HI,,I’M JUST WONDERING IF IT’S NORMAL TO START GETTING DRY SKIN/ITCHY THING 10 MONTHS AFTER SCT,,JUST LAST MONTH IT’S STARTED BIG TIME,,IN THE SCHEME OF THINGS I KNOW IT’S NOT A BIG DEAL..JUST CURIOUS,AND HOW LONG IT MIGHT LAST,,,WISHING EVERYONE WELL,,,SIMON

HI,,,NOT SURE WHERE I’M UP TO,,,HAD MY LAST AREDIA YESTERDAY,,,,IN APRIL I WAS IN REMISION..NOW MYELOMA IS SHOWING AGAIN,,STILL LOW,,AS OF JULY 31,,,SO NOW SEE DOCTOR EVERY 3 MONTHS SEE WHERE MYELOMA IS AT,,ALL THIS AFTER 18 MONTHS OF TREATMENT,,,SO OF COURSE I DONT KNOW HOW SLOW OR QUICK MYELOMA WILL RETURN TO NEED TREATMENT AGAIN!!! UP IN THE…[Read more]

HI,,AFTER 16 MONTHS TREATMENT,,VELCADE,SCT,,ETC,,,I’M IN REMISION FOR NOW,,WHICH IS GREAT,,5 WEEKS SINCE LAST CHEMO,,,I’M FINDING IT DIFFICIULT,,TO REST AND RELAX,,MOODS DIFFERENT EVERY DAY,,EASILY TIRED,,I LIVE IN NZ,,,AND JUST COME OVER TO ENGLAND TO SEE MY MUM AND SISTER,,IN TRING..FINDING IT DIFFCIULT,ON MOST LEVELS WITH THEM,,DONT WANT TO…[Read more]

hi,,after a year of treatment,,velcade,,s.c.t,,etc,,im about to be put on thalidomide maintainance,,im wondering if anyone had good results in terms of,,it keeping,,m.m in check,so to speak,,thanks simon

HI,,IM A YEAR IN TO TREATMENT,,9 WEEKS OUT OF S.C.T,,MY MYELOMA WAS CAUGHT EARLY[2 YEARS MONITORED] SO FAR PHYSICALLY AND RESPONSE TO TREATMENT,,IVE BEEN DOING WELL..IM A WALKING TIME BOMB EMOTIONALLY,NOW,CARNT COPE WITH ANY EXTRA PRESSURES,,AND SCARED OF MY OWN INTENSE FEELINGS,,BOTTLED UP,,,RAGE,TEARS,EXPLOSIVE,,,TO THE DEGREE I KEEP EVERYONE AT…[Read more]