Hi Jenny

Welcome to our (now your) site and social club?

Good Luck on your treatment and forthcomming Transplant:-D I had mine December 2009 😀 and doing great8-)

Its a challenge each day trying to fight what you used to do? to now what you can do, listen to your body and when it tells you to rest (and it will) then rest.

Love…[Read more]

Hi Mari am pleased you are both calmer and hope you are still same as its been a few days since I have been on here:-S

Love

Tom "Onwards and Upwards" xx

Well done Peter, I have never been to a Info day either ? will I get to one?? Lord knows too much on My agenda but I will try to get to one, you never know I might enjoy it he he.

Tom "Onwards and Upwards"

Hi Sandy

Am pleased you are avin the spots sorted 😎 I had a Rash after my SCT but no one seemed to worried about it and it went away on its own :-D.

After My SCT I never stayed away from people just made sre they had no Illness and I sailed through the Post sc bit.

Love to you all

Tom "Onwards and Upwards" xx

Hi Deedee

How are things going these days? I have not been on for a bit so am just doing a "Catch Up"

Love

Tom "Onwards and upwards" xx

Na then Jim

A warm Welcome to this great site, it has some great folk on here8-)

All I can add is Good Luck M8 as I have not been on any trail, just ctd then stem cell transplant:-D all in 2009 and am a young (ish) 56 😎 Keep fit.

Hi Michelle
Am using one post instead of two (saving Ink 😛 )

I also wish your Dad well with his…[Read more]

Hi Dai,
Sorry that you are ill…you are right about the weekend thing…I felt awful on Thursday and Friday, and probably should have been sensible and not gone to the London Infoday today. Especially since my son was sick this morning!! Typical!
…..I did go though and had a headache throughout the whole day which I've finally knocked on the…[Read more]

Hi Gilly,
You don't say how long you have worked for them or what your contract says? BUT you are covered by the disability discrimination act and they should be prepared to make 'reasonable adjustments'.
I would suggest you or your union rep should go to Acas and ask for some guidance as you might have a strong case. Your local CAB might be…[Read more]

Hi Mal and Bruce

Pleased his temp has dropped, I used to hate it when I got them 🙁
and sleep is good cant wait til I get into my bed tonight 😀

Love to you Both

Tom "Onwards and Upwards" xx

Hi Dai

Sorry for the delay :-S not sure how I missed this post?? But a Well Done 😀

Am sure the Amoxicillin will throw that dreaded infection out 😉 so it will be an "Onwards and Upwards"

Tom "Onwards and Upwards"

Gill, you made me laugh! 🙂

Don't be put to shame….we all deal with stuff differently and for me it is the best way of forgetting what is going on….I find it hard to do that if I am not running round like a headless chicken!!! And I also find it a challenge to raise BIG money – I hope the ball next year will do that – would like to raise…[Read more]

Hi Scott
Have a good party on Saturday!!
Will try to pass on best, but you know what these consultants can be like….very elusive!!
Take care
Debs x

THanks Gill – not sure if it's good or bad that I'd be recognised anywhere!!
Someone the other day said they wouldn't want to bump into me on the street – maybe I wasn't smiling then!!
Doing ok thanks….waiting for 3 month post-SCT results on Tuesday so a bit nervous in case of relapse, but keeping busy organising my tabletop sale, and have…[Read more]

Hi Elaine,
Welcome to the site and I hope it is as helpful for you as I find it. I think it is full of lovely, caring people!
I hope you cope with your treatment. It seems that each treatment is different for everyone so it is hard to say about side effects, but just make sure you mention everything to your consultant/ nurse specialist. They…[Read more]

Hi Helen

Tabletop sale is on the 6th November but we've made £150 already on a gym membership that was donated….am hoping to get over £500 in total. Then on to organising the ball I want to do next year!!

Tracey, that is very kind of you but VERY misguided. I could only wish to look like Kate. Sadly neither my face, nor my body looks l…[Read more]

Thanks for thinking of me Keith…..funnily someone else I know forwarded on this article to me.
I'm not sure I'm bad enough at the moment (fingers crossed) and I'm not sure how they'd do it for me anyway, as my pain is in the whole of my lower legs and my feet. However, they had said that patches/ creams were around if the drugs didn't…[Read more]

Hi Jo,
Great….will look out for you too!!
Debs x

Hi Only me
Think Susan has covered most of it (if not all) its amazing how much you forget about what and when after a few months down the line? or is that just me:-S

Good Luck with the transplant.

Love and Hugs

Tom "Onwards and Upwards" xxx

Hi Gina

Pleased your Mom is getting on better:-D and dont go doing stunts with that wheelchair, but if your Mom wants to get it on you tube he he.

Love to you all and (((Hugs)))

Tom "Onwards and Upwards" with one or two wheelie's xxxx

Hi Mal and Bruce

Happy Anniversary to you both 😎 the wine will save 😀

Good luck with the treatment and its dreaded side effects:-S

Love

Tom "Onwards and Upwards" xx