louishenry replied to the topic SCT very soon in the forum Treatment 8 years, 11 months ago
Yep, been using Skype though when you’re dozy a 10 minute call is about right. I am glad the ward has WiFi. We are all so variable and individual that one person’s experience will always be atypical but I always like to hear other people’s experiences so I hope other people find this of interest.
louishenry replied to the topic SCT at Southampton. in the forum Newcomers 9 years, 2 months ago
Hi Ianb
I think I’ll be in Southampton for stem cell harvesting in October, asct in November, so I can’t tell you about that yet but I will tell you that virtually all my treatment has been there as I am on the Myeloma XI trial and absolutely everyone, doctors, nurses, assistants, tea ladies, are brilliant. We have plenty to worry about but I…[Read more]
keithmt replied to the topic stem cell Transplant in the forum General 9 years, 10 months ago
Hi Amanda,
You’ll know by now that everyone’s experiences vary from one to another and I’ll be no different so here goes my story.
I was diagnosed in Aug 2013 when I was 62 and my paraproteins were at 57. After 6 months of CDT they went down to 2 and I was ready for SCT. I read up about the process which scared the hell out of me but as things…[Read more]
keithmt replied to the topic Mum recently diagnosed. Lots of questions…. in the forum Newcomers 9 years, 10 months ago
Well Katie, that’s great and positive news from Carol isn’t it? I’m so pleased to hear that you’re coming up to your remission anniversary Carol. Are you still having tests and checkups in Oz?
Katie, the immediate period after the transplant can be a bit tough and like I said before, your mum really doesn’t need to get into the details of that…[Read more]
kp replied to the topic Smouldering myeloma in the forum Newcomers 10 years ago
“so who’s to say you won’t grow old and penniless because you spent all your pension money having holidays and enjoying life thinking you wouldn’t need it for later?”</span>
This is very true Rebecca, thank you for a smile moment on a damp and dreary morning.
I think we should all live our lives to the full and enjoy every day. There are medic…[Read more]