Myeloma Forum | Sonia Crane | Favourites https://forum.myeloma.org.uk/members/shadylady/activity/favorites/ Activity feed of Sonia Crane's favourites. Tue, 07 Apr 2026 19:26:34 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 00184c29701be7f150ac34b65f1c174d louishenry replied to the topic SCT very soon in the forum Treatment https://www.myeloma.org.uk/forums/topic/sct-very-soon/page/3/#post-125313 Sat, 05 Dec 2015 16:37:52 +0000 Yep, been using Skype though when you’re dozy a 10 minute call is about right. I am glad the ward has WiFi. We are all so variable and individual that one person’s experience will always be atypical but I always like to hear other people’s experiences so I hope other people find this of interest.

]]> 08f5e491fb2fa55aebb711b1b96db530 louishenry replied to the topic SCT at Southampton. in the forum Newcomers https://www.myeloma.org.uk/forums/topic/sct-at-southampton/#post-124159 Tue, 15 Sep 2015 20:16:08 +0100 Hi Ianb

I think I’ll be in Southampton for stem cell harvesting in October, asct in November, so I can’t tell you about that yet but I will tell you that virtually all my treatment has been there as I am on the Myeloma XI trial and absolutely everyone, doctors, nurses, assistants, tea ladies, are brilliant. We have plenty to worry about but I…[Read more]

]]> 9582cfbfd5b95cbf621381a656ccaaff keithmt replied to the topic stem cell Transplant in the forum General http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-5/#post-120420 Tue, 20 Jan 2015 09:01:27 +0000 Hi Amanda,

You’ll know by now that everyone’s experiences vary from one to another and I’ll be no different so here goes my story.

I was diagnosed in Aug 2013 when I was 62 and my paraproteins were at 57. After 6 months of CDT they went down to 2 and I was ready for SCT. I read up about the process which scared the hell out of me but as things…[Read more]

]]> 38a501ab8d98a90c815ccedc297dad6e keithmt replied to the topic Mum recently diagnosed. Lots of questions.... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/mum-recently-diagnosed-lots-of-questions/#post-120342 Sat, 17 Jan 2015 09:45:13 +0000 Well Katie, that’s great and positive news from Carol isn’t it? I’m so pleased to hear that you’re coming up to your remission anniversary Carol. Are you still having tests and checkups in Oz?

Katie, the immediate period after the transplant can be a bit tough and like I said before, your mum really doesn’t need to get into the details of that…[Read more]

]]> deac4c86bb015b802a96633b72ffb907 KP replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/4/#post-119646 Sun, 23 Nov 2014 11:02:07 +0000 “so who’s to say you won’t grow old and penniless because you spent all your pension money having holidays and enjoying life thinking you wouldn’t need it for later?”</span>

This is very true Rebecca, thank you for a smile moment on a damp and dreary morning.

I think we should all live our lives to the full and enjoy every day. There are medic…[Read more]

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