[simon73Participant]

Hi Rob

Thanks for the message and support. I wish you and everybody the best in there battles with this stupid disease.

Simon

[simon73Participant]

Mate just Post away. Get them feelings and thoughts out. Dont worry about it being negative. If it is, then we can try and support you etc.

I just take one day at a time. I am sure you are like me. The positive is you have the pain under control- thats better than me. Lol! Another good thing is you seem to be mentally in a good place and not worrying too much about the future. I think thats a massive thing and gives you strength to fight the cancer in a better way.

 

[simon73Participant]

Hi Taff

Not sure what to say, but just wanted to say you are not alone and that helps is there in different froms. Life is not easy but things could also be much worse. There is always the chance your health problems can improve and you are being looked after by some of the best people in the world.

I dont know about you, but I have a fight mentally to take it all in and sometimes struggle to stop the questions etc in my head. I just try and think of one positive thing a day and focus on that or I watch a Rugby League game. I analyse it and stops me thinking about Myeloma or my problems for a while. Maybe something similar helps you and others.

Keep fighting mate like the rest of us.  You are never alone

Simon

[simon73Participant]

Thanks Tony. I coach for free as we dont have much money in Rugby League in Germany.

My parents and Siblings live in Halifax though my father was born in Germany in 1944. But if I ever get to Leicester I will let you know. Same if you ever make it to Hamburg or Hannover. I live in between the 2 cities

I am like you am very sceptical about alternative methods. My wife has suggested Reiki and so after what you said I will look further in to it. Have to look at all options dont we!

Thanks again mate as I was in a bad place with my first post but you and others have helped me get back in the horse and now am positive and now focussed on what lies ahead in my battle. Finally speaking to somebody with Myeloma is great! Thanks

[simon73Participant]

Louishenry- thanks for the advice and also replying to my post

Tony – thanks both for your message and support. Yes I can relate to alot you say and I take alot of hope and comfort from your message. Thanks mate

I spoke to one of the kind ladies on the phone this morning. Even though I get all my treatment here in Germany she spend 40 minutes kindly offering advice, support and suggestions. It might not be something amazing she said but it just calmed me down after a a bad 24 hours where I lost control of staying positive. I think my battle is more mental than the cancer itself at the moment. Its very much staying focussed on what I have to do. I am fortunate that I am until the Cancer head Coach of the German Rugby League National team and so I can try and use some of the experiences in to my battles. Keeping focussed on the basics and staying positive is what I try to do and that helps. The support from Likes, Comments and videos on Facebook from friends around the world has given me much strength. I feel much better now and back where I should be feeling positive and ready to fight this battle with 100%. Thank you all on here for your comments and the people who have provided support for me and others with this support group.

Simon

[simon73Participant]

Thanks Greg for the positive message. This helps me alot to try and stay positive. I also wish you also the best in your fight of MM.

Thanks

Simon

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