Hi Bridget

It must been a long day for you 🙁 but tomorrow its gonna kick that pain in the b**t and get your Dancing shoes on8-)
You will soon have more tattoo's than the tattoo Lady
Another nite of "Onwards and Upwards" Bridget, I hope the pain is not as strong tonite 😀

Love
Tom xxx

ps it wont let me post so have put a couple…[Read more]

Hi Bridget

Hope you are up and nearly dancing Now 😀

xxxxx

Hi Gina

So Sorry to hear about your Gran, Please give her my best regards to Gran and your Mum am sure she is very sad with the news.

Have a great Info Day (not been to one myself yet??)

Love
Tom "Onwards and Upwards" xx

What great news Dai.

I am so so chuffed for you and hope that the velcade keeps doing its job!!!

Debs x

Helen
Here's to a long remission. I am just over a month post SCT and if it gives you hope, the last two weeks have seen a big improvement in my energy levels. I still need an extra couple of hours sleep a day, and have odd days where I feel terrible and sleep all day, but all in all, those are getting fewer and fewer and there is a light at the…[Read more]

Hi Sandra

Good luck with it all…I'm a month post transplant now!

I was told I could have a duvet etc….some people I know were told they had to take a brand new one in if they wanted to, and I was told I'd need to change the cover every day or so….I ended up not bothering even though we had the new duvet at home…i was so hot in the…[Read more]

Hi Keith,

Glad to hear that you're out of hospital and on the mend! It's a good feeling isn't it?!

I was also quite ill…from day 1 sadly….and lost over a stone in weight. Luckily, unlike you, I could afford to lose it as it was all weight I'd put on while I was on the Dex. So for me it was the one positive that I got out of the whole…[Read more]

Well what a Post Dai, and I for one is very very pleased to read about your CR 😀

How did you feel when you were told?? I have to admit I shed a little tear down one cheek when I was told about mine:-D , Long may it continue 🙂 its what we strive for now lets hope its a blooming LONG Remission.

From one Cheeky Chappie to one Happy Chappy 😎

Way to go Bridget not long now girl 😀 hope it work good for you.

Hugs (()))
Tom "Onwards and Upwards" xxx

I Love the wait for Dai's words of wisdom 😎
I Love the walk My Young Bride (Elaine) and I have just had with Charlie (and we didn't stop at a pub??)
I love the fact that our new kitchen is all but done 😀
I love the fact that Dai will be back 😀

Onwards and Upwards (drink free) x

Hi Jo

Yep thats me am afraid a "Cheeky Chappie" 😎 And am pleased I make you laugh cos Laughter is the best medicine for us and it gives us less wrinkles Lol.
I have said before I can get into see my Consultant faster than I can my own GP 🙁 pleased you had a good trip to Scotland, its a beautiful place ( other places are also just as nice…[Read more]

Hi Helen

Well done and am plesed you were set up Top and bottom.:-D

Good Luck in your recovery and as for the hair well it will come back shirly temple'ish :-S and as for the long remission I wish you the same as i want for myself (21 months post sct so far and doing great) and some more years of MM free still to come;-) am sure we will do…[Read more]

Hi Ted

Well am pleased you have got rid of that Cold it hung about for long enough:-S

As for the Dr's >:-( I have what I call a vetting Receptionist 🙁 who seems adamant that I dont need to see "Her" Dr:-0 once when I needed to see "Her" Dr, I have to phone after 8 am to get an appointment 🙁 and she says to me "May I ask why you need…[Read more]

Oh Tina
They've postponed it till next tuesday- I cried when I got the letter! I feel like my toes are broken tonight…worse than they've been in ages. It's partly my fault as I've overdone it today and not had a sleep but it's depressing to know it could have been looked at tomorrow and now I ve got another week to wait.
Enough moaning!! Down…[Read more]

Hi nadine.
Ask away on the question front. I was on the myeloma xi trial and had rcd ( revlimid, cyclo & dex). I plateaud quite early and went onto velcade. I don't regret the Sct yet although if I'm honest there were times in hospital and when I got home when I wished I hadnt done it as life seemed so hard. But now there is a light at the end…[Read more]

Hi Nadine

Your more than welcome, and if it made you smile:-D half of my job has been done today

Yes I also was on CDT :-S all those pills :-/ but hey ho it made me better.

Love to your Mum

Tom "Onwards and Upwards" xx

Hi Sandra

Just to wish you good luck 😀 dont know about the hospital (yours) I had mine done At Castle Hill in Hull8-)
And I was allowed out on day 16 🙂

Tom "Onwards and Upwards" xxx

Hi Ozzy

I know how you feel with the tiredness I am 56 and work mon to friday 6/2 and have to admit come weds am ready for a day off :-/

I also feel too young to retire and tell my young bride (elaine) that am sure the time will come when I have to take time off?? but not now 😀
Work is tiring but hey its supposed to be lol.
Keep fit…[Read more]

Hi Nadine,
Welcome to the site although I'm sorry that your mum has MM.
Why are you finding it hard to discuss it with your mum? Because of how you feel, or because of how she is? I think if you can talk about it with her, all the better for both of you….you can support her better if you understand how she feels and also, my personal view is…[Read more]

Hi Nadine

A warm Welcome to tis great site, but am sorry you had to join.

I hope your Mum is doing well on her treatment?, As for the SCT I had one in December 2009 and am still in remission and doing well (am 56 now)
Please dont ask me what my para/bloods red or white marks are cos I just dont know (av bin told its a man thing:-0 )

But…[Read more]