tom replied to the topic Is there anyone here from South Wales/poss link between prostate cancer & MM? in the forum Treatment 13 years, 9 months ago
Hi Helen and John
I have never heard of the link between them both, just popped in to wish you both well.
Tom "Onwards and Upwards" xxxx
tom replied to the topic The Holiday Is Over in the forum Treatment 13 years, 9 months ago
Hi Bridget
And al tell you you done more than me i am not sure where our washing machine is lol.
I know that whatever this MM throws at you you will thrash it
Lost of hugs and Love ((())
Tom "Onwards and Upwards" xxxxxx
tom replied to the topic Velacade in the forum Treatment 13 years, 9 months ago
Hi Nicola,Micky and the "Dick Head"
Love the name your Dad gave it lol, and am pleased you Micky are having a bit of a treatment rest we all need one or two of those in the fight of the "Dick Head" (could be a film name that lmao)
Wish I lived near you all as that bowl of trifle sounds great (aint had that for years and years)…[Read more]
tom replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 13 years, 9 months ago
Hi Kay
What a roller coaster for you 🙁 and isn't it great to be told you have rheumatoid arthritis 😀 well it is better than bloomin MM in our bones 😎 and Kay if your pleased am pleased good luck 😀
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Remission? What remission? in the forum Treatment 13 years, 9 months ago
Hi Dai and Janet
Sorry to read about your loss of remission (just a temporarily loss am sure)and Dont worry Janet we all know that Dai can do it:-D
If anyone can do it your the man 😎 I know how you feel when you see your consultant looking at the screen and you notice the odd twitching.
I hope you get the treatment you like and am…[Read more]
tom replied to the topic Is it back? in the forum General 13 years, 9 months ago
Hi Amelie
Am sure you know I had a successfull sct in December 2009 and am still in remission 😀
But yes I have pain right ribs and Hips bu I have put that down to "Old age" and hard work over the years putting a strain on iccle ole me :-/ and My Dr has confirmed that the MM is not back 😎 and I might be wrong but dont levels go up and…[Read more]
tom replied to the topic Another farewell… in the forum End of Life and Grief 13 years, 9 months ago
Dai My Condolences to you and Yvonne's family at this sad Time.
I also have seen friends pass away with Cancer that was diagnosed after I was its such a sad time.
Hope you are keeping well and Take care.
Tom x
Debs replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 13 years, 9 months ago
HI Kay,
I am so sorry that you're having to think about all of this so soon after transplant. I feel terrible that I haven't emailed you recently. I hope that your results on Monday went ok …have you been put on Revlimid…I'm on that and so far things are ok (although I may ask to come off it as I seem to get permanently ill….not how most…[Read more]
Debs replied to the topic WORST DAY YET in the forum Newcomers 13 years, 9 months ago
Hi Nicola,
I'm sorry to hear about your dad being in so much pain and feeling so down about it. But it sounds like you're doing an amazing job in helping him to stay positive.
I haven't been on here much recently as I haven't been too well, and now I am busy….trying to organise my first charity ball!! I'm no expert on it and if you speak…[Read more]
tom replied to the topic My GP asked if I'd heard of myeloma in the forum Newcomers 13 years, 9 months ago
Hi Graham
good Luck for Thursdayay 😀
As for symptoms well I went to my GP for what I described as if somebody had rolled up a towel and pushed it under my Lower rib(left side) I was told it was either a pulled muscle or a bruised rib? and that as they say is the start 😎 Once again Graham all the best for thursday
Tom "Onwards and…[Read more]
tom replied to the topic How do you start to say good bye?? in the forum End of Life and Grief 13 years, 9 months ago
Hi Michelle
Just thought I would post and see how you are both doing? I hope Hubby is still staying strong.
Sending Hugs and Love
Tom ((())) xxxx
tom replied to the topic Just checking on how you are all doing? in the forum General 13 years, 9 months ago
Hi Gina
I for one am doing great Thank you for asking 😀 I hope you and your lovely Family are doing good? and hope the new hubby is doing as he is told (like me lol)
I know you will still miss your Mum as I do mine, My Mum "Mary Doll" was not aware I had MM before she passed away I/we did not feel the need to cause her more…[Read more]
tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 9 months ago
Hi Micky and Nicola
Its Good to have a name for your Dad 😀
I hope you remember that you need to have some space to yourself rather than all MM problems that way you can help Micky better 😎
As for the Fund-Raising I myself have never tried it :-S and admire those that can do it 😎
Catcha Lata say Hi to Micky for me 😀
Love…[Read more]
tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 9 months ago
Hi Nicola
Am pleased your Dad (am sure he has a name lol) is feeling Perky as Perky is Good 🙂
Tell your Dad from me Work aint all that you know 🙂 But I know how he feels I needed to get back to work to prove to Myself that am fit and healthy (now i should be so lucky he he) and now I feel as if I am near ready for packing it all in…[Read more]
tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 9 months ago
Well done those Tabs thats great news Nicola am sure in a few days your Dad will feel much better:-D
What your Dad said during his extreme discomfort and pain am sure when all has settled he will want to fight it all the way, your dad sounds like a fighter that was just a little punch drunk, now soon he will be putting on his gloves to fight…[Read more]
tom replied to the topic Parent diagnosed last year & MM still thinks its boss! in the forum Newcomers 13 years, 9 months ago
Hi May
And a warm welcome to the group. Sorry to hear about your Mum.
Its a worry when the treatment fails But there is a lot out their that will work its trying to find out what and when it will work. I tell Elaine (my young bride) when its time to sort things out the Dr will tell us just let them sort out all hiccups as we travel the road…[Read more]
tom replied to the topic Overcoming the mental battle as a newcomer in the forum Newcomers 13 years, 9 months ago
Hi Glenn
As for pain? well I have a bit of pain but am sure it isn't down to the myeloma :-S might be just old age as all my bloods (well thats what the tell me) are Ok, only effects I had with the Zometa was a flu like symptom for a few days after getting it infused :-/
I also have a very supportive Family three grown up sons and soon to…[Read more]
tom replied to the topic WORST DAY YET in the forum Newcomers 13 years, 9 months ago
Hi Nicola
I do hope your Dad is soon sorted I for one could not poo for some time when having treatment and its one of the worse things that hit me while under treatment, I hope its soon sorted.
Love and Hugs
Tom xxx
tom replied to the topic Overcoming the mental battle as a newcomer in the forum Newcomers 13 years, 9 months ago
Hi Glen
I wish you well in this journey I was told in jan 09 I had MM went on 5 courses of CDT (done ok ish with it) and had to pack in work due to being tired and weak had SCT in December 09 went back to work on light dutie's and all the treatment i am having now is Zometa infusions every four weeks 😀 and when that stops (soon I hope) then…[Read more]
tom replied to the topic Another new kid in the forum Newcomers 13 years, 9 months ago
Hi Heather
For me staying employed and being on Sick was for me a Goal I had, to get better and back to work to show myself I can and will do it (am a stuborn cuss lol) it warked and I went back after a year off on Light dutie's still doing those "Light Dutie's" and to be honest am getting ready for giving work up 🙁 dont get me wrong the…[Read more]