[smithsterParticipant]

Hi Morwenna

My experience sounds similar to yours. Age 70, SCT last April, 6 months Lenalidomide.
I’m recovering slowly but still have days when I’m very tired.
My blood numbers are good and after a few coughs/colds I haven’t had anything for a couple of months.
No one seems to know whether the fatigue is the myeloma itself, the recovery from SCT or the Lenalidomide!

Consultants continue to suggest that the SCT is probably still the main issue

I’ve started taking the Lenalidomide at 6pm rather than bedtime because I was waking up feeling wiped out, and that seems to be helping a bit.

Overall though I would have taken my current state when diagnosed Sep 23

[smithsterParticipant]

Hi. I’m on my fifth month of Lenalidomide maintenance and have switched from taking it at bedtime to the afternoon.
I was waking up feeling really rough and tired previously, and changing the time seems to have helped.
However as in all these things there is no way of telling – far too many other variables such as the myeloma itself, continued recovery from SCT and so on!

• This reply was modified 1 week, 4 days ago by  smithster.

[smithsterParticipant]

Back home after 16 days in hospital for SCT. I experienced everything they promised- sickness and fatigue mainly, the other effects relatively mild. Roughest days were 9 to 12 but once the neutrophil numbers started to rise, I felt a bit better.
After 2 days at home I still have sick sensation with suppressed appetite and of course very tired.
Back to clinic for bloods etc in a few days

[smithsterParticipant]

I had my harvest a few weeks ago and my SCT starts next week. Finished 4 cycles of DVDT in January and my Paraprotein is too low to measure. I still get lots of pain and fatigue but facing SCT with as much optimism as possible since everything the medics have told me in the last 6 months seems to be going to plan.
I hope at age 69 my body will cope. The insights given here are very helpful, and I’m ready for whatever the mephalan does to me.
Thanks all, especially mulberry.

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