[shamrockgirlParticipant]

Thank you so much, tony642 and richfs for your responses, helpful & useful. I am gradually learning about this disease, but as I’ve struggled with memory & retaining information, due to my other conditions, this is an ongoing process.

I’m relieved (if that’s the right word) to know that the much worse fatigue since a year ago, is highly likely related to the Smouldering Myeloma. At least I have something I can bring up again at this weeks “watch and wait” haematology phone call, from the nurse.

So useful and comforting to have this forum.👍

[shamrockgirlParticipant]

Hello everyone, I’ve just registered to be part of this forum. I was diagnosed with Smouldering Myeloma in March this year. Not only had I not been familiar with Myeloma, but this smouldering part of it us quite rare & unusual too!

Though I do have other chronic conditions & class myself as having a disability, but last November, my fatigue levels got a lot worse & I began having to go back to bed many afternoons. I’ve asked the haematology nurse & my biologics nurse, for my Rheumatoid Arthritis, at recent phone appointments what they think was causing the extra fatigue. They both appeared to say they didn’t think it was to do with either condition. This has left me confused, that’s when I contacted the Myeloma nurse at Myeloma UK, who gave me some answers & pointed me towards this forum.

I would appreciate any responses on this, thanks.

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