Myeloma Forum | simongleave | Activity

simongleave started the topic SCT SIDE EFFECT in the forum Treatment

Wed, 19 Aug 2015 23:16:19 +0100

HI,,I’M JUST WONDERING IF IT’S NORMAL TO START GETTING DRY SKIN/ITCHY THING 10 MONTHS AFTER SCT,,JUST LAST MONTH IT’S STARTED BIG TIME,,IN THE SCHEME OF THINGS I KNOW IT’S NOT A BIG DEAL..JUST CURIOUS,AND HOW LONG IT MIGHT LAST,,,WISHING EVERYONE WELL,,,SIMON

simongleave started the topic THERE NOW CALLING IT PARTIAL REMISION!!!!!!!!!!!!!! in the forum Treatment

Tue, 04 Aug 2015 23:49:48 +0100

HI,,,NOT SURE WHERE I’M UP TO,,,HAD MY LAST AREDIA YESTERDAY,,,,IN APRIL I WAS IN REMISION..NOW MYELOMA IS SHOWING AGAIN,,STILL LOW,,AS OF JULY 31,,,SO NOW SEE DOCTOR EVERY 3 MONTHS SEE WHERE MYELOMA IS AT,,ALL THIS AFTER 18 MONTHS OF TREATMENT,,,SO OF COURSE I DONT KNOW HOW SLOW OR QUICK MYELOMA WILL RETURN TO NEED TREATMENT AGAIN!!! UP IN THE…[Read more]

simongleave started the topic simon 54 in the forum General

Thu, 21 May 2015 10:23:47 +0100

HI,,AFTER 16 MONTHS TREATMENT,,VELCADE,SCT,,ETC,,,I’M IN REMISION FOR NOW,,WHICH IS GREAT,,5 WEEKS SINCE LAST CHEMO,,,I’M FINDING IT DIFFICIULT,,TO REST AND RELAX,,MOODS DIFFERENT EVERY DAY,,EASILY TIRED,,I LIVE IN NZ,,,AND JUST COME OVER TO ENGLAND TO SEE MY MUM AND SISTER,,IN TRING..FINDING IT DIFFCIULT,ON MOST LEVELS WITH THEM,,DONT WANT TO…[Read more]

simongleave started the topic thalidomide as maintainance treatment in the forum General

Wed, 07 Jan 2015 01:26:35 +0000

hi,,after a year of treatment,,velcade,,s.c.t,,etc,,im about to be put on thalidomide maintainance,,im wondering if anyone had good results in terms of,,it keeping,,m.m in check,so to speak,,thanks simon

simongleave replied to the topic Graham's Christmas Video 2013 in the forum Off topic

Sat, 13 Dec 2014 02:42:47 +0000

great,,,MERRY XMAS,,,,

simon changed their profile picture

Sat, 13 Dec 2014 02:35:57 +0000

simongleave replied to the topic coping emotionally,,and nerves,, in the forum General

Sat, 15 Nov 2014 00:30:21 +0000

THANKS ELLEN,,,IT IS SOMETHING ABOUT,MY SELF DOUBT,AND NOT BEING ABLE TO VALIDATE MY OWN FEELINGS,,,PEOPLE WANT TO RATIONALISE,FIX,CHANGE,,ETC,ETC,,,WHICH JUST ADDS TO MY PRESSURE,OF APPEARING A CERTAIN WAY,,,[ITS ALSO FRUSTRATING,THAT MY MUM AND 2 SISTERS LIVE IN UK,,AND I LIVE HERE IN NEW ZEALAND,,AND I STILL CARNT GET BACK UK,////ALL BEING…[Read more]

simongleave started the topic coping emotionally,,and nerves,, in the forum General

Thu, 13 Nov 2014 00:57:07 +0000

HI,,IM A YEAR IN TO TREATMENT,,9 WEEKS OUT OF S.C.T,,MY MYELOMA WAS CAUGHT EARLY[2 YEARS MONITORED] SO FAR PHYSICALLY AND RESPONSE TO TREATMENT,,IVE BEEN DOING WELL..IM A WALKING TIME BOMB EMOTIONALLY,NOW,CARNT COPE WITH ANY EXTRA PRESSURES,,AND SCARED OF MY OWN INTENSE FEELINGS,,BOTTLED UP,,,RAGE,TEARS,EXPLOSIVE,,,TO THE DEGREE I KEEP EVERYONE AT…[Read more]

simon changed their profile picture

Thu, 13 Nov 2014 00:40:24 +0000

simongleave replied to the topic POST STEM CELL TRANSPLANT in the forum Treatment

Sat, 01 Nov 2014 02:16:38 +0000

hi,,Im 7 weeks after,,s.c.t,,,when I first came out of hospital I stayed with my dad for 3 days,then whent home,,i live on my own,im 53,,it wasn’t recommended I go home.but I did anyway…my neighbours got me milk bread etc,,I just slept a lot,,phoned people when I had the energy,,and managed hospital visits,ok/best I could..i was scared stiff…[Read more]

simongleave replied to the topic Day 10 after SCT and the engraftment has started! in the forum Treatment

Sun, 15 Jun 2014 22:45:26 +0100

THIS IS MY FIRST POST,,,,,MY STEM CELL TRANSPLANT IS DUE AUGUST,,IM GLAD YOUR DOING SO WELL,,AND FIND YOUR POST ENCOURAGING,,IM QUITE SCARED BY THIS PART ,,THANKS,,,,SIMON[53],,,,