Hello All,

As you might expect Cromer crab & fish&chips were superb as were the settings & Norfolk generally.

I spoke to my Consultant on Tue. as planned & she told me there is no definitive level of Paraproteins that will trigger any given treatment.  Each & every patient will be judged on their particular MM presentation & medical history,…[Read more]

Thank you for your information Peter, very interesting, recent bloods were taken from me on Thursday last and my Consultant will be giving me the results on Tuesday via a telephone consultation as we will be in Cromer for a few days, which again reinforces what she said about there not being great urgency to begin Revlimid/Dex just yet.

As has…[Read more]

Hi,

Thanks again Annette, I was thinking you might have been on some sort of trial because of being on Revlimid for so long, I will post when I get started on said treatment.

Susan what can I say, your knowledge appears very good indeed or else mine is particularly poor.

Thank you for your input, you have certainly included some useful…[Read more]

Hi Annette,

Wonderful to hear your MM has been under control for 8yrs,  really good to hear, as for your numbers rising I wish you the very best in regaining & maintaining that control.

It has been suggested my starting dose would be 25mg & adjusted accordingly if I respond badly for whatever reason, this may be my dose for approx. 1 yr. after…[Read more]

Hi David,

I guess it is safe to say that it is good that you have found this website where there is a wealth of information, people to contact for various reasons who work with & for Myeloma UK & of course the forum where it’s possible to enter into discussion with many people who have Multiple Myeloma or people closely associated…[Read more]

Hi Chris,

Really sorry you were only in remission for 18 mths, its a game of roulette, we all hope for a long period free of the squatters but as is said “it is what it is” short or long period.

I agree with Jan in that if bone damage is apparent again then maybe seriously consider going with the mthly Zometa again.

We’re never going to know if…[Read more]

Hi Susie,

Its always difficult to know what to say to news like yours, some will talk about what a bad time they are having or have been through which is not what you want to hear really, right now its about you, not me or anyone else.

Rest assured many people on the forum will have read your post & really felt for you because we are all going…[Read more]

I have absolutely no idea what happened with my posting above? I hope readers can still work out what was posted, very strange.

Ian.

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<p style=”box-sizing: border-box; margin: 0px 0px 17px; padding: 0px; font-size: 13px; direction: ltr; font-family: Arial,…[Read more]

Hi,

Many thanks to Greg, Jan & David for your replies, you raised some good points.

I did suffer the same side-effects while on my chemo cycles prior to my SCT & always remember that I felt pretty rubbish 2 days after every Zometa infusion but at that time I was on so many drugs it was always going to be difficult to determine which drug was…[Read more]

Hello To All,

My 1st post, I was diagnosed on 19/01/16 just short of my 63rd birthday & underwent 6 cycles of VTD followed by a SCT at LRI.

I was discharged from LRI, following the SCT, on 12th Oct.’16 after 10 days!!  I was so pleased to be going home & with getting off quite lightly with regards to Melphalan side-effects, I actually had no…[Read more]