Well done Dai….I am so pleased for you.
And as daunting as it is, go out there and live life to the full. Hopefully with your positivity, you'll get a year or more of remission and I wish you all the best with that. Drug free time is a blessing once you have started isn't it….
Take care
Debs x

Hi Etta's husband (do you have a name? :-))
I hope she's got over the flu symptoms and that they were only from the zometa….hopefully she'll only suffer the first time too.
With regard to staging, I've never been told. To be honest, I've never asked as I've just focused on my pp levels. I think it is pretty normal so I wouldn't worry – it is…[Read more]

Hi Bridget am sure you will love the hot spells when they are back they say its gonna be a long cold winter 🙁

And Min I nearly wet my pants reading your post ha ha and am not that old yet 😎 I hope we dont come across it on "You Tube" from some one else walking their dog he he

Love and Hugs to you all

TOm "Onwards and Upwards"…

Hi Etta's Hubby

Sounds like the symptoms I had flu like but i got used to that.

Tell Etta from me that she needs to let people fuss over her the more the better:-D

Just a reminder keep your eye on Etta's temperture and dont let it get too high.

Tom "Onwards and Upwards"

Hi Mike

Sorry to read about another one that has run out of optians on the drug front.

Tom

Hi Etta

A warm welcome to the site, and you will soon settle in (its like a old pair of slippers to me warm and cosy)

Now what to say? well I was on CDT as a first response to My MM in Feb 2009, yep loads and loads of pills:-( as for the reaction I was very very tired during the CDT that I had to go on the sick:-/ I was on the sick for…[Read more]

Just thought I'd give you a quick update after my appt with the pain clinic. It is quite a frustrating story!!
I went in, and after listening to him talk over me constantly, he decided to put me onto pregablin as I had been on it by mistake pre-transplant (along with tramadol and morphine – not meant to be given together!)and it had worked then.…[Read more]

Hi Keith,
I would check with your hospital, but when I had a rash around my neck and collarbone post SCT, my consultant said it was GvHD and that it was a good sign that the transplant had done its job.
Mine has just about stopped now….I am 2.5 months post transplant.
Hope it calms down soon so the swearing can stop 🙂
Take care
Debsx

Hi Wendy,
I hope you're doing ok post transplant….it's hard in those early weeks so bear with it and don't rush to getting back to normal. It's really important you listen to your body!!
As to the mini Allo, you could post on the Under 50 site as Ian has recently had one of those….in June I think it was. He is doing well so far.
That must…[Read more]

Hi Terry,

Just to say that velcade definitely isn't a last resort. I was diagnosed in 2009 and started treatment in 2010. I started on revlimid but that stopped working quite quickly and I was put onto velcade.
It worked really well for me and brought my pp down from 28 to 4 at which point I had an SCT. The only thing I would say is please…[Read more]

Hi Etta,
Welcome to the site….sorry you've had to join us.
I reacted to zometa the first time I had it – felt very flu like with bone ache all over, hot and cold etc. But it only lasted about 24 hours and since then, I've never had it.
But the tiredness etc is probably due to the CTD….my best bit of advice is to listen to your body. If it…[Read more]

Hi Liz and Kev

Well I wonder why the Hickmen Line? I had a femerol line when I had my Harvest and SCT am told its less invasive and less likely to get an infection in it???

But when I have my Four Weekly Zometa it is like "Chase the tube" lol and yep Angie gets the "Hot Towel" for my hand but its not working all the time (but it feels…[Read more]

And a Good evening to you Bridget:-D

And am I pleased your pain has gone 😀 gosh I wish i could hug you ((())) bless that R/T 😎

And hey we can cope with the tiredness and NO pain 😀 and long may it continue.

Elaine and I are doing great in this weather And I Love it::: dont know about anyone else but::: prior to me having MM I…[Read more]

hey up Ted (a northern saying)

I am sure that we as MM badge wearers none of us know what will is going to happen as the bLo**ming MM throws a bit of a curve and throws it all out :-S

Regards

Tom "Onwards and Upwards" 🙂

Hi Terry

May I be one of many to welcome you to this great site:-D but sorry to see you here:-(

Reading your post am sure you will sail through it all and a lot of it as you know is S**t :-/

Me I had lots of CDT and a SCT (December 09) and am doing great only on Zometa now 😎

Good Luck Terry

Tom "Onwards and Upwards" x

Hi Bridget

How are you today? Hope your Pain is still kicked into touch:-D

Love and Hugs

Tom ((()))) "Onwards and Upwards" xx

Hi Liz and Kev

Hope you enjoy the break next week 😀 and hope the sun stays with us till you have had the aforementioned break 😎

Now those Pesky veins:-S they found one of mine first time 😀 last Thursday so was thinking its an in and out today:-D but my records were not at the day ward so I was sat with just having a fluid drip in…[Read more]

Morning Nettie
Well prayers said for you today so now you know you aint on your own the Lord is with you (hope he aint scared of heights:-S )

Love
Tom "Onwards and Downwards" xxx

Hi Ellen

Thank you for kicking off this difficult subject, but here is my thoughts::::

I am the one that has MM and am helped by My Wife, three sons, three daughter in laws and five (soon to be six:-D ) Granddchildren, and yes we "My Wife and I" talk about "end of life" and yes Elaine said she would look forward to the help and advice that…[Read more]

Hi Wendy

Am sorry I cant help you with this one all I had was a SCT and nothing else talked about? but am still in remission some 21 months ago and am still doing great 😀
But am sure you will have some one nip on here and help in the answers you need.

Good Luck in your recovery from your transplant:-D

Love
Tom "Onwards and…[Read more]