Myeloma Forum | MK | Activity https://forum.myeloma.org.uk/members/sheff/activity/ Activity feed for MK. Wed, 22 Apr 2026 20:13:07 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 556d5702c6435a493e86ae39a9adf2bf MK replied to the topic Myeloma XI Trial in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-xi-trial/page/3/#post-96617 Sun, 08 May 2011 09:45:14 +0100 Hi all, thanks for your messages – it has been a difficult time, especially with the funeral last week.

Sharon, don't worry unduly over this, i'm sure you've looked into everything thoroughly and are aware of the side effects everyone has mentioned – I think we were very unfortunate that while my dad was admitted, the study lead was absent for…[Read more]

]]> a7928d5e4723070121e6e5c7840a2a9a MK replied to the topic Myeloma XI Trial in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-xi-trial/page/2/#post-96610 Tue, 03 May 2011 00:51:38 +0100 The possibility of myeloma of the fluid surrounding the brain was something we only found out about a few days prior to death – the man in charge of the trial had been on holiday for a week, and when he returned my father had deteriorated significantly, only able to say odd random words, no real eye movement (but lots of arm and leg movements) -…[Read more]

]]> b144f6a402ffd8af5e6fa2fa03b04475 MK replied to the topic Myeloma XI Trial in the forum Treatment http://www.myeloma.org.uk/forums/topic/myeloma-xi-trial/page/2/#post-96608 Sat, 30 Apr 2011 12:48:45 +0100 My dad was diagnosed with multiple myeloma in January, and following a biopsy, was offered the chance to be on the Myeloma XI trial at one of South Yorkshire's leading hospitals. It was sold to him as if it was the only real option, and that it would add as much as 10 years onto life expectancy. As my dad wanted to be with us as long as possible…[Read more]

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