Myeloma Forum | jackiecollins | Activity

jackiecollins replied to the topic Sad news in the forum Under 50s

Sat, 13 Oct 2012 18:28:51 +0100

Rachel,please accept our condolences,such sad news of Paul,stay strong & please don't hesitate to come here and have a cry,scream and let of steam,thoughts are with you and your family,take care Shirls & Stephen x x x

jackiecollins replied to the topic Sleeping so much! in the forum Side-effects

Tue, 09 Oct 2012 21:57:31 +0100

Hi Jane, i must confess i was terriable, i'd sleep til 2-4 in the afternoon,get up have tea,a bath fresh pyjammy's,then back to bed,i started to become quite depressed,like you i have the most fantastic and most patient husband in the world,and i wasn't being fair to him,he gave his work up to become my full time carer,and all i did was sleep. But…[Read more]

jackiecollins replied to the topic Hair in the forum General

Mon, 08 Oct 2012 21:25:30 +0100

Hi Faith,i'm on my second growth with my hair,like you found it dry and brittle,i just use normal shampoo for dry and brittle hair,but before i use the hairdryer i put a very small drop of serum on my hand and massage it through my hair,it stops it frizzing,don;t look dry at all,just soft and shiney,hope you have found something and good look. 🙂

jackiecollins replied to the topic Kyphoplasty in the forum General

Sat, 07 Jul 2012 18:08:30 +0100

Hi Myra,first of all you shouldn't have to put up with any pain,nobody has to. I was in a very similer situation,i had a verterbre procedure done,and i don't regret it one little bit. Whatever you decide i hope you make the right choice for you,take care Shirls x x

jackiecollins replied to the topic failed allo in the forum Treatment

Fri, 22 Jun 2012 14:14:16 +0100

Hi Ian, its been awhile since i've been on here and had a proper read on other peoples post, i'm so sorry you mini allo failed,you must.ve been in alot of pain with your neck,lets hope now that you've had your operation you'll be back on that road to recovery. I also like to apologise for not replying to your e:mail,i deleted it by…[Read more]

jackiecollins replied to the topic Brocho - Bridget Rochfort in the forum General

Tue, 19 Jun 2012 20:42:18 +0100

Dear Siobhan,me and my husband Stephen are so very very sorry to hear about your mum, please accept our sincere condolences,although we never met and i do wish i could meet some of you fellow sufferers,she always had something inspirational to say,she was a lovely lady,may your precious memories of her always be cherished, and Bridget may you rest…[Read more]

jackiecollins replied to the topic Kevs relapsed! in the forum General

Sat, 02 Jun 2012 11:44:38 +0100

Liz i'm so sorry.i called your husband Micheal and not Kev,i do apologise,so very sorry,Shirls 🙂 🙂

jackiecollins replied to the topic Kevs relapsed! in the forum General

Sat, 02 Jun 2012 11:39:19 +0100

Hi Liz,very sorry to hear of Micheals relapse,glad they managed to treat him so quickly too. Lets hope its not to long before he's back on that road to recovery once the new meds kick in,both stay strong and take care Shirls x x

jackiecollins replied to the topic I love My Mum gone but never forgotten x in the forum General

Sun, 20 May 2012 17:57:58 +0100

Hi Michelle,so very sorry to hear about your mum,our sincere condolences are sent to you and your family,take care Shirley & Stephen x x x

jackiecollins replied to the topic Facebook in the forum General

Mon, 23 Apr 2012 15:06:34 +0100

Hi Carole,i'm on face book quite often,my name is Shirley Sparnon from Plymouth,hope to see you on there soon, ttfn Shirls x

jackiecollins replied to the topic Newcomer... in the forum Newcomers

Wed, 18 Apr 2012 20:59:02 +0100

Hi Tony, hello & welcome to our site,you have enrolled yourself to the best support group for myeloma,but please remember we are all at differant stages of this disease,i was diagnosed 3yrs ago with 1gg kappa,at the moment i'm in remission and doing ok,i do hope you find this website useful,gonna blow me own trumpet but we are a great group,were…[Read more]

jackiecollins replied to the topic allogeneic SCT in the forum Treatment

Tue, 13 Mar 2012 10:02:31 +0000

Hi Ian,hows you today,i've just read your thread to Penny,can i ask you, are you suffering with this GVHD,if how has it affected you. I've been quite poorly with mine,had a couple of stays in hospital,i stared of with cold sore on my lips,ulcers and blisters in my mouth & tongue,then it affected my eyes,but its badly affected my breathing,i've now…[Read more]

jackiecollins replied to the topic allogeneic SCT in the forum Treatment

Sun, 11 Mar 2012 16:45:52 +0000

Hi Penny,like to say Eve is spot on,i did have an allogenic transplant just over a year,i was diagnosed in August 09,had my 1st transplant(autogenic)in January 10,and then that summer they decided for me to have a allogenic,so they tested my brothers & sisters,and we found one match.The sct is much easier because you know what to expect.Recovery…[Read more]

jackiecollins replied to the topic Spring is on it's Way! in the forum General

Mon, 05 Mar 2012 20:00:01 +0000

Hi Chris,my congratulations to you & Lena on your forthcoming marriage,. Good to hear your doing well and that your pp's are coming down,and hopefully you get to have SCT,take care and best wishes Shirls 🙂

jackiecollins replied to the topic LUMBAR KYPHOPLASTY in the forum General

Mon, 13 Feb 2012 13:04:26 +0000

Hi Glenn,Sounds like your doing really well,and lovely news to hear that your tumour has gone,i had the same thing,but i never had a klapaplasty,i had a vertreplasty,best thing i ever had done,with the klapaplasty i think they insert balloons,to raise it up,where as what i had done,was sightly differant,with me the cemented my T11 & T12,i had back…[Read more]

jackiecollins replied to the topic Red Itchy Eyes Post SCT in the forum Side-effects

Wed, 25 Jan 2012 12:27:58 +0000

Hi Wendy i can certainly sympathise with you there,i've had a sore left eye sinse Aug/Sept,mine is part of the GVHD,i've taken all sorts,but vistotears are great,takes the itchyness right down,i still have the bad eye but it is getting better,oh and lacralube is good too,hope you manage to get hold of some let us know how you get on take care for…[Read more]

jackiecollins replied to the topic Good News Good News in the forum Treatment

Wed, 25 Jan 2012 12:18:59 +0000

Awe thats great news Gill,you & Stephen must be so thrilled,this is truly inspirational news well done Stephen,hope it won't be long before you turn back into a teddy bear for Gill,you both deserve it,take care for now and keep praying for more inspirational news.Best wishes Shirls & Stephen x x

jackiecollins replied to the topic REMISSION. in the forum General

Sat, 07 Jan 2012 19:24:45 +0000

Fabulous news,especially for Slim. You can both sit back and plan that cruise/holiday that you both so rightly deserve,take care Shirls x x x

jackiecollins started the topic Hello everybody. in the forum General

Wed, 28 Dec 2011 18:01:08 +0000

Hi Everyone,just me wanting to say hello and ask if you had a lovely christmas/boxing day,i had a fabulous time,although it was very long and very tiring towards the end,but super day,husband,stepchildren spoilt me,my wonderful neice and nephew were invited to our house,they came and it was the case of Aunty Shirls sit back and enjoy the day and…[Read more]

jackiecollins replied to the topic Chest Infection in the forum Side-effects

Sun, 18 Dec 2011 21:17:15 +0000

Hi Keith,thats me all over,i had my flu jabs done about 3weeks ago,and this week i've had a pretty bad cold and it went onto my chest,like you i'm totally fed up with the hacking cough,some sleepless nights,but i've to be careful cuz i've lung damage,anyway i do hope you feel better in time for next week festivities,Merry Christmas xShirls :)…

jackiecollins replied to the topic Might be my last Zometa in the forum Treatment

Mon, 05 Dec 2011 14:21:05 +0000

Hey thats great news Tom,lovely start to the festive season,mind as you go,take care Shirls 🙂 🙂

jackiecollins replied to the topic Support group xmas dinner x x in the forum General

Mon, 05 Dec 2011 14:18:02 +0000

Big thankyou to everyone,Stephen has been my true rock,i now know my limits as to what i can do,but at the same time i don't want to leave Stephen everything to do,he's been abit runned down,he had a bad cold the other week and then he did his back in poor love,but he's picking up again,. Eve i do have a portable tank which has been great,such…[Read more]

jackiecollins replied to the topic Happy Birthday To My Stem Cells in the forum General

Sat, 03 Dec 2011 19:49:36 +0000

Happy birthday to your stem cells Tom,in your very own words "onwards & upwards",mine will be a year old on the 21st of this month,the year has gone so fast,anyway have a good weekend best wishes Shirls 🙂 😉

jackiecollins replied to the topic REPRIEVE AT THE ELEVENTH HOUR in the forum Treatment

Tue, 29 Nov 2011 14:33:43 +0000

Brilliant news Jo,just sit back and enjoy christmas now and have a great time,i was in hospital for christmas and new year last year,so i'm really looking forward to a lovely family christmas this year,and good luck for next year,best wishes Shirls x x x 🙂 🙂

jackiecollins replied to the topic bad news :-( in the forum General

Mon, 28 Nov 2011 17:30:15 +0000

Ditto Tom,i was just gonna ask Gina the same,. Gina i do hope they are making your mum comfortable,thinking of you and your family,stay strong and make sure you look after yourself too, best wishes Shirls x x x

jackiecollins replied to the topic Support group xmas dinner x x in the forum General

Mon, 28 Nov 2011 17:24:44 +0000

Thanx Roz & Tom,i'm doing ok,on a good more positive road today,and it helps that Stephen is letting me clean the house abit more than i have. Bless him he knows my limits and he's very quick to stop me too,but it is good that i'm much more mobile and can start pottering around,biggest job is getting xmas sorted hahaha. Roz i do hope that you've…[Read more]

jackiecollins started the topic Support group xmas dinner x x. in the forum General

Sun, 27 Nov 2011 15:49:41 +0000

Hi Everyone,Sorry for being slightly quiet,been abit flat,just a blip i'm sure(change of weather),anyway starting to pick up again,i've been poorly with GVHvD,its affected my lungs well 1 of them anyway,been told its perminatly damage,my breathing has been terrible,but its more controlled now that i've oxygen tanks in my house,anyway back to xmas…[Read more]

jackiecollins replied to the topic WELL THE DEVIL IS BACK in the forum Treatment

Mon, 14 Nov 2011 21:02:43 +0000

Hi Jo,so sorry to hear your not well again and you were doing so well in remission,i do hope the new treatment will get everyhting under control and that your back on level par,you stay strong & positive,and great care Shirls x x 🙂 🙂

jackiecollins replied to the topic Collapsing after chemo prior to SCT in the forum Treatment

Sun, 06 Nov 2011 17:04:51 +0000

Hi Belles,sorry to hear your mum is poorly,and also sorry that i'm not able to help you in any way,just wanted to say that i hope everything goes well for your mum and that she's back on that road to recovery,both stay strong and take care, Shirls :):)

jackiecollins replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment

Sun, 30 Oct 2011 18:57:11 +0000

Lovely to hear that Bruce is now home and resting properly,bet your both so pleased and well done Bruce. I'm still having problems with my breathing,been abit of a day with it today,just leaves you so tired and bloody frustrated,but i'll get through it eventually,i'm like that old rubber ball always keeps bouncing back. Anyway enough of little old…[Read more]

jackiecollins replied to the topic bad news :-( in the forum General

Sun, 30 Oct 2011 18:43:45 +0000

Hi Gina,so very sorry to hear your mum is poorly,i can sympathise with her on the lung problem,i'm having problems with breathing but i've no tumours on mine,must be worrying times for you and your family,stay strong and take great care, Shirls x x x

jackiecollins replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment

Tue, 25 Oct 2011 20:02:49 +0100

Hi thats good news for you both,well done. I was looking at my post i sent the other day and it looked and sounded abit flat,but thats how i.ve been feeling the last few days and for which i apologise for,normally i'm quite upbeat and very positive,but it had been a trying week,last Tuesday my brother had his appendic's out which shook him up…[Read more]

jackiecollins replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment

Mon, 24 Oct 2011 20:46:13 +0100

Hi Mal & Bruce,i haven't been online for awhile so missed your post,. I.ve go MM and go to Derriford Hospital,i'm normally on Birch Ward they got the most fantastic team there,hope Bruce is doing good and that he's come through the worst of it all now,it won't be long before they let him home,thats when the recovery starts,i've had 2 sct,at he…[Read more]

jackiecollins replied to the topic Kath (aka GrannyGrump) in the forum General

Sat, 08 Oct 2011 14:51:23 +0100

Its me again apologising because i got the names wrong,i called you Julie and your Lorraine,so sorry for mix up x x Shirls x x

jackiecollins replied to the topic Kath (aka GrannyGrump) in the forum General

Sat, 08 Oct 2011 14:49:17 +0100

Dear Julie,our sincere condolences to you and your family over the sad loss of your dear mum,some of her post used to make me laugh when low,always gentle on advice etc:. Cherish her memory and the good times you all had,god bless Shirls & Stephen x x

jackiecollins replied to the topic Gimme just a lil more time.... in the forum General

Thu, 06 Oct 2011 13:35:36 +0100

Hi Mari,first of all please don't ever feel like your a burden because your not,we are all here for reasons,and this is the best site for ranting./screaming/laughing and getting everything of your chest. As David just said it will happen to us all eventually,but i'm sure once Steve has been given the right dosage of medication he'll pick up…[Read more]

jackiecollins replied to the topic Mini Allo Transplant in the forum General

Tue, 04 Oct 2011 19:32:37 +0100

Hi there,right where do i begin,like you i'm normally a slow decision maker but i'm from a family of 12,and when 10 of them got tested for me to have the allo i only had 1 match,thats why in the end i went ahead and had it done,and despite the gvhd i don't regret doing so. I had a full allo done,melphalan on the Moinday and then Transplant on the…[Read more]

jackiecollins replied to the topic Infoday for Plymouth Support Group in the forum General

Tue, 04 Oct 2011 19:11:53 +0100

Hey you mrs myra,you have no need to to apologise to me,hahaha,. Yes it was a great day,certainly came away with a lot to think about and boosted confidence,this gvhd stuff has certainly made me feel rather low,since my fall back in May i just haven't felt right in myself,then this gvhd kicked in,small price to pay for longer quality of life but i…[Read more]

jackiecollins replied to the topic Infoday for Plymouth Support Group in the forum General

Mon, 03 Oct 2011 14:14:39 +0100

Hi Eve,thanx for answering back and hope all is well,not alot of fun being stuck in hospital,good to be home. I do have a tank installed in my house,ugly looking thing that it is hahaah,but it does the job,i thought i would,ve been given a portable one so at the moment i'm a little bit of a stuck at home bird,who can't do much,as i'm constantly…[Read more]

jackiecollins replied to the topic Mini Allo Transplant in the forum General

Sun, 02 Oct 2011 14:00:26 +0100

Hi there Wendy,i don't know if my post can help you at all but i'll try my best foryou so that it helps you make your decision,and to think of future treatments that are coming widely available. I was diagnosed with M.M 13th August 2009,age 43yrs,in them 2yrs so far i've had an autogenic S.C.T,i had only harvested enough to have 1 go at it,and…[Read more]

jackiecollins started the topic Infoday for Plymouth Support Group. in the forum General

Fri, 30 Sep 2011 21:15:12 +0100

Hi everyone,sorry for being so very quiet,i've just spent 3weeks in hospital,at the moment i'm suffering with Graft Verses Host Disease,since June its affected my eyes,my mouth very badly,and then it moved into my lungs so i'm having big problems with my breathing,totally gasping in everything i try to do,in the 3 weeks of being in hospital they…[Read more]

jackiecollins replied to the topic News in the forum General

Sun, 04 Sep 2011 16:17:29 +0100

Hi Bridget,honestly you made me laff with you good sense of humour,and please scream,shout and curse all you want,. Sorry too that this is bad news for you,lets hope its just a small blip and that they treat you well,for now keeeeep currrrsing,take care Shirls x x x

jackiecollins replied to the topic A wonderful event in the forum General

Sun, 04 Sep 2011 16:08:42 +0100

Hi Amelie,after reading some sad post on here today,its lovely to see posititve post,. Big well done to you for making John.s dream come true,and well done John for seeing it through,take care Shirls 🙂 🙂

jackiecollins replied to the topic Peter in the forum General

Sun, 04 Sep 2011 16:00:18 +0100

To Min and family,my sincere condolences to you all,take great care Min,love and best wishes Shirley x x x x

jackiecollins replied to the topic Levels back up... :-( in the forum Treatment

Wed, 31 Aug 2011 15:31:52 +0100

Hi Chelle sorry to hear your husband is poorly and so young too,i was 43 when i got diagnosed with MM,that was 2yrs ago now. I've not experienced what your husband is growing through,so i hope for both your sakes that this is just a small wee blip,and that he starts to feel better again,keep us all posted with his progress,and don't give up,best…[Read more]

jackiecollins replied to the topic No more Velcade in the forum Treatment

Wed, 31 Aug 2011 15:25:15 +0100

Hi Gina sorry to hear that the medication is making your mum poorly,i'm ann MM patient but i've never taken Velcade yet so i don't know what to expect,but i do hope it won't be long before they reach a new decision on what to give her next and that she's starting to feel well again,take care for now best wishes Shirls x x

jackiecollins replied to the topic Treatment in the forum General

Thu, 25 Aug 2011 21:25:08 +0100

May you rest in peace Gaye,my sincere sympathys to your family and friends,. Trully inspirational lady who always gave sound advise. Gaye you'll be sorely missed,god bless, Shirley x x x x x

jackiecollins replied to the topic Treatment in the forum General

Sun, 14 Aug 2011 21:29:55 +0100

Hi hello Gaye,i must firstly agree with everybody who has answered your post in saying what a trully,lovely and brave lady you are,i was diagnosed 2yrs yesterday with this god forsaken disease,and i too would be tired after a long gruelling 8yrs of needles,bloods medication,hospital appointments,.Its a very hard decision to make and you are so…[Read more]

jackiecollins replied to the topic Questions about stem cell transplant in the forum Treatment

Sun, 31 Jul 2011 21:17:39 +0100

Hi Jet,i've had 2 sct,my first one was autograph,and boy was i poorly,i was in hospital for 3weeks,and man was i poorly,lost my appetite,had s&d quite bad,i slept alot,towards the end of my 3weeks i just wanted to be left alone,i cried,because i felt i couldn't take anymore,my poor husband went home quite flat,but when he turned up the next day i…[Read more]

jackiecollins replied to the topic I am so angry!! in the forum General

Sat, 30 Jul 2011 15:17:27 +0100

Hi Gina,hope you ok,and hey you come on here and rant and rave as much as you want,i've got mm,so i cam sympathise with you and your mum in the pain she has,must be a very worring time for you all,like Jo & Bridget suggested change your consaultant if you are not happy with the way your mum is being treated,your entitled to,. In order for her to…[Read more]