tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 6 months ago
Hi Sarah
Gosh you have your hands full I can see, and am sure its stressful for you all.
I hope you take some time out for yourself?? as you will need it.
Congrats on the New baby they always bring an extra sparkle to people don't they.
Keep well and say Hi to your mom for me.
Love Tom Onwards and upwards xx
tom replied to the topic CTD and depression in the forum General 11 years, 6 months ago
Hi Georgie
Welcome to you and your Dad.
Its not an easy task this MM lark and if Dad needs to pop a few more pills and sit and have a chat with a Councillor am up for that I have done Both during my CTD and SCT and am now spot on.
Good Luck with your Dad and his on going treatment.
Tom Onwards and Upwards x
tom replied to the topic Being Thankful! in the forum General 11 years, 6 months ago
Hey Mavis sorry I must have missed this post :-S you must be nearly 9 months now 😀
Yes am sure glad of those that make the drugs and those that do the trials.
Keep well Mavis
Love Tom Onwards and Upwards xxx
tom replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Karen
A warm welcome from me also 😀 .
I see you have put the kettle on that's good to see you have got comfy already well done you 😀
As for me ?? long cut short 😎
Diagnosed in Jan 2009 had CTD leading onto SCT December 2009 am now age 57 and sit here well and drug free 😉 , the road to remission was a bit bumpy at times…[Read more]
tom replied to the topic SCT not worked -help in the forum Treatment 11 years, 6 months ago
Hi Christine and Chris
Am sorry to hear that Chris is having it rough. but as has been said the SCT is not the best its said that MM can be controlled with drugs alone its jut finding which ones will work on Chris.
Stay strong you two
Tom Onwards and Upwards xx
tom replied to the topic Counselling for Henry in the forum General 11 years, 6 months ago
Hi Sarah and Henry
Its a bugger these chest problems I seem to have too many and I don't bloomin smoke now??.
Now I understand how Henry feels, we had a councillor at the hospital in hull where I had my SCT I used that and he was pretty good 😀 dint even kn ow I was having it till I started to get a bit weepy 🙁 but Hey it worked 8-)…[Read more]
tom replied to the topic Well – we got around it! in the forum Off topic 11 years, 6 months ago
Hi David
Well that's a shame I could have used your contacts for a discount Ha ha, great hotel group is the Marriott 😀
I bet you make them jump when you go into them lol.
Stay well and hope the weather soon picks up for us all
Tom Onwards and Upwards
tom replied to the topic My brother. in the forum Newcomers 11 years, 6 months ago
Hi Nicki
I am so sorry to hear of your loss, My condolences to you and Adrian's family and friends.
Am sure it wasn't easy for you all and am sure you need answers to the why and hows.
Stay strong
Love Tom x
tom replied to the topic Well – we got around it! in the forum Off topic 11 years, 6 months ago
Hi David
Am pleased you had a great time, and am sure the "My Old Lady" was pleased you done it looks like you had good weather 😎
Dads grave you look like you are lifting it up to have a look inside? great stone. just one Q ?? are you related to the Marriott Hotel chain ??.
Great Photo's David and well done I bet it was hard work at…[Read more]
tom replied to the topic Velcade/Melphalan/Prednisolone in the forum Newcomers 11 years, 6 months ago
Hi Maureen
welcome to the site and am sorry to hear about your partner, unfortunately I cant help with this one as all I have had is CTD leading up to a SCT in 2009.
Am sure someone will be along pretty soon and give you the help and advice you need.
Good Luck to you both in the Journey to remission.
Tom Onwards and Upwards
tom replied to the topic Three steps back and thumbs up? in the forum Treatment 11 years, 6 months ago
Hi Dai
Well you are doing well and am sure you and Janet are well pleased you can now have and do visits :-D.
Am well sure your gonna crack it this time and to help you my fingers are well crossed 😎 , its good to see you getting a chance and hope that something else is on the use list soon.
Stay Well My Friend and am sure summer is just…[Read more]
tom replied to the topic Complaint to NHS re late diagnosis in the forum General 11 years, 6 months ago
Hi Eve and you all
Eve "Tom you surprise me,I thought you would think doctor know,s best ,learning new things about you,takes something to question a doctor or 2 doctors opinions."
I did and the reason is I knew it wasn't a bruised rib nor a pulled Muscle as I have had both of those many a time 🙁 (rough pubs and a cheeky grin dunt help…[Read more]
tom replied to the topic Mum in the forum Newcomers 11 years, 6 months ago
Dear Hawkeye
I am so sorry your Mum has passed away, condolence to you and your Mums Family and friends.
Just remember the good time before MM came through the door.
Tom xx
tom replied to the topic Complaint to NHS re late diagnosis in the forum General 11 years, 6 months ago
Hi Maureen
Well I was told I had a pulled muscle or a bruised rib when I went to GP, and before I left her I had another Dr brought into the room as I wanted. Second opinion as I knew it want one of those.
And after a bit of a fall out with both Drs I was given a chest X-ray , and as they say the rest is history.
Good Luck with it all…[Read more]
tom replied to the topic Goodbye Keith in the forum End of Life and Grief 11 years, 6 months ago
Andy and Steph
Am sure it was a great service, and am pleased He had a good send off.
Thanks for posting this Andy.
RIP Keith sadly missed
tom replied to the topic Revlimid in the forum Treatment 11 years, 6 months ago
Hi Ali and you all
Well I had CTD then onto SCT and now sit here in remission so I cant help here Ali apart from saying, I have done and will do anything to kick this MM into remission, I also remember at the start of the MM discussions that I was told I Might Just Might get a secondary cancer 🙁 But I and my young bride Took it on the chin…[Read more]
tom replied to the topic Anxiety in the forum Side-effects 11 years, 6 months ago
Hi Mandy
Sorry for the late Poste re your first 🙁 I must have somehow missed it :-S
But I am pleased the Op went well, I understand the Kyphoplasty is pretty good and am pleased it works for you.
As for the hair loss well am a mere Male Mandy and nearly 58 so it didn't bother me in 2009, am sure you will look beautiful when you lose…[Read more]
tom replied to the topic Keith's funeral arrangements in the forum End of Life and Grief 11 years, 6 months ago
Thanks for info Andy.
Hope it goes well
Tom x
tom replied to the topic Radiotherapy Burns in the forum Side-effects 11 years, 6 months ago
Your welcome and I hope it soon heals.
Love Tom Onwards and Upwards xxx
tom replied to the topic Press pause then wait and see… in the forum Treatment 11 years, 6 months ago
Hi Vicki and Colin
Am pleased the Vino is going down ok, and yes the Young Bride and I had a great time, our youngest grandchild Sophie was one year old.
And don't forget we all help each other am pleased to say.
Love Tom Onwards and Upwards xxx