or fruit juice I myself have also added to that list "Vodka,red wine and of course beer" ha ha.

Good Luck and Happy Drinking 😎

Love Tom "Onwards and Upwards" xxx

Hi Amelie

There is alays a chance for a long remission with the 2 SCT yes I know that some dont last that long but we all differ in the way that the treatment works, I honestley cant answer the reason why some work and some dont :-S Lord I wish I could.

Please take care and I wish with all my heart that John has a long and trouble free…[Read more]

Hi Amelie

Sorry to read that his SCT only lasted for a short time, and hope that his 2nd one gives him far far longer, please give him my regards

Tom "Onwards and Upwards" xx

And a warm welcome from Me Terry.

I just wanted to wish you a good journey with your MM and am sure you can keep us all up to date with new treatment .

Keep strong

Tom "Onwards and Upwards"

Aww Bridget

I have read and re-read your last post I have sat her thinking what I can say, and the only thing that keeps popping into my head is (and forgive me ladies and gents) "Bastard MM", sorry bout the cuss word on your post Bridget :-S

But I am with the rest that have already posted and those that will follow my post is to say You…[Read more]

Hi Roz

Did I Post a photo of my breakie? I cant find it on Facebook??
Am doing great Roz and I hope your doing Ok also

Love Tom xxx

Hi Gem

First My condolances for the sad loss of your Dad and next Many thanks for your offer and support for all of us who have or care for those MM sufferers.

Love Tom "Onwards and Upwards" xx

Hi Jacqueline

So Sorry you had to join the site but a warm welcome to you and your Dad.

Ellen is correct well about me anyway I dont know anything nor have I read anything about MM in the brain I just wanted to welcome you to the site and wish your dad a Good Journy with his MM.

Tom "Onwards and upwards"

Hi Dai

Well its so good so far 😀 and as for the general fatigue.. well I get that and as you know am on Nowt, so am putting it down to "Old Age" well for me that is Lol.

Keep it all going we are all with you 😎

Tom "Onwards and Upwards"

Thanks Kay and yes I do hope it helps to hear good news also I am sure more and More folks will be soon Joining me on the "Treatment Free" Regime.

Love Tom "Onwards and Upwards" xxxxx

Hi Andy
A warm welcome to this warm Site and am sure as you have read a bit you will already know that we have some great folk on here.

Enjoy and ask and tell away, good luck with your road to remission

Tom "Onwards and Upwards"