[sj2909Participant]

Hi. Could you clarify what STC is please. Are you referring to stem cell transplant? I had two and for both was placed in a room of my own. I found it very isolating but certainly not noisy as it is separate from the ward. We were initially put up in a flat but I felt too sick so they brought me into the hospital early. It’s a long time to stay on your own but it is also reassuring to be close to medical care. Perhaps you could ask about a split between the flat and the hospital but if the flat is close to the hospital it will definitely be nicer than a ward room. Not sure if this helps.

[sj2909Participant]

Thanks so much for your reply, that’s really good to know. I have now got a telephone appointment with a regional advisor next week so I will post any info I get from her.

[sj2909Participant]

Thanks to you all for taking the time to track your progress so that we can all benefit from your insight. I was given the leaflets for Elran and Teclistamab last month as my 4th line option and I have to say I found the list of side effects really scary. Like others, I was also worried about the treatment taking over my life.
I have been considering trying to get on a tcell trial but that would mean a lot of travel and, after 2 stem cell transplants, I am loath to go through something similar.
Your posts have helped to reassure me, especially knowing that the injections can be reduced and that I can still get away for a holiday. Does anyone know what the prognosis is with these drugs? A difficult question I know but my consultant didn’t know what current results are showing in terms of how long it can last.
I’ve also been give info on Talquetamab and I have no idea how to decide which option to go for. I appreciate any info anyone has and I am so glad to hear people are doing well on these drugs.

[Author]

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