shirley replied to the topic another check up gets ticked off in the forum General 13 years, 10 months ago
Thats great news David,keep it going,sounds like your doing really well,and i hope you have a wonderful time when you visit Rhine and Moselle,..Best wishes Shirls :)…
shirley replied to the topic 2nd SCT in the forum Treatment 13 years, 10 months ago
Glad to hear all is going in the right direction. I've had 2 sct now my last was at xmas just gone,i'm 6months down the line now and doing really well,so good luck to you on getting your 2nd one. Enjoy your time away,i'm away in August,like you it will great not to think of hospitals,needles,bloods ect;take care Shirls 🙂
shirley replied to the topic A ray of hope in the forum General 13 years, 10 months ago
Big massive well done to Steve,you must be so proud of him,i'm a mm patient,and so wish i had the energy to achieve something like that,. It trully is an inspiration to us all,keep it going Steve and well done again.Best wishes Shirls x x x 🙂
shirley replied to the topic A Quick hello in the forum General 13 years, 10 months ago
Roz,i agree with Tom,never ever feel your on your own,we are always here if you want to rant and rave,scream,cry,or to have a good laugh.I'd be lost without this site,haven't been on for awhile because i've been abit poorly and depressed but i can gladly say i'm picking up again,but enough about me. Enjoy your garden when you finally get it…[Read more]
shirley replied to the topic Memory Book – right or wrong? in the forum General 13 years, 10 months ago
Hi Angelina,this disease has alot to answer for hey,i'm a mm patient,so i can sympathise with you and your husband,not a very pleasant ordeal to go through hey. But i must say i love the idea of the memory book and i think when the girls are ready to read it they would love and cherish what everyone has written about their dad,i know i would've.…[Read more]
shirley replied to the topic A Quick hello in the forum General 13 years, 10 months ago
Hi Roz,lovely to see you back online,your period of mourning will take time and with time it does get better,your pain will never go away but you learn to deal with it better,remember all the brilliant and good times you had. I too agree with Bridget on the idea of the rose garden,sounds really beautiful,and then on lovely sunny afternoons(thats…[Read more]
shirley replied to the topic Pain Relief Changeover in the forum Treatment 13 years, 10 months ago
Hi Bridget,sorry to hear your in alot of discomfort with your back,really do sympathise with you there. I haven't taken Oxycontin before,i normally take 30mg a day of morphine MST,if i know i've a busy sort a day ahead of me then i take a dose of Oramorph,. I do hope you start to feel comfortable again once you get the right medication take care…[Read more]
shirley replied to the topic Keep on taking the tablets… in the forum Side-effects 13 years, 10 months ago
Oh poor old you,you've had a right a poopy time hey,glad its all sorted and your comfortable again,certainly a lesson learnt,and something i won't rush into doing myself ha ha,anyway you take care best wishes Shirls, P.S… I'm glad your taste buds are back,mine is still gone and my sense of smell too,oh well hopefully it won't be long before…[Read more]
shirley replied to the topic SAD DAY in the forum Off topic 13 years, 10 months ago
Dear bridgett, my sincere condolences to you and your family,thinking of you,take care Shirley x x x
shirley replied to the topic Been in the wars in the forum General 13 years, 11 months ago
Bridgett and Tom,loving your sense of humour ha ha,keep it going.I'm not doing to bad,although i now have blistered lips and a very sore mouth,went to my hospital to have it checked out,and i'm glad i did as i might have a very bad case of thrush or it could be graft verses host in which they want to happen,they gave me anti fungal tabs to clear…[Read more]
shirley replied to the topic trial mini allo in the forum Treatment 13 years, 11 months ago
Hi Ian,i had an allo-graph back in December,like you i had all the test done,and i'm doing really well. Hope your mini allo goes really well,stay strong and positive and you'll be fine,take care and good luck Shirley x
shirley replied to the topic Been in the wars in the forum General 13 years, 11 months ago
Awe thanks Jo,just very grateful that it was just a fracture and nothing else,. It really did shake me up,i don't even remember going up the stairs let alone coming down them ha ha. But i'm doing ok,best wishes Shirls x
shirley replied to the topic Been in the wars in the forum General 13 years, 11 months ago
Thanks everybody,i'm getting and feeling better each day,just doing gentle jobs around the house,and Steve bless him has been fantastic,really looking after me and the family come up when Steve is working,so everybody has been great. No more diving for me,begining to think i've more lives than a cat ha ha ha anyway all have a good sunday,take care…[Read more]
shirley started the topic Been in the wars. in the forum General 13 years, 11 months ago
Hi everyone,sorry i've been so very quiet but i've been in the wars with my staircase,a few weeks back,i was getting ready to go to bed,after making sure everything was switched off,and tidied up,Steve was in the kitchen clearing away the dishes,i was ready to go on up,anyway i can honestly say i don't remember climbing up the stairs,apparently i…[Read more]
shirley replied to the topic Need some advice in the forum General 14 years ago
Hi its me again,i didn't read further done the page,well done you,bet your glad mum & dad know now,just remember your never alone ok take care Shirls x
shirley replied to the topic Need some advice in the forum General 14 years ago
Hi Arthur,i'm not a mum myself but i am a stepmum to a 16yr old and a 14yr old,and i know that if i was a mum,i would be totally devasted that they couldn't talk to me or their dad,but at the same time i can understand your dilemma,sounds to me you have a great relationship with your parents and do understand you don't want to burden them with…[Read more]
shirley replied to the topic From Devastaion to Elation in the forum General 14 years ago
Thats great news,hope all goes well for Stephen,i'll be keeping a watch out to see how he's doing take care and be strong x Shirls x
shirley replied to the topic Happy Easter in the forum General 14 years ago
Missed out day in late in the day sorry x x
shirley started the topic Happy Easter. in the forum General 14 years ago
Hi everybody,bit late in the i know,but went out for a wee short while,but i would like to wish everyone a very happy easter,and despite aches and pains hopes your all having a lovely day. My day has been great,got the sun shining,ice cold glass of cider,what more can a girl ask for hahaha hic hahaha. Take care all loves Shirls x x x
shirley replied to the topic PP levels in the forum General 14 years ago
Hi Gill,has most people have said everyone is differant,when i was diagnosed almost 2yrs ago now,i was so poorly,my paraproteins was at a high of 66.3,when i had my sct i went down to 8.4,then on my 2nd sct which i had in december my paraproteins went down to 2.2,last week i got told my last paraprotein count went undetected,so i'm now in full…[Read more]